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Men's health ..... advice needed .. tmi sorry

27 replies

frazzledbutcalm · 01/10/2014 21:59

Dh has 2 problems atm. He's been told they're not connected but they happened around the same time so I fail to see how they can't be connected. Advice appreciated.

  1. He's started to leak a small amount of urine, usually only after the first wee of the day, sometimes it happens once later in the day also.
  2. His penis now bends to one side when erect.

Urologist said wee problem is nothing really, said his bladder is larger than it should be, so he has to empty it every four hours to try to reduce the size over time. He said bent penis is nothing to worry about and not connected with wee problem.

Does anyone have any advice or experience?
TIA

OP posts:
frazzledbutcalm · 02/10/2014 20:38

Anyone?

OP posts:
MrsMinton · 02/10/2014 20:43

No advice but you could ask for more information or another consultation. Does he have a follow up appointment to see if the leaking is improving?

frazzledbutcalm · 02/10/2014 20:55

He has another appointment in 3 months time. Consultant has said if there's no improvement dh will have to just live with it! Or he can have tubes inserted up his penis and dye injected into his bladder then scan to see what's happening. But he told him this would be very uncomfortable and doesn't always show anything so it's probably not worth it!
I've told dh to go back to GP as doctors/nurses/consultants/specialists words are not always law and are not always the be all and end all. I just don't feel it's acceptable to be left like this ...

OP posts:
MrsMinton · 02/10/2014 21:01

It doesn't seem fair to be left with what feels like half answers. Have you looked at the nhs site for urinary incontinance in men?(apologies if you have) It has some helpful info on. I would go back to your GP if you feel you still need answers.

frazzledbutcalm · 02/10/2014 21:17

Tbh I haven't looked into it as I've never really thought of it as and incontinence problem. He leaks a small amount after the 1st wee of the day, literally size of 10p - 50p piece on his boxers, then that's usually it. Occasionally he'll leak the same at tea time. It's always after a wee, within a few minutes. He stays at loo til all wee is completely out (or feels like it is).

OP posts:
MrsMinton · 02/10/2014 21:28

There is a bit on there about random leaks

^Overflow incontinence may also be caused by your detrusor muscles not fully contracting, which means that your bladder does not completely empty when you go to the toilet. As a result, the bladder becomes stretched. Your detrusor muscles may not fully contract if:

there is damage to your nerves, for example as a result of surgery to part of your bowel or a spinal cord injury
you are taking certain medications (see box, top left)^

www.nhs.uk/Conditions/Incontinence-urinary/Pages/Causes.aspx

frazzledbutcalm · 02/10/2014 21:47

Thanks mrs ... I've taken a look but nothing seems to apply to dh ...
I'm going to make him go back to GP, especially to see if the 2 conditions are related. Thank you for all your advice, more help always gratefully received.

OP posts:
MrsMinton · 02/10/2014 21:48

I hope you get some answers. It is very frustrating not knowing why something is happening.

frazzledbutcalm · 02/10/2014 21:51

Thank you.

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NewEraNewMindset · 02/10/2014 21:55

Can remember on Embarrasdubg illnesses that there was a condition where the penis started to bend to the side. I think eventually they did perform surgery and the gentleman did lose a little length. I wonder if the two things aren't connected. I would possibly be more concerned about the problem of the bending to one side as the leaking issue sounds pretty minimal.

pinkfrocks · 02/10/2014 21:58

see another consultant. Bending willies need fixing- it's not 'normal' and leaking in younger men is not normal either.

I'm sorry he's been dismissed because he needs help.

frazzledbutcalm · 02/10/2014 22:14

Thanks new and pink ... my thoughts exactly. But the consultant assured dh BOTH conditions are fine! Definitely going back to GP. Hopefully will get more answers.

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InSpaceNooneCanHearYouScream · 03/10/2014 10:20

Actually 'bent willies' or Peyronie's disease does NOT always need treating. Mild cases are best left well alone and can actually recover in time. An leaking one or two drips once or twice a day sounds like nothing to me. Men often have the odd drip.

Souper · 03/10/2014 10:25

Pinkfrocks - do you mind me asking what your very assertive opinion is based on?

pinkfrocks · 03/10/2014 10:48

Yes I do mind.

Why do you ask?

InSpaceNooneCanHearYouScream · 03/10/2014 11:16

Because you aren't correct pink

Souper · 03/10/2014 11:42

I just wonder how qualified you are to give such blunt advice that contradicts a consultant urologist. So presumably you are also a consultant urologist or similar? In which case you ought to disclose that at the time of giving advice.

pinkfrocks · 03/10/2014 12:28

So Souper and Inspace- you are both uros?

I've been around long enough and seen enough consultants to know that they all have different opinions.

Souper · 03/10/2014 12:43

You will see that I haven't offered the OP my opinion on her dh's problem, as I do not claim to be medically qualified to do so. However, as a general piece of commonsense advice, I would recommend discussing matters further with your GP or the consultant, OP, as the communication in the consultation was obviously not optimum.

PacificDogwood · 03/10/2014 12:49

I would go back to speak to the GP or consultant.
An explanation of why/what is happening that you understand and can accept is what I would aim for.

Peyronies Disease is one possible condition which can bend the shaft of the penis to one side. Depending on the degree this can cause big problems with passing urine/erections and intercourse. It would only be surgically corrected if it interfered with function.

I have no idea whether the dribbling bit has anything to do with the bending (not a urologist). Equally I have no idea whether further investigations would be of value, but a cystoscopy (camera test inside the bladder) is not an awful investigation to have and is usually done under sedation AFAIK.

I think you both simply need more information and better communication from your HCPs.

InSpaceNooneCanHearYouScream · 03/10/2014 21:14

And I haven't given any advice either, pink, but I do have first hand experience of Peyronie's

frazzledbutcalm · 05/10/2014 21:30

Thanks all. Inspace, it's not just a small drip as in wee left that's not been fully shaken off ... it's leakage 5 - 10 mins after his usual wee, often when he sits down or bends down to pick something up.
He's never been told it's Peyronies Disease... and he doesn't have any discomfort with the bend. NHS says the penis usually bends upwards, Dh bends to the side.
Pacific, the consultant said the test is not pleasant and didn't mention sedation. He also said it's not really worth it as it often doesn't show anything up. Seemed a bit odd to say this though really, why offer the test to anyone if it often doesn't show anything?
I just can't understand why the 2 things have just suddenly started happening when no other changes have occurred in lifestyle etc.

OP posts:
meltedmonterayjack · 06/10/2014 03:09

I second going back to your GP and discussing your concerns. As you say, why is the test the consultant was talking about done at all if it rarely shows anything and is so unpleasant? He sounds a little too quick to tell DH he's just going to have to live with these problems. I think I'd want to see someone a bit more pro-active. Like you say, why has this just started happening? I'd want to know a bit more than "Oh it's normal" and whether there was anything that could be done to help.

InSpaceNooneCanHearYouScream · 06/10/2014 09:17

My DH's was the same- bend to the side, no discomfort. He was told to leave well alone. He did. Several years later it has rectified itself, which sometimes happens. Not quite sure why you don't trust a urologist, they see this a lot, and know quite a bit about it!

frazzledbutcalm · 06/10/2014 21:05

Inspace It's not that we don't trust the urologist exactly ... but to have 2 problems happen within days of each other and be told they're not connected seems odd, a bizarre coincidence. We'd like a second opinion that's all. After all, doctors/nurses/specialists do sometimes get things wrong or miss things. Their word is not law. People are misdiagnosed often. His flippant manner, lack of explanation did not instil confidence. That's why I came here to see if anyone had had experience. Thank you for sharing your personal experience with me. We are going back to the GP to discuss things further.

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