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Are they hiding something from me

22 replies

sammyjayneex · 22/03/2015 16:33

So for 3 years since giving birth I just havnt felt right. Doctors are telling me I'm normal coz my blood tests are Normal but I just don't feel right. When I went to see one doctor he said 'all your tests are normal. I don't want to put you on long term medication at your age' now why would he say that if there is nothing wrong with me? Why mention medication if there is nothing wrong with the patient? I suspect they are hiding something

I asked for copies of all my blood tests results but they didn't give all of them to me. I have suspected my thyroid is to blame as a lot of symptoms match it and these tests were missing from the results they gave me
These are my TSH results Over the past three years that they gave me 'verbally' but not on paper copies
1.54
2.7
2.0
They are saying they are normal but something is just niggling at me that something's not right
Should the doctors be helping me? All they have done so far is do tests to rule out the bad stuff but havnt actually given me an idea of what is actually wrong with me..they just say 'it's just one of those things' it's so frustrating I can't cope with life or my kids anymore. I am very agitated and on edge. Short temper. I get hot and sweaty very easily. Stare into space a lot. My eyes are sensitive. Constant reflux and muscle pains. Muscle spasms. I've had vitamin D deficiency in the past which I've been treated for. Increases palpitations. Sudden tiredness and get tired easily. Unhappy and depressed. No enthusiasm to do things.

Will I have to live the rest of my life like this without ever knowing what's wrong. Can doctors hide things from you if you have something wrong that they feel doesn't need to be treated and that's why they don't tell me?

I'm going out of my mind here and I feel like I am going to lose it

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sammyjayneex · 22/03/2015 16:38

Also forgot to add, before i went on the pill my periods where coming ever 42 days even though they used to come every 34 so my cycles have suddenly changed. I went on the pill for about 12 months but decided to come off them so they I can go back to having irregular periods so I can prove to the docs something isn't right and i couldn't do that whilst being on the pill

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LadySybilLikesSloeGin · 22/03/2015 16:38

IME blood tests just show an average reading. If your thyroid was high before, and now average, it won't show as abnormal on the results but you'll feel unwell, if this makes sense. Vitamin D deficiency is a constant thing so it may help you to carry on with these. Have they checked your hormone levels??

sammyjayneex · 22/03/2015 17:23

Thank you for your reply
What kind of hormones do you mean? I think I've had the pre menopausal tests done and and stuff related to that ( I'm 27) and they said I'm not in danger of early menopause or anything like that

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LadySybilLikesSloeGin · 22/03/2015 17:29

Estrogen, progesterone. They can be regulated by food, so what are you eating?

sammyjayneex · 22/03/2015 19:41

I think they have yes. I don't know my levels or anything. I eat Meats like chicken and minced beef, beef steak (in moderation) salads, potatoes. Eat lots of home made Tomatoe based sauces with meals (bolognaise, lasange) home made curry. That sort of thing. I am not a big fruit eater which needs improving.

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LadySybilLikesSloeGin · 22/03/2015 20:51

Soya, fish and veg are good, sugar, wheat and alcohol not so good. I don't think they are hiding anything from you by the way, maybe they just haven't found the problem yet. There's hundreds of medical conditions which fit your symptoms so it's a case of them eliminating them, ones like this (not saying this is what you have) www.webmd.com/fibromyalgia/

Tubbytimmy · 22/03/2015 20:54

Have you had your thyroid antibodies checked as well as your thyroid function?

hellomynameis · 23/03/2015 09:56

Why would yor GP hide abnormal results or diagnosis from you ? What would be the benefit to them ? Undoubtably you would consult more with your symptoms in absence of a diagnosis.

Haggisfish · 23/03/2015 10:02

I second asking for thyroid antibodies test-these indicate hashimotos where the thyroid oscillates between over and under active as it is being destroyed by your own immune system.

sammyjayneex · 23/03/2015 12:09

I don't think l have had the antibody test. I think once they see the TSH as normal they don't bother with the other tests.
I just think that the doctors suspect I have something 'mild' wrong with me but doesn't want to tell me cause with thyroid issues they don't normally treat you anyway until your at a certain level. Why would the doctor say ' I don't want to put you on long term medication' if he didn't know what's wrong with me?
I also have bradycardia, and no one has looked into what could be causing that. I have been diagnosed with SVT of the heart but I have had this since I was 8 and I have never had bradycardia with this as it's not a symptom. I've only had the bradycardia in the last 3 years. My cardiologist has said nothing about it but surely something must be causing this but they are not investigating it same with the acid reflux they just throw omeprazole at me without investigating why I have the acid reflux constant as it causes me to not breathe fully. It's like they already know something but won't tell me and that's why they are confident in me taking these long term acid reflux medication or maybe i am just Paranoid as I have no diagnoses. I've dragged myself through the past 3 years.

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sammyjayneex · 23/03/2015 12:10

I do take a while to get over a cold and after the cold I feel terrible.

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Tubbytimmy · 23/03/2015 12:27

I'd go back to the go and ask for a thyroid antibody test. I had too as my tsh kept coming back normal. I know now that I have Hashimoto disease and as said above my thyroid swings between hypo and hyper.

Haggisfish · 23/03/2015 12:42

Me too, but not swinging enough for medication (yet)!

Tubbytimmy · 23/03/2015 12:58

Haggis I had one gp put me on 50mg of thyroxine (made no difference) ran out went back ended up seeing a different gp who sent me off with blood forms and no Meds. The way thyroids are treated is a joke. Live unwell with no treatment. Confused

Jaded2004 · 23/03/2015 13:04

If it's the same gp every time I would ask to see another gp. If it isn't then I doubt they're hiding anything but it could be the case that you have quite an old gp? One that doesn't believe in conditions such as ME/CFS or fibromyalgia and is therefore reluctant to diagnose. This is just guess work on my part so you shouldn't take it as is but definitely get a second opinion if you're really not happy.

NCIS · 23/03/2015 13:20

When you say you have bradycardia is it constant and what is your rate? Also do you have regular bouts of SVT?

sammyjayneex · 23/03/2015 14:16

NSIS I have regular bouts of SVT but it never used to be like this. Only in the last 3 years have they been getting worse. In the past they were very rarely occurred, maybe twice a year, now it's a few times a month. I have always been a regular pulse checker as I've always been a bit paranoid about it and in the past it was always 60 BPM at rest but now it's 44 BPM at rest.
The cardiologist that I see has also said that I have bradycardia after j had an EGG and my pulse rate has only lowered past few years so to me something is going on!

I have seen a few GPS. The first one I saw when I first got ill was a lady and she said it could be thyroid related and referred me to a general medical consultant at the hospital who did general blood tests, said they are normal and discharged with ' it's just one of those things in life. So not very helpful. When I went back to the other docs in my surgery as I am still ill and wasn't happy they all just say to me there is nothing else they can do for me, so I'm expected to live like this never knowing what the problem is.

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sammyjayneex · 23/03/2015 14:16

The bradycardia is distant yes

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sammyjayneex · 23/03/2015 14:16

Constant not distant

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NCIS · 23/03/2015 14:38

How long do your bouts of SVT last and what rates does your pulse get to then? 60bpm is fine but 44bpm is on the low side but if you don't have any symptoms then it could just be normal for you. Pulse rates do change espeically with levels of fitness etc and sometimes there is no discernable cause.

sammyjayneex · 23/03/2015 19:09

Another thing I have noticed is that my toe nails have turned a slightly yellow colour. I rarely wear nail varnish

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sammyjayneex · 23/03/2015 19:14

My SVT episodes can last for a few seconds to an hour. The most it's lasted is a whole day. I use manuevers like lying flat breathing in ect to get rid of them
I don't know how high my heart rate goes coz I am too much in a panic once my heart races and I'm eager to sort it out!

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