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Chronic fatigue syndrome/ME

129 replies

MusicMum18 · 11/09/2015 19:49

Hi
Just wondering if anyone knows anything about this? I've looked on the net and there seems to be opinions about whether it is a condition or not. My mother in law claims to have it.
She hasn't worked for about 40 years, often cancels attending family dos saying she's too ill. She never leaves the house and spends her time sitting in, staying in her dressing gown all day, smoking and drinking.
I have suggested she might feel better after going for a walk, but she just says it won't help. She doesn't do the grocery shop, and I feel sorry for my father in law who still can't retire, does all the shopping etc.
last time I saw her she seemed very forgetful and asked me the same questions over and over again. I didn't trust her to hold my lo.
I wasn't sure if she was drunk, or if it was to do with her illness.
I'm not sure if she's using this illness as an excuse to be lazy? I have always found her to be very conscious of keeping up appearances of being a close family but my poor dh has been upset by her lack of contact, and of the fact that she doesn't seem to take care of herself. She recently hurt her ankle and didn't bother seeing the doc. She couldn't be bothered.
I find it all very strange.
Surely if she has ME it can be managed through medical care?
I'm just curious as I've always found her very strange...

OP posts:
PurpleHairAndPearls · 17/09/2015 08:17

I agree overthemill A very similar thread about alopecia was deleted recently for not being "in the spirit of the site". I actually think the thread should stand as I'm sure I'm not alone in being heartened by the responses but as Katymacs (and many other) posts demonstrate, OP has made some very disabilist comments including the awful opening post, which might well have be deleted if they were about another condition.

I suppose all we can hope is that behind the scenes OP has received a bollocking from Olivia advice about the site being for support not goady fuckery.

Katymac · 17/09/2015 08:35

Can you imagine the outcry if I had used ASD/Autism or Cancer as my substitution and posted it as a thread

I think it would have been deleted within minutes

But it's OK because it's 'only' ME & it doesn't really exist

futureme · 17/09/2015 08:53

Its been helpful to me to read about others struggling. I get cross with myself I can't do things or get fired and feel I'm holding myself to standards I just can't meet. I hate not being productive or getting things done.

I'm wondering if I need to acknowledge I'm I'll more. Its such an intangible condition. It would be so much easier to say its x, take y, do z and it will be better.

I've put on so much weight and feel I should exercise but I spend most of my time feeling exhausted just from daily life.

Katymac · 17/09/2015 11:29

Would anyone like to join me here?

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