Anyone got any experience of encropsis (?spelling), constipation and seepage?

[Jimjams2]

DS1 has been trying to pass a stool since 4.30am. He seems to be in quite a bit of pain (can't stand quite a lot of the time, sort of kneeling on all 4s). He now has kind of what looks like water falling out (sorry tmi I know), with some frothy bits in. He did pass more diarrhoea type stuff earlier, but it's become increasingly like a constant drip of water.

Any advice please- anything I can use to get him moving? It will be very difficult to get him examined anywhere (he's severely autistic).

How is he today Jimjams2?

Liquid paraffin was used a lot with autism in the past, but I don;t know how I;d get it into him.......

Seems more comfortable today. Got into a terrible mess in the middle of the night (think scrubbing carpets and running baths), but slept well from 2am ish.

jimjams, i had this with dd a few months ago and we had to take her to A&E, she is suspected ASD although not severely, they did an xray and she was absolutely full of the stuff, it was all impacted.

I had to phone her paed yesterday as she hasnt been for getting on a week and is in pain, he has told me that she can have up to 8 sachets of child movicol if she,s really bad.

When she got admitted last time they gave her 2 sachets in a yoghurt and after about 1-2 hours she went and then we have carried on with one sachet a day in her yoghurt or mashed potato whatever she will eat, there is the one that doesnt taste of anything, thats the one she has.

Dont know if this will help your DS but i understand what you are going through.

How still do they have to stay for an x ray- I've heard that a lot of children with ASD are full of the stuff when they x-ray- even if they don't have hugely obvious symptoms.

He will have to lie very still for an Xray. It is only for a second though. They may want to restrain him or sedate if necessary.

DD1 was sedated to have bloods done regularly. She had a massive needle phobia and would kick and punch the docs away.

They gave her the meds(midazolam) and she got drowsy and drunk for half an hour or so, then gradually woke up, over the next hour or so.

It was really not a big deal and she had no memory of the procedure.

Hmmm getting the meds into him could be interesting! They couldn't get nurofen into him last time we were in hospital!

yes they do have to stay still, they wouldnt let me into the x-ray room last time with dd, so DH and another nurse had to hold her still
cos she was kicking and screaming and the xray was horrible, you could see her colon absolutely packed full, they had no choice but to give her an enema on one of the occasions she was admitted which involved me and dh holding her while the nurse gave the enema, not nice

That sounds like the blood test when ds1 was 3. THe problem now he's 7 is that we just cant hold him anymore. I suppose 5 people (one on each arm/leg plus head) could do it.

Anyway-..... at 6.30am he finally passed the bloody thing. So relief (literally) all round!

With DD, once she got past the age of reasoning,(about 6)when they had explained all the pro's and con's to her and she was stil refusing treatment, they wouldn't use force on her. Hence the sedation.
There were times when it was a problem to spend hte best part of the day in hospital for sedation and I did ask them to just grab her and do it . Needless to say they didn't.

BTW 5 people on an angry 5 year old didn't work!!

i read this thread with fear and with sympathy for you...
my dd2 is just 14 months and is always getting constipated. cries and cries trying to get it out - i can see the poo in her bum but she just can't get it out. i use those glycerine suppositories which are fantastic, but it's getting to the point where i have to use them every 2-3 days, she doesn't poo without them. The doctor has given me lactulose but it doesn't help, her problem isn't in making the poo, it is getting it out. Her diet is good, she drinks lots (those innocent smoothies are just fantastic at keeping dd1 regular). she has a dairy allergy/sensitivity (gives her eczema). any suggestions what i should do?

JimJams what do you know about liquid parafin as a treatment? As I said my friend is giving this to her DS but every time she fills a prescription the chemist looks at her and says - 'this is not fit for human consumption'.

I used to have to buy liquid parrafin 8-10 bottles at a time for cell culture. I was always quizzed by the staff in Boots (in case I had an eating disorder!). It's pretty foul - I think the chances of getting it into ds1 would be in the order of zero.

HOw do they sedate? No-one's managed to get a look insode ds1's mouth for 4 years, impossible to get something into him if he decides he won't have it. Phlebotomy did grab and hold him down and tbh I often think it is the kindest way with a severely autistic child. It's done quickly, it's over it's finished. What I can't bear is drs approaching him with a bloody teddy (I tell them to put it away now). It just stresses him out. Distract him with a catalogue of washing machines, hold him down and get on with it! Far far kinder. But they won't do that.

DD was given oral medication to sedate her. (Liquid IIRC)Otherwise it would be IV, which again would require a co-operative customer.

Dd used to be sedated with chloral hydrate jimjams. Not sure if they use that anymore.

Glad he's been. It's a daily question in our house...'Have you been?

oh god there's no way he'll drink any sort of mediciine unless its pink. I suspect IV might be easier! Hopefully he remains clear!