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How accurate are thyroid tests? At wits end.

43 replies

Turvytopsy · 01/12/2014 00:07

Sorry for self indulgent post but my health is really getting me down.
I have been diagnosed with depression for over a decade but meds really don't seem to help me. I have started to really look into helping myself get better as gp seems baffled by my symptoms but they scream thyroid to me. The thing is my doctor says that because I'm a normal weight (top end of healthy bmi) it can't be my thyroid. I had blood tests and thyroid function came back normal.
The thing is I have recently been doing the my fitness pal app and I only consume 800 to 900 calories a day! Surely I should have a low bmi? I do no exercise at all as with the depression and tiredness it's all I can do to drag myself out of bed for a few hours. It is affecting my dc's standard of life and I just want to get well!
My other symptoms are:-

Tiredness
Always feel cold
Constipation and bloating
Confusing words and mind fuzzy
Aching muscles and no strength
Dry skin
Numbness in fingers
Heavy periods
Feeling of pressure on my windpipe
Puffy face around nose

I also have a frozen shoulder at the moment that is being treated with steroid injections. Google says it can be associated with thyroid.

My son is being tested for gluten intolerance at the moment which can also be genetic and related to the thyroid (according to Google againBlush)

Am I way off the mark here or is there a chance the blood tests didn't give an accurate result?

Please tell me your experiences or if it sounds like something else.

OP posts:
Turvytopsy · 03/12/2014 09:41

I'm lucky that it's a rural practice and Wednesday is a day the nurse does bloods. You can usually get an appointment in 24/48 hours.

123 have you made your appointment yet? Let us know how you get on.

OP posts:
PleaseLetThemBelieveMe · 03/12/2014 09:48

This thread has been an eye opener, I have the majority of the same symptoms and am off to the doctor shortly, I had put it down to my depression coming back/worsening.

Turvytopsy · 03/12/2014 11:47

Please I'm glad the thread has helped you. Please come back and let us know how you get on with your GP.

OP posts:
PleaseLetThemBelieveMe · 03/12/2014 11:56

Am being sent for a range of tests including thyroid so all positive from the GP

Turvytopsy · 03/12/2014 14:01

That's great Please. Good luck and don't forget to report back Smile. I wish I had known I could ask for a copy of my results when I went for my first blood test.

OP posts:
Curiouslygrumpycola · 03/12/2014 14:09

Your symptoms do sound thyroid related. They also reminded me of www.nhs.uk/Conditions/Fibromyalgia/Pages/Introduction.aspx

Do you suffer aches and pains?

DayLillie · 03/12/2014 14:13

Have you had a vit D test? You need vit D for the cells to use T3, and many people have low levels, so worth a go.

Turvytopsy · 03/12/2014 15:33

Thanks Day I'm having vitamin D tested this time.

I do get niggling aches and pains Cola but not high levels of pain. Thanks for the link I will have a look.

Had blood taken this morning. Back at doctors on Monday for results.

OP posts:
123rd · 03/12/2014 17:27

Got an appt for 12 dec!

Turvytopsy · 03/12/2014 18:55

Gosh 123 you need to know well in advance, before you get ill where you live, don't you?

Don't forget to let us know how you get on.

OP posts:
Quangle · 03/12/2014 19:15

I think your GP is working off out of date ranges. I am hypo and up my meds if tsh goes above 2 and it's ideally lower than that.

My frozen shoulder was probably related to my thyroid condition as is my low iron which also makes you have a lot of the symptoms you name. I would insist on a referral as I am not sure about your GPs knowledge in this area - normal weight therefore can't have thyroid condition is Confused

helzapoppin2 · 03/12/2014 19:17

Turvey, Im hypothyroid and on medication, but I find a good multivitamin really helps as well. It might help you since you've been on a restricted diet.

helzapoppin2 · 03/12/2014 19:18

Oops, sorry, Turvy!

Turvytopsy · 03/12/2014 20:01

Thanks Quangle it was actually the other gp at the surgery that said that about weight. This one seems more up to date. But really this is why I have started doing my own research and trying to find answers for myself. I have lost over a decade to feeling like this and I need to get well. I'm not giving away any more time than I have to.

Thanks poppin is there a particular one you would recommend?

It has been stupidly difficult for me to question any of this. I was brought up to respect and never question a doctor. So I really do appreciate all the advice and support I have had on this thread. Grin

OP posts:
Turvytopsy · 03/12/2014 20:06

quangle can I ask how long your shoulder took to recover? And is there a difference you can actually notice when your TSH is above 2?.

OP posts:
123rd · 03/12/2014 21:26

So, I knew there were different test that could be done but are there particular ones that I need to ask for?
As we said previously our symptoms are very similar. So , Turvy, did your gp say they would do the whole list if test? Or did you ask for more specific ones?
Has anyone else seen any effect on their periods after sorting your levels out? After doing research I'm thinking my awful time each month may have something to do with thyroid levels being shot.
Has any PP had experience of these sort of issues/symptoms ad been told their levels were high? I was told me was slightly high, but I feel my symptoms point to a lower level issue.

helzapoppin2 · 03/12/2014 21:59

Turvy, I take Centrum. It contains a lot of minerals as well as vitamins.

Quangle · 04/12/2014 08:39

Shoulder took about six months to heal. It was awful and I couldn't raise my arm above waist height. I was about to have surgery when suddenly it started to resolve and was better in two weeks. True frozen shoulder is an auto immune condition where the body just attacks itself for no reason , as are a lot of thyroid conditions. And with FS sometimes the body just decides to correct itself which is what happened to me. I still have some restriction but it's basically fine now. This was eight years ago! I don't think my TSH was correlated with it - I think it's more that if you have a thyroid condition you are more likely than the average person to get a frozen shoulder but not that it's caused by your thyroid levels iyswim.

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