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Anyone with any experience of an 'Immature bladder?

32 replies

totaleclipse · 12/01/2007 19:05

DS is almost 6, and after 3 years of failed toilet training, his paediatrcian is sure he has an immature bladder, she has given me a prescription for oxybutinin, but when I seach for immature bladder on the net, I only get bed wetting come up, anyone any experience of day wetting?

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totaleclipse · 12/01/2007 19:22

bump

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totaleclipse · 13/01/2007 11:48

Bump

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totaleclipse · 13/01/2007 14:31

Wel he took his first tablet a cuple of hours ago and has not stopped being sick since

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NannyL · 13/01/2007 17:58

no experiance of it but bumping this thread for you

totaleclipse · 13/01/2007 20:51

thanks

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totaleclipse · 13/01/2007 23:00

one final bump.

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roberta3 · 13/01/2007 23:16

DS2 age 6 recently prescribed it. Looked at ERIC website (to do with both day and night wetting). Comments on their message board freaked me out re side effects. Doctor had only mentioned dry mouth when I asked him but this referred to hallucinations, deterioration in behaviour, etc, etc. Sorry I'm being no help cos will be freaking you out now.

I rang Doctor and they said all meds have side effects and they've treated lots of kids successfully. Have decided to use it as a final, final resort.

We're now having a major campaign to up his liquids as this is meant to increase bladder capacity. 8 cups a day - not easy. School now giving him drink morn and aft break. Gets a powerpod for every 2 days of having 8 drinks!

Hope this helps.

nwgreenmum · 13/01/2007 23:22

Hi, I have a 7 year old (DS) who is still wet at night quite alot of the time but not so much experience of daywetting.

I think I know about the drug you have been given. When children reach a certain stage they should start producing a hormone overnight that stops them/us wanting to wee. You and I produce this overnight. My son doesn't and so wets the bed. I think that this drug is given for night wetters usually and is a sinthetic form of this hormone, but in your case maybe this is not appropriate? I am not a doctor and I may be really really wrong. Try this site Eric

Eric give good advice as far as I can tell.

If I can find out any more I will post here again

totaleclipse · 13/01/2007 23:23

Thanks roberta3, dont worry you hav'nt freaked me out, I knew about the possible side effects , has the medication helped your ds at all?

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totaleclipse · 13/01/2007 23:26

Oh yes, I have heard about the hormone for night wetting, ds is wet through the day and night, his paediatrician has said the medication should improve both, though currently I am not bothered about the night time, I just want him dry through the day before he is targeted by bullies at school.

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blondehelen · 13/01/2007 23:32

my dd has this. She is 7 (nearly 8)and suffers with day and night. She was on oxybutinin and desmopressin. But after about a year of the oxy she got auditory hallucination and we stopped it. She has improved alot in the day and wets in school rarely (once or twice a year) My dd clinic wrote to her teacher and she is allowed to go to the toilet when she needs to and doesn't have to wait and ask. Again, I have the struggle of getting her to drink enough. Do you have the list of drinks that they advise they shouldn't have?

blondehelen · 13/01/2007 23:32

my dd has this. She is 7 (nearly 8)and suffers with day and night. She was on oxybutinin and desmopressin. But after about a year of the oxy she got auditory hallucination and we stopped it. She has improved alot in the day and wets in school rarely (once or twice a year) My dd clinic wrote to her teacher and she is allowed to go to the toilet when she needs to and doesn't have to wait and ask. Again, I have the struggle of getting her to drink enough. Do you have the list of drinks that they advise they shouldn't have?

totaleclipse · 13/01/2007 23:34

blondehelen
No, no-one mentioned anything about drinks.

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nwgreenmum · 13/01/2007 23:46

If you want to read more try just putting Day Wetting Child into Google maybe?

You probably already tried that and I am being a complete arse, so sorry.

blondehelen · 13/01/2007 23:47

sorry, just trying to find list we were given. Can't find it but this is what i can remember.

No blackcurrant or pure juices. Limited fizzy, chocolate and tea.

Cutting out the blackcurrant made a huge difference to dd. Found that all berry squashes had bad effect too.
HTH.

roberta3 · 13/01/2007 23:49

Right here goes and hope this helps.
Initially he was prescribed desmopressin for the night time. Didn't do any good and he suffered with nose bleeds. We have also been through the nightime wetting with DS1. Again desmopressin didn't make a difference. We ended up with a night time alarm which woke everyone except him! We would then wake him to go to the toilet. I honestly don't know whether it had any effect but one night he was dry and that was that! It was in the summer holidays just before he went into juniors so we were v relieved.

DS2 has a problem with day and night time. I've actually put the night time thing on a back burner cos sick of washing bedding! Put him in pyjama pants and he's okay with that (for now). Daytime now the priority.

I can't remember the exact figures but for every year of life your bladder should hold a certain amount of urine. Perhaps 25ml for every year - not sure. To increase capacity need to drink more rather than less - hence the 8 drinks.

Drinks to avoid - milk and apple juice.

Taking him to specialist on Tuesday so could ask any questions you may have.

totaleclipse · 13/01/2007 23:55

Thanks blondehelen, Luckily ds mostly drinks weak orange squash and water.

does/did you dd have full accident (emptying her bladder totally) or is it just leaking, because ds has both and often empties his bladder in his pants upto 8 times a day, but on good days when he makes it to the toiled the whole day, he still is always damp.

sorry if I soound dumb just dont understand it totally and want to be sure he has been diagnosed correctly

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roberta3 · 13/01/2007 23:58

And fizzy drinks, tea and coffee.
Was really surprised about milk but have heard this a few times.

Make sure you talk to school though cos I was stunned that kids were prevented from going to the toilet.

He had an 'accident' the other day because the headteacher was covering for his class teacher and the message hadn't been passed on so she wouldn't let him go when he asked. I was furious because it had taken me ages to persuade him that it was okay to have extra drinks at school and just to tell his nosy friends that the doctor said he had to.

The look on his face when he told me what had happened

Anyway, I very calmly (I think!) spoke to the class teacher who was mortified about the situation. I even got a written apology!

Giving a little reward has really helped with encouraging him to drink. There's no point doing a star chart for not having accidents cos he doesn't really have enough control yet so it's a good way to encourage him and build up his confidence about the whole situation.

blondehelen · 14/01/2007 00:02

dd has both. She doesn't class damp as 'wet'. i often have to tell her to wash and change. She can't hold it at all. She gets about 3 seconds notice she needs the loo. dd is seeing her nurse specialist on Monday. She has loads of useful info for both child and parent. (bladder gremlins etc) If you like I can ask her for more copies and if you email me your address I can post it.

totaleclipse · 14/01/2007 00:03

roberta3

Oh no, I knew there was another drink he likes, he loves milk and usually has a pint a day, but he is on oxybutinin not desmopressin, but I suppose they are pretty much the same. I meant to also mention that ds has social development delay (most likely aspergers, waiting for a dx) so that makes things more difficult as it is possible he does'nt see the importance of using the toilet, he certainly is'nt bothered by being in wet clothes.

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totaleclipse · 14/01/2007 00:06

blondehelen
That would be great, thanks.

my email addy is

[email protected]

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totaleclipse · 14/01/2007 00:08

roberta3
Thats awful, my niece (14yrs) also has bladder problems, and came home wet a while ago and crying because a teacher refused to let her go to the toilet.

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totaleclipse · 14/01/2007 00:12

Because ds has communication and language difficulties too, he cant explain to me if he just gets no warning, or is unaware its happening etc, he just has no answers, though I am sure he knows, he just cant explain it

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totaleclipse · 14/01/2007 00:12

Many thanks, sorry for keeping you all up

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blondehelen · 14/01/2007 00:16

Hi,

I have emailed.

RTW has your ds had a ultrasound to rule out any kidney issues and to measure bladder capacity?