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Rheumatoid Arthritis?

32 replies

ihearttc · 13/07/2015 16:12

Can someone talk to me about RA?

I went to the doctor about 3 months ago with painful swollen fingers-they felt like I had toothache in them. GP did blood tests-I think Rheumatoid Factor, ESR and CRP levels and they were all normal. She said my inflammation marker (no idea what test that was) was a teeny little bit raised but nothing to concern her really. She referred me to see Consultant at hospital just to make sure. In the meantime we went on holiday (Dubai so rather hot) and just before we were due to come home my ankles swelled up. They were so swollen you couldn't even see my ankle at all. By the time I got off the plane in London I could hardly walk. Ended up at Out of Hours GP the next morning who said it was probably a combination of heat and lots of walking causing an arthritic flare up. I said that GP had wondered about RA and he said it was very unlikely. He gave me Naproxen and some steroids but I only took 2 of each and it settled down.
Since then it hasn't been too bad. Slightly stiff in the morning but nothing Id really worry about. I finally had my appointment with the Consultant on Friday. To put it mildly it was a very strange appointment. She agreed that I had no markers for RA on my bloods. I have Pernicious Anaemia and she wasn't remotely interested in that at all despite that being the main reason the GP referred me (apparently PA goes together with RA sometimes). She examined me all over and squeezed all the joints of my hand and asked if it hurt. So I said no it feels tender (as it would if you pressing really hard on any small joint) but not painful yet she marked it as I said it hurt.

I asked if I could be tested for Vitamin D defence as lots of my symptoms seem to suggest that as a possibility and she laughed at me and said that was impossible and refused to test me.

At the end she said she will treat for Inflammatory Arthritis (which Im assuming is RA) and I will get an appointment in the post to see a nurse to get Methotrexate and another medication Hydro something??

I had another blood test done and then left.

No explanation as to why I need the medication at all. It seems a huge huge leap for me to go in with a slightly stiff and painful ankle to taking those medication? Im really wondering if I could tell the nurse that I don't want to take them yet or is that completely crazy.

OP posts:
dontthinktwiceitsalright · 14/07/2015 10:54

Yes personally I love taking methotrexate Hmm . Wouldn't it be much easier if I changed my diet and cured myself Confused

There's possibly some evidence that an anti inflammatory diet can alleviate some symptoms but of course it does not cure the auto immune disease that is rheumatoid arthritis .

ppeatfruit · 14/07/2015 13:22

Well I did wonder when someone would get abusive, so RA it just falls out of the sky onto you does it ? Very interesting indeed.

I won't bother to continue. Suffice to say I can use my fingers at the age of 64 with no pain at all (not like my dsis. and gran.) and I like to help people.

blahblahblah2000 · 14/07/2015 13:30

Has the doctor also ruled out lupus? Did your ANA get tested? Your symptoms sound like mine (incidentally the treatment is similar to RA treatment). Did your symptoms flare up after lots of sun exposure? Lupus can flare from sun / holidays.

I would avoid echinacea as you don't have a definitive diagnosis and it is NOT safe if it is lupus related disease.

ajay85 · 20/07/2015 13:26

ihearttc - I had an extremely similar experience, I am on the verge of tears reading your worries. At 25 I was 'diagnosed' with RA except my bloods were negative. As you were, I was on my own at the diagnosis and devastated. The consultant signed me up for a course of methotrexate. I had recently married and was looking to start having children. The consultant told me if I were to fall pregnant while on the methotrexate course I would have a hideous miscarriage. I went to my GP for advice; he was massively understanding and agreed to give me steroid injections to relieve the swelling and stiffness until I fell pregnant when my symptoms COMPLETELY DISAPPEARED! Needless to say I had three children in a row! I finished breastfeeding my third child four months ago and I'm starting to see a recurrence of the symptoms - mainly swelling on back of hands and finger joints. Hence my search on mumsnet for advice. I feel a little bit less worried about the prospect of methotrexate now my 'breeding programme' is over but ppeatfruit I am interested to see your diet tips....

ihearttc · 20/07/2015 14:36

Wow BlahBlahBlah yes they did flare up after sun exposure. We were on holiday in Dubai and although I felt better than I have in a long time (more energy) while we were there (which is why I was wondering about Vitamin D) just before we came home my ankles swelling up spectacularly. I literally looked like my ankles belonged to the elephant man.

What would the test for lupus involve? As far as I know Ive only had the blood tests for RA which were all normal apart from one which was a tiny bit raised.

Something is telling me that this isn't RA. I might be burying my head in the sand but I honestly believe something else is going on.

Going to look up symptoms of Lupus now to see if anything fits.

OP posts:
43mumof2 · 20/07/2015 16:50

does anyone get mild fluy hot feeling with RA off and on through day ?
i wake with stuff achy hands thumb and feet , rash at times on tummy , neck , goes once cool but face does itch ...

ihearttc · 27/07/2015 18:27

Just wanted to update if anyone is interested?

Saw Rheumatology Nurse Practitioner today and told her my concerns regarding MTX. She checked all the blood test results-my CRP was 7 and my ESR was 8. Apparently the consultant has diagnosed me with Sero-Negative RA.

She said that she can't force me to take something but she would feel uncomfortable sending me away with nothing so Ive agreed to take the Hydroxychloroquine which they originally wanted me to take in conjunction with the MTX. As I understand it that works in a similar way but it'd take longer to feel the benefits? She said if that does the trick (as whatever Ive got going on is very mild at the moment) then thats fantastic or if it doesn't we can revisit MTX in the future. Feel much happier now. She also said if I do decide on MTX I can go straight to injection if I want to as that has fewer side affects.

No idea if Ive done the right thing or not!! oh and my Vitamin D blood test results are still not back!!

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