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Original poster

Really FREAKED and need to chat

32 replies

amynnixmum · 02/10/2006 13:42

Hi
I've not been on mn for months as I have been madly busy with my college course but today I really need to talk to someone and I didn't feel I could burden any of my family and friends with this.

Last monday I developed disturbed vision in my left eye. Over the week it has become progressively worse until i now cannot see out of it at all. I have been to the opticians and also to the eye hospital and the consultant has said he thinks it is most likely due to inflammation of the optic nerve. He said it would probably get worse before it got better (which it has) and that it generally last 10 -14 days.

I was ok with all this although it is scary losing the sight in one of your eyes and its also making it really hard to do my college work. However today when i checked my email I figured i would have a quick check online to see if there was any info on my condition and if there were any self help techniques I could use. I then found out that approx 1/2 the people that experience this will go on to develop MS and although I know what the internet is like and there is no guarentee that I'm going to experience any more problems I am feeling really scared right now. I just needed to say all that to someone and I can't tell my family about it as they have had enough to cope with recently with my mum's breast cancer. If you read down this far then thanks for listening

OP posts:
yellowrose · 07/10/2006 21:03

amy - fingers crossed

Original poster
amynnixmum · 12/10/2006 10:54

Hi Dottydot

Just wanted to wish you luck for tomorrow. I really hope everything goes ok

Let us know how you get on.

OP posts:
Original poster
amynnixmum · 13/10/2006 16:54

Hi Dottydot

How did it go today? I hope you are alright{{{hugs}}}

OP posts:
ParanoidAndroid · 13/10/2006 17:04

Hi amynixmum - I'm in an identical position. I developed ON about 5 weeks ago, and in fact it was the consultant who mentioned the risk of MS. He said that he had to tell me in case I went home and looked on the internet! I've been to my GP subsequently, and am waiting to hear whether I get an MRI scan or not. I've got a follow-up with the consultant on the 27th Oct or thereabouts.

I believe, personally, that without other symptoms it is unlikely to be MS. What worries me is that I have also had tingling and numbness in my fingers, one foot and one hip. Having said that, there could be completely innocent explanations for those too.

I'm generally an optimist, and have actually decided that as I feel really well in all other aspects of my health, the chances of it being MS are remote. If I have it, well hey ho, there are plenty of people who have it and live a normal life. So I'm not going to fret about it now.

Good luck with your follow-up appointment.

Original poster
amynnixmum · 13/10/2006 17:16

Hi paranoidandroid

I'm generally an optimist too so its been quite a shock to find myself so frightened by all this. I have now investigated the link really thoroughly. I am lucky(?)that as as student with the OU I get access to 100's of online journals and articles so I could make sure I was looking at reliable sources.

TBH I still wish I hadn't found out about any of it as it is worrying me but like you I know that there's nothing I can do about it and I'm more likely not to get MS than to get it so I'm trying to stay positive. Also even if I do have it its not the end of the world and hey at least I'll get to claim on my critical illness cover! I said to dh that if it turns out that i do have MS and we make the claim that i want to spend the money doing all the things we have planned to do over the next few years (when the children are older) just in case I am not fit enough to do them later. And if it turns out they I remain well enough then I can always do them again!

I am going to speak to my consultant next friday and actually ask for an MRI and just generally chat to him about what I have found out etc. I have had numbness and tingling in my fingers too - especially in my left hand. I had just put it down to stress but like you it has occurred to me that it could all be related. Good luck with everything and please let us know how you get on.

OP posts:
Dottydot · 14/10/2006 09:21

Hi Amynnixmum - thanks for the good wishes - only just seen this!

It was fine - longer than the last one and they needed to give me some dye so they could see the blood vessels around my eye (don't know if that's a good or bad thing!). They said it would be a couple of weeks now until the Consultant got the report - so more waiting...

Wishing you luck now for next Friday - make sure you write all your questions down to ask him/her. I always forget something because I'm nervous and rubbish as a patient - I always think they're far too busy to be spending time with me so I tend to rush in and out and then remember what I was going to ask.

Let us know how you get on and I'll keep you posted as well!

cryptmonkey · 27/10/2006 21:30

Dot, any news yet?

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