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Bizarre question about recording symptoms?

7 replies

KatyMac · 01/11/2014 09:27

I'm seeing a neurologist about nerve pain - but I don't know when

So I need to keep a diary of symptoms for them

Do I start it now? or wait until I have an appointment?

How do I record - I have so many different types of pain, does time of day matter?

& silly tho' it sounds by recording pain will that make me more aware of it and bring it to the front of my mind so I record silly things that probably wouldn't have registered as pain if I wasn't recording it?

OP posts:
HeyMacWey · 01/11/2014 09:43

If start recording things now so when you go to the appt you'll have a starting point and won't forget to mention things of you've got a written diary in front of you.
Google the NHS universal pain scale and it'll give you an idea about mild /moderate /severe.
There's also an app which looks good for pain management - I haven't used it but am considering for cfs.

apps.nhs.uk/app/fibromapp/

KatyMac · 01/11/2014 10:12

It's not available for Blackberry - that's a shame

I know of that scale but not sure I agree with worst pain imaginable being bed rest - I don't know

Bizarre question about recording symptoms?
OP posts:
HeyMacWey · 01/11/2014 11:07

I know it's rather simplistic.
Perhaps it would be useful to distinguish between sensations and pain?
Ie pins and needles /pulsing feeling.
Sharp stabbing pain.
Persistent low level pain.

KatyMac · 01/11/2014 11:11

That's what I was thinking

Do you think time of day matters or just P&N 7 times Tues, 6 times Wed, etc

Oh god I suppose where might matter too

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gingeroots · 01/11/2014 11:13

What a terrible pain tool that is .HeyMacWey is much better !

Make a template with times of day/ type of pain /location of pain etc so that you just have to tick ?

How miserable for you .

PurpleWithRed · 01/11/2014 11:18

One way of assessing pain is to use OPQRST

  • onset - when did it start
  • provokes/palliates: what if anything brings the pain on, or makes it worse or better (e.g. movement, breathing, or taking pain medication)
  • quality: what kind of pain is it? sharp, dull, stabbing, constant, coming and going
  • radiates: does the pain go anywhere, move around at all?
  • severity: on a scale of 1-10 where 10 is the worst pain imaginable
  • time: anything to do with time e.g. how long the pain lasts

If you could keep a list over a week that includes all this plus of course which bit of you has the pain then that might be very helpful. But it might also take over your life...

KatyMac · 01/11/2014 11:20

Taking over my life & being more aware of it are my 2 worries

Most of the time I rub it, or ignore it, or try & think of something else & not dwell on it

Which probably isn't much use for a doctor

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