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Trigeminal neuralgia is a bastard and should die in a painful manner

29 replies

BeyondCBA · 11/01/2016 14:44

Having a massive attack, just want somewhere to whinge about it really, but any advice is appreciated.

First started 18m ago. It has swapped sides now and is a million times worse. None of my meds are touching it, on my third alternate prescription from the gp (gabapentin>tegretol>pregablin). My eyes have gone 'funny', my optician said i had double vision at my last appt (this time last year) but again, during this attack (started back in nov) they are so much worse, i struggle to read anything as the words are all jumbly. Plus it almost seems like my vision in one eye is greyer than the other when they are both open, though this goes when i close the okay eye. When i am having an attack, i often cannot open my eye on that side.

It is sore all of the time, and i'm having full on attacks then that last well over the two mins i have been told they should. I have no idea how often they come (will try to keep track perhaps) but its been so bad i have spent the last four days in bed, and spent a good chunk of time before xmas there too. Dr said last time i saw her that if it continues she will refer to neuro at my next appt. So as it is still continuing (though fingers always crossed i will actually be better before i can get there) i'm planning to see the optician first so i can have a quantifiable number of 'worseness' for that to go in and give to her.

Btw, i have seen my dentist, my teeth are fine. I do have a long list of other crap wrong with me though 😕

OP posts:
MatildaTheCat · 23/02/2016 13:38

Oh you poor thing. I do hope you've had a reassuring appointment today and that you will get the help and support you need. Hopefully neither a TIA or MS. Flowers

BeyondBootcampsAgain · 23/02/2016 17:47

TIA consultant looked at me like Hmm I didnt ask for the bloody referral!! Said there is no sign of stroke, it is either my tn or my teeth. While there btw, the nurse noticed i had a fever when doing my obs.

So out of curiousity i popped into my dentist, to ask whether it was worth wasting another emergency appt when they have already said it isnt my teeth. Recpetionist went and told the dentist that i was swollen up to the eye, and he saw me straight away!

Did an xray, and finds there is an abscess hiding in my jaw, up above my top teeth. So, partial root canal done (basically he drilled right through my (dead) tooth to drain the abscess. Yuck). Temporary filling in now, and ABs given. Finally!! :)

It has apparently been the pressure from this abscess that has been comstantly setting my TN off. So hopefully, an improvement will be here soon :) :)

CharleyDavidson · 23/02/2016 21:10

Swollen cheek is not consistent with TN, so I'm not surprised to hear of the abcess. I know that if I get a spot on my face along my nerve, it will trigger my TN pain, so I'm sure the pressure from the abcess could definitely do it.

BeyondBootcampsAgain · 23/02/2016 21:19

Yeah i didnt think so either charley, but apparently (so my gp says...) while it isnt 'normal' to swell, its not outside of the realms of possibility either.

Tonight, I can shut my jaw for the first time this year :)

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