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MS on Fingolimod?

2 replies

Newtofingolimod · 19/06/2015 20:36

Any Mumsnetters with MS on Fingolimod? I have RRMS, been on Copaxone for 4 years with no side effects (other than it was working well enough). After a recent MRI showed new active lesions I am being changed to Fingolimod.

If you're on this what have your side effects been and especially how did your first dose in hospital go? I know it's administered on a cardiac ward with a 6 hour observation as it can cause bradycardia this worries me a little as my normal resting HR is around 55 and BP around 97/58. Anything else I should know?

OP posts:
Newtofingolimod · 19/06/2015 20:38

Sorry that should say other than it wasn't working well enough

OP posts:
Newtofingolimod · 21/06/2015 17:32

Bumping, anyone?

OP posts:
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