Labyrinthitis! Anyone else been through this hell?

[aurorasky]

Day 4 and still totally incapacitated. Violent room spinning when I move my head, can't get out of bed and I'm so worried about how long this will last. The GP did a home visit on Wednesday and I have pills for the nausea but they are not helping with the vertigo.

Anyone have experience of this weird condition?

You poor thing, my dad had this a few years ago & I thought he'd had a stroke & called an ambulance.

Took about a week I'd say before he could venture out the house, he couldn't drive for a few months though.

Hope you feel better soon. X

To reassure you a bit more aurora DH recovered well, he just has to avoid spinny fairground rides now otherwise all good.

At the time of his attack he was unable to get out of bed and was clinging onto the headboard for dear life...really scary.

Hope you feel better soon

BPPV imip benign paroxysmal positional vertigo, the one where floaty calcium crystals cause chaos in the middle ear? Hope your pregnancy went OK despite this. Not easy to be bouncing off walls etc with a precious baby bump! It sounds almost identical to labyrinthitis, just a different cause.

Cheers standing , don't like spinny fairground rides anyway ;)

I've had this and it's pretty grim. Mine came on so suddenly that I though I was having a stroke or brain hemmorhage. It lasted for well over a week with the sicky, vertigo feeling and about another 3 to 4 months before I stopped feeling that I was walking on a bouncy floor. You have my utmost sympathy OP as its a horrible debilitating condition. Hope you feel better soon.

Imip - the symptoms are the same, but labyrinthitis is a viral infection affecting the nerve transmitting balance information from the inner ear to the brain.

I had it for 2 weeks. Mil had just had it. We were both given Stemitil tablets that helped.
Hope you feel better soon.

I have had it a few times. Not for years though thankfully. Horrid horrid illness.

Rest as much as possible.

When I got really bad injection of something in my bum helped. ...no idea what it was.

Thanks for that clarification, bizarre that it is the same thing but different cause. it has never really gone completely, but just great not to be bedridden, unable to move and wanting to constantly vomit!

My pregnancy went fine and I went on to have another

op, I do hope it wears off quickly and you can get out and about.

I've had it twice with the nystagmus too. Just lay in bed vomiting, scared to open my eyes. Only lasted a day or so but felt not right for weeks. Used to carry travel sick tablets everywhere with me.
There's no way I could have looked at a screen, maybe lay off it for a while.

I suffer with BPV which was diagnosed as labyrinthitis when I had my first attack. I feel for you op, its utterly horrendous. I've now had two awful attacks where I've been bedridden in the last year with the odd day when I'm feeling lightheaded in between. I've resigned myself to the fact its something I've got to live with now and just manage it the best I can.

I keep Cinnarizine tablets in my handbag and beside my bed at all times and I avoid as mich as possible looking upwards, downwards and sleeping on my left side which I've found is what sets it off. If I have a lightheaded episode I take two ibuprofen and two Cinnarizine tablets and that usually sorts me out.

I still drive in-between attacks and live a relatively normal life but you do find you adapt.

Hopefully yours will be a one-off

I've had it and DH - it's absolutely awful, you have my sympathies. DH has had recurrent, less severe, attacks when he's been poorly, but I haven't had it again touch wood. I remember waking up in the morning, briefly forgetting about it and moving my head normally, only to feel as though I'd "left" my head behind IYSWIM.

I'm the 4th generation (at least!) of my family to have BPV. It's weird, wild and wacky!! It can come on at any second-even lying in bed.....one turn onto my left side and ......,oops! Off we go! Both my dad and I have "had our crystals parked"! And both have had fairly successful results. I've had no really bad sessions since i had it done and his are much milder. Be warned though-having the manoeuvre done is like being on one of those "vomit comet" planes that put you into zero gravity for a second or two!! It's the MOST intense BPV that comes out of nowhere & at warp speed-but then subsides just as quickly. It's definitely worth giving it a go!!

How are you OP?

Well giraffes I turned a corner today and have been up and walking about! I feel 'clearer' and so massively relieved.

My husband had to go back to work this morning (he works away for 48 hour shifts) and I have to look after our 2 year old on my own. I have no family nearby but have managed to get through the day (thanks to a Thomas train set).

Walking a bit like a robot trying not to shift my head and set it off. Am nervous about what happens next. I live in the country and have to drive 1/2 hour down the M5 to get to work. There is no way I'm safe to do that so I guess I get myself signed off this week (luckily I'm only part time).

Oh I'm so happy to be coming out of it. The tinnitus is quieter, I'm much more alert and have had no nystagmus today :). Still feel quite 'odd',bit like you do the week after major surgery, sort of vulnerable.

I have Meniere's which can produce all these symptoms. Worth a google. Causes hearing loss/tinnitus as well as the vertigo. You need to see an ENT doctor to properly diagnose. Sorry--it's horrible whatever is causing it.