Joint Hypermobility Disorder

[iklboo]

I have had (diagnosed) JHD for about 10 years. Recently pain has been worse, in more joints. Actually worse since I LOST a lot of weight. Now I'm having dizzy spells when I stand up & occasional dizzy spells generally.

Does / can JHD deteriorate or new symptoms appear. Or am I back off the the doc?

JHS is the same as/similar to depending on who you speak to EDS (Ehlers Danlos Syndrome - Hypermobility type) and has strong links with www.potsuk.org PoTS]] which could explain the dizziness. I'm not clued up enough on EDS/JHS (as DD has this as an explanation for her PoTS), but yes, it can get worse, can also get better though. Have a read through the PoTS stuff, and see what your GP says they won't have heard of it, but if you have a specialist managing your hypermobility, they will have.

Self help stuff includes drinking lots and lots more water, adding more salt to food (not always possible if you have other health issues) and regular aerobic exercise, particularly to strengthen calf muscles. Low GI eating as well helps, especially if you feel more dizzy up to an hour after eating a carby meal.

Thanks - just been to docs after nearly passing out at work. It's labyrinthitis!

Ooh, that's nasty, a friend was ill for a good few months with that (not helped by flying to the far east for a holiday part way through admittedly)

I do get a bit evangelical about PoTS where it seems relevant, as its a massively under diagnosed condition which for a lot of people is pretty easily treated.

Look after yourself (great excuse to sit on the sofa with trashy tv and lots of chocolate )

Thanks Leaping. Signed off for a week & DH has brought me some Lindor