Worried - ovarian cyst and raised CA125

[xWurlyCurlyx]

Hi,

I'm hoping for some reassurance! I had an ultrasound looking for fibroids, and the lovely sonographer was very chatty and said I had 3 large cysts in my left ovary, they would probably go away on their own, they would do a standard blood test and rescan in 8 weeks.

I got called into the GP this morning as the blood test results are back and the CA125 levels are elevated (should be 0-35 and mine are 48). She's referring me to a gynae and was talking about removing my ovary.... I was slightly in shock so didn't ask any questions!

Does anyone have any experience of this? From what I've read people often have a scan because of raised CA125, but I had mine first and they didn't seem to find anything worrying.

Does anyone know what happens from here?

Thanks in advance.

Great news, Schilke! So pleased for you. Best wishes to anyone still waiting.

Fantastic news Schilke - what a relief!!

Sorry to join this discussion so late on after you have completed but i am at my wits end and dont know what to do or think or how to even try to relax ! i had a routine blood test taken due to being bloated and not losing weight after exercising and dieting and the test came back with a reding over 56 and due to having history of breast cancer my doc has booked an emergency scan on tues of this wk to say i am scared is an understatement do not know how to think or deal with my life at all - i live alone and feel totally alone in this and do not know what the hell to do ! obviously i have done the google thing and scared myself even more and know prescribed my self with full blown ovarian cancer and have all the symptoms of bloating - urinating more often and a dull ache in my left side along with bowel movements i have even looked at chemo and even looked into wigs and bandanas what the hello is going on - i was so distressed on Friday my doc prescribed diazepam to get me through this wk end i am at the end of my tether help

Oh no I've only just seen this - sorry you didn't get a reply sooner.
How did the scan go?

I have a raised tumour marker, which is raised concerns. Have a CT scan booked. Am worried sick it's the worse case scenario. Satty

Hi iv just had a ca125 blood test and my doctor rang saying it was high and I might have a benign cyst or a cancer cyst and is sending me for a ultrasound all’s iv done is cry and worry every day since can’t eat can’t sleep I’m terrified what are the chances I have ovarian cancer

What was the reason for having the blood test Sharon? And how old are you? Ovarian cancer is rare in women who’ve not been through the menopause. CA-125 levels can be raised for a few reasons, simply being on your period when the test was done can raise it. Endometriosis is another factor for raised levels. It’s good your gp is following up with a scan. Try not to read too much into the blood results

Iv been having abdomal pain say 2 a year feeling bloated I thought it was just gas so doctor put me on gas tablets and ibs tablets he checked my left side and was concerned send my wee sample of for protein and done a ca125 test which he said was high I’m 39yr I’m absolutely terrified my anxiety is through the roof

He done the test on the 12th jan my period is due now

Even a simple cyst can effect the result. Try not to worry. When is your scan?

Thursday I’m suppose to be going to Tenerife on Thursday night with the girls and I’m saying I’m not going because I’m a nervous wreck over what I will find out I’m in a right state over this

Hi ladies. You know this is zombie thread don't you? Not that it matters particularly, but there are more up-to-date threads.

Wait until the ultrasound before making up your mind as to whether or not to go on holiday. I know it's really, really tough and of course you're worried but it may not be as bad as you fear.

I’m worried because my doctor said when he rang me ur bloods were high on the test we done for ur ovaries so there could be a tumour there which is cancerous I nearly fell over and had a massive panick attack don’t understand why he done it over the phone so unproffectional no wonder I’m sick with worry not eating not sleeping

Some doctors are very blunt. And I agree wait until you’ve had the scan before cancelling the holiday

Do u think I’m worrying over nothing I’m terrified x

Any inflammation in the pelvic area can raise your levels. It doesn't have to be a cyst. Most ovarian cysts turn out to be benign and even a benign cyst can raise your Ca125 levels. It's a bit like finding a lump in your breast. Most of those are OK, but the thought that it might be cancer is enough to knock you off balance.

I'm not surprised you're in a state. But the good thing is you've only till Thurs to wait for your ultra-sound so, deep breaths, and positive thoughts. Lots of women have been in your position and it's all turned out fine. Fingers crossed you'll get good news on Thurs.

Thank you so much for your advice and lovely support this had really helped me to calm down fingers crossed I’m ok x

Good luck with the test today Sharonalex. Thinking of you.

Hope the scan went well @Sharonalex

Thanks everyone for thinking about me never slept a wink last night. Well went for my ultrasound this morning they found a large cyst on my left ovary the size of a small orange and a small one on my right ovary the consultant took me into a room she was lovely and asked about what’s been happening over the last 2 year told her iv had bloating and scramps periods are fine no bleeding inbetween no weight lose and no more pain since 3 weeks ago she done an internal and examined me which she was happy about the only thing she said was that on my right ovary there was a line through it which she is abit concerned about but said it could be that the cyst is ready to calapse so a few of the other consultants are going to discuss the scan pictures tomorrow and get back to me also they are doing another ca125 test to see if it’s still high and another blood test but not sure what that is think it’s a fibroid test but not sure she is ringing me tomorrow with my blood test fingers crossed it’s gone down I have to have a op to remove cysts and for people worrying about high ca125 test they told me a cyst can rise the levels so don’t worry I was the worst this week worrying no sleep it made me ill I’m just praying my right ovary is ok and all blood tests come back fine so I can have the op and get back to work and normality never been so worried in my entire life it’s so frightening but it’s not always what we seem so from now on I’m just thinking positive things and what will be will be x

Sounds positive then. Are you going on your girls holiday?

No as the consultant said she will be ringing me tomorrow with my results and I’d rather be home in case it’s not good news I’d be stressing and worrying to much on holiday and wouldn’t be fare on the other girls they understand and there will be more girlie holidays coming up like my 40th in July I’d rather be home with my family who are the most amazing supportive family I could ever wish for as I lost my mum dad and brother and we all are very close don’t know what I’d do without them xxx

I think that sounds quite promising. Don't worry if your Ca125 is the same or up a bit. It's not an exact science. It might stay high till they've removed the cysts.

Glad you've got a supportive family. That makes all the difference.

Thank you il be updating tomorrow with more info thanks for you lovely support everyone x

Did you get any feedback @Sharonalex?