Hi everyone, I started posting at the beginning of the thread, but have not been MNing recently. As a recap, I have ME/CFS and am mild to moderate. I'm currently in a bad (for me) relapse and have spent the last two weeks mainly lying on the sofa watching trashy TV.
I'm lucky in that DH and I have our own businesse, so I can be flexible, but it does have it's own issues sometimes. For example our VAT return was due on Friday, so I had to do a few hours work, despite feeling dreadful, as only I knew what needs doing.
Just a few thoughts on then thread. I recently saw Dr Myhill give a talk & she was highly inspirational. I'm not sure that I agree with entirely everything she says I.e. She is very pro eating a paleo diet, but although I've tried it, I seem to feel and function better with a slightly higher carb intake and some dairy. Her main point was about mitochondria and how CFS patients have much lower amounts than most people. She also talked a lot about how convential doctors treat symptoms rather than finding a cause.
She recommends taking supplements to improve mitochondrial function, along with diet and pacing to help with CFS. She was qute clear that its not an miracle cure, but said most of her patients improve considerably.
She also said that although she is too busy to take on new patients, you can go onto her website and order blood tests that we can use to help ourselves.
I intend to do this once I'm back to my 'normal'. I have started to take the basics supplements that she suggests, so will keep a log of how I feel.
The other interesting comment on the thread was links to ASD, as my DS1 has ASD, ask well as numerous others members of my extended family.
I was also disgusted and really cross about the telegrapgh article. My DH told me not to get worked up about it & said anyone who knows me, knows how real it is. But as I pointed out to him, how can we expect investment and research into the causes, and hopefully a cure, if it is still being questioned as something that a bit of exercise and positive thinking will sort!
Sorry, a much longer post than I meant to write!