Thanks everyone and sorry not to feedback before now - I'm feeling v ill with another flu like chesty cough virus alongside the abdominal pain but have had to work.
Anyway, the good news is that the consultant told me the biopsy results were fine. Quite how he suddenly got the results when they'd said they'd not be back for 6 weeks, I don't know and I'm v v slightly suspicious he was only saying this because he's pretty sure the WILL be OK and wanted to reassure me. Anyway, I'll trust him on this and am delighted, as you can imagine, that I don't appear to have IBD but rather now a diagnosis of "IBS, following a viral infection".
He didn't appear to have a lab report about the biopsies and I might just ask his PA to send me a copy in due course, as the report might say something like 'mild inflammation' and he didn't want to tell me this. But I guess I still just have to believe him, despite his patronising and misogynistic manner.
Given I've had 13 weeks of worrying I had cancer or IBD, this is a massive result, although the symptoms continue - but I can start to think about them differently. He suggested an antispasmodic called Mebeverine - but I've googled it and there seem to be lots of people with nasty side effects like dizziness and confusion and I can't afford to be in that state really, as I need to work and am in sole charge of the DCs.
If things are unbearable, I might consider trying it but I'd rather now try mind over matter to get through the pain. It'll be ages anyway before he write to my GP.
It'd be easier if, when it got bad, I could just stop and retreat to bed with a hot water bottle but I can't really do that and so I'll have to find a way of using relaxation techniques to cope 'on the go'.
I told him that just hearing him say "you're getting better and it's only IBS" would probably have the placebo effect anyway of making me manage the pain better. He was rather difficult throughout the appointment, rushing at breakneck speed and not wanting to listen to what I said or any questions - so no change there.
I asked him about Helicobactor Pylori - as I seem to have all the classic symptoms - gnawing, burning pain in upper gut, reflux cough etc etc - but he said I had none of the symptoms at all and they'd not tested me for this and wouldn't. I'm now wondering if there's anywhere that would offer me the breath test for H Pylori, without a GP referral - just so I can quietly put that possible diagnosis to rest?
Anyone know if there's a private London based clinic that might do that, as I could travel there? I don't want the one thing that hasn't been tested but that can cause lifelong ulceration of the guts, to go undiagnosed - although I'd fully expect this not to be found - but it'd seem silly not to rule this out completely.
The most annoying part of the consultation was his failure to believe what I was saying - that when I've felt most happy and calm and relaxed, when I feel better - and have assumed I'm completely better now and feel really great - THAT'S when the symptoms have then come back - ie when I'm NOT feeling anxious. He kept insisting that the pain was due to an anxiety reaction - which is totally the opposite of my experience.
Anyway, I tried to use humour to shrug this off. He told me to eat as normal now but then contradicted this by saying that the foods I'd recently added were not the foods he'd recommend?!? This was things like carrots and kale and porridge oats. I said what foods do you then suggest and he then just said - forget that - just eat normally.
As my 'normal' pre-illness diet consisted of lots and lots of raw veg and fruit and cheese - which are contraindicated for IBS - I'm not sure I'm going to return to this at all. I'm happy to not be a vegetarian any longer - so at least I get protein but am still wondering how to increase Vit C and calcium intake without irritating my guts?
He told me that there was absolutely no evidence at all that probiotics work and that I'd be wasting my time trying those - which was news to me - but again, I guess I should trust my consultant.
He was running about 20 mins late and then rushed the appointment over about 12 minutes - at £180 - so a very expensive time - but worth it to be told my biopsies are fine and I've only got a functional bowel disorder. He kept saying that I was going to get completely better - most likely - and I asked him if he could be sure, as at the v first ever appointment with him, he'd recounted anecdotes about people having IBS for life - but he said I seemed already to be getting better - ie having a few days feeling well, before another relapse.
Is that really how it can go with post viral IBS - and you can completely recover? That's what I'm aiming for. He implied I had extra sensitive guts to be experiencing pain that made me bend double but i again disagree with him as I've always managed pain v v well (labour with no painkillers. scopes with no sedatives) and wonder how he'd cope with the same amount of pain. He insisted that the pain was from the colon and not the upper gastric area or stomach (therefore not H Pylori) as he said the colon curves all the way upwards round the chest area....but then I thought hat area ALSO housed the upper digestive system too???
He's definitely one of those consultants who get a fixed idea in their head and then won't move on it at all, even if it's contrary to a patient's experience. I've known other people who've see him - long before me- and they spontaneously said the same - hence my slight wondering if I should get a quick quiet test for H Pylori somewhere.
Anyway, I think that now I can 'think' about the pain as not life threatening or causing irreparable harm - presuming he's right - then I can work around it and cope and if it gets really really bad, I'll try the antispasmodic.
Today, I tried paracetomol for my chest virus and noticed nothing worse with my gut symptoms - although it didn't actually help the viral symptoms much either - but at least I know I can use them now if I want. I also tried camomile tea today as I was desperate for a warmish drink for my cough and sore throat and so far not acute stomach symptoms - just a mild burning sensation about 2 hrs later.
I really think the symptoms and pain just come and go and there's things that might not help at all - like certain foods - but even on a bland diet - it still happens. So I need to enjoy the good times and get better skilled at managing the bad times. I still have loads of questions for my consultant. Ssunniebear, does the IBS network allow you to tap into asking qualified consultants questions online? That would be v useful.