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PCOS & Underactive Thyroid

7 replies

Gillianschmillion · 04/04/2015 19:15

My Dd (17) has been recently diagnosed with this. She's to start progesterone on Day 5 of her period. Well that would be fine if her period wasn't late and may not come at all. So the Nurse said today they will scan her in a week then give her something to start her period. It's so shit for her just now. She has an Underactive thyroid too and has just started off meds for that too. Tonight she's white as a sheet feels sick and it's nearly her exams so she's pissed off she can't revise. How long before this all gets better?

OP posts:
Gillianschmillion · 05/04/2015 10:48

Anyone?

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PeaceOfWildThings · 05/04/2015 10:58

It can take months to adjust to levothyroxine dose. In the first year or so you do need to keep going back every 3 months or so to get blood tests and get the dosage set right. Too much levothyroxine is very dangerous, so the dose usually starts off on the low side to be safe.

Anemia? Is her tongue very pate too, and if she gently pull down her bottom eyelid, look just inside the rim where the inside would touch the eyes: is that a nice dark red, or is it pale there? If so worth getting checked out at GP. Hypothyroidism can go hand in hand with anemia...it is possible for it to fluctuate with periods too, so worth getting tested on/just after period imo.

Gillianschmillion · 05/04/2015 11:25

No Anaemia - Underactive thyroid, Severely deficient Vitamin D and PCOS.

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Clarella · 05/04/2015 13:21

Poor thing :(

I'm afraid it does take a while to correct levels but for the body to also recover, plus any tweaking that needs to be done. Abd raising the other levels also takes time. If on the correct thyroxine you can feel better wishing 6 weeks, but can be 6 months if you've been suffering a while.

Certainly I see delays to impacts of changes to thyroxine levels; apart from anything the half life is 10 days and it takes a while to build up or reduce in your system.

She is going to find taking exams extremely difficult. Oc health at my work are of the opinion it's classed under the disability at work act as without my treatment id be dead though I have no thyroid function at all. I've recently had some issues with dosage and low ferritin which have had huge impacts on my ability to function.

I'd strongly recommend getting in tough with the British thyroid foundation for advice/ support, especially for teens etc.

Clarella · 05/04/2015 13:24

Has ferritin been checked rather than just hb?

This can make a difference to energy and how well thyroxine is used by body. But probably the Vit d is the biggest other factor.

Gillianschmillion · 05/04/2015 15:33

Thank you for your responses. It started with glandular fever that wouldn't seem to go away. This then became depression and issues with her periods. It feels like it's just never ending...sorry I'm having a bad day...not as bad as her. Does anyone know if I can give her her meds last thing at night rather than first thing in the morning?

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Pleasemrstweedie · 05/04/2015 16:48

You can certainly give thyroxine last thing at night provided her stomach is empty. That saves all the hanging around in the morning.

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