Stereotyic movement disorder

[Jimjams2]

HI I'm posting this here because I've started a thread in special needs about this, and some people I know don't look at SN.

I'm getting fairly desperate about it, so if anyone has ever heard of the condition or knows anything about it I'll be eternally grateful if you can pass on any info.

not much help I know but our old neighbour a lad of about 25 with Tourettes (also sporadic heroin user) had this.
We spoke at length to his parents mostly to ensure his day to day safety (he lived alone - tough love from his parents, although they bought him the flat, they could not live with him using drugs)
He did the sterotypical TS things, swearing/shouting/jerky walking.
The SMB manifested itself after he started a course of drugs to calm down his TS symptoms which were getting seriously mad.
He could sit for ages just tapping, pinching, nodding etc
However when he finished those drugs (deeply incompatible with heroin apparently) the SMD became almost part of his TS.
Very different no doubt to your experience of it I guess though.

actually piffle thank that's really useful. One suggestion was that it is food related- and many of the foods ds1 can't have is because they have an opiate like effect. So there could be something in that.

The effect on ds1 is more like a spasm than a behaviour if that makes sense. I don;t know if you've ever had a spinal but in my case it always makes me shake- it seems a bit like that - uncontrollable spasms. I'm going to video next time we have a paed appointment I think. He only really does it at home so no-one sees it. He did do it at nursery one day and they sent him home thinking he was havinig a seizure!

bumping for evening crowd (whilst still pondering the heroin connection).