Spd issues (again) who to speak to?

[DeathMetalMum]

I have had spd/pgp since I was pregnant with dd2 who is now 2.5 it has flared up and down and I have seen a physio in the past and I have recently had quite a while with little issues.

A few months ago I started seeing a incontinence nurse/physio due to incontinence, and last appointment I was given some exercises to stengthen my core (very basic pilates) and help reduce my distasis-recti I can feel these exercises helping my core a lot. When the incontinence nurse/physio was running through the excicises we noted my left side and hip wasn't as comfortable doing the exercises asy right.

I am now noticing increasingly my left hip crunching v uncomfortable and in mild to moderate pain at times doing certain movements. I don't think the exercises have bought it on but possibly made it worse as it was happening before I started the regular pilates. My query is mainly who do I see about this do I get an appointment with the nurse I am already seeing or is this a separate issue to which I should go to the gp about?

The pelvic partnership have really good advice about pgp problems. They can recommend an appropriate physio locally to you or tell you what you should look out for.

www.pelvicpartnership.org.uk

They have a helpline number on their website and loads of useful info.

A good physio and muscular skeletal specialist. It is likely you are hypermobile (Google Beighton score and see if it fits). I have a private physio and I underwent prolotherapy to toughen my pelvic ligaments although this treatment isn't widely available. Deal with it sooner rather than later. I was left for 9 months in a wheelchair (3 years after having ds1) and it became chronic. I still have to deal with the muscle spasms from damaged muscle memory and I first went to the docs about it 4 years ago. Sending you hugs, it's a nasty thing to have x

I gave up with my GP/NHS as they either refused to listen or when they finally did, physiotherapy made it worse as with hindsight I can see they didn't have a clue about Hypermobility or even diagnose me properly (which I later found out I was too)

I saw a Chiropractor who turned out to be fantastic, they even had a leaflet explaining exactly what I had & fixed it for me

I agree about the NHS Rockin. My physio is private as the NHS ones didn't know what to do to fix it (I had three different ones). The muscular skeletal specialist who did prolotherapy was also private but set up to claim his costs from the NHS. When I mentioned hypermobility to my GP he gave me a leaflet printed 20 years ago with "information". I gave that to my specialist who laughed and said he would write to my GP as he shouldn't be giving them put.

Thank you for all the advice. Today has been terrible, I have an appointment with the physio tomorrow though so will see if that helps.

I really don't think going private is an option financially unfortunately.

Oh and I have googled Hypermobility and I score 0 or 1 on the Beighton score. Though every physio I have seen so far has commented on my flexibility.

Not being hypermobile is a good thing. It means you can be fixed . Flexible is totally different to hypermobile. Hypermobile in a nutshell means your joints partially or fully dislocate easily due to stretchy ligaments caused by faulty collogen. It is stretchy ligaments that cause spd but they normally spring back after birth.
Private physio is expensive but if you can stretch to it I would say it is worth every penny. The NHS physios I saw wouldn't do any manual manipulation to put me back in place but expected me to do the exercises with one hip about an inch higher than the other! It was impossible due to pain. One male physio told me I wasn't in that much pain. Mind you, a doctor told me there was nothing medically wrong with me and perhaps I was just stressed. Damn right I was stressed, I was in agony!
I have also been told that chiropractors are very good for instability issues although I have not seen one. Some may take NHS patients so it's worth looking into. I saw an osteopath on the NHS but again, he wasn't trained in manipulation and that was what I needed.
Do you have crutches? You can also speak to your councils occupational health team to get things to help around the house. I got a grabber, a shower seat and a wondrous thing to help me put my socks on without bending. They can also give you stools, handrails, loads of things to help your mobility in the house.