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second autoimmune disease?

33 replies

hashtagwhatever · 14/08/2014 23:00

I will try to keep this short by just writing down the main bits. I have been unwell for the last 19 months or so and was quite quickly diagnosed as having hashimoto thyroiditis. I am on thyroxine and some vitamin supplements as a few tests keep coming back low. Iron, folate and vit d mainly.

But my symptoms lessend none and not all fit a thyroid problem. So I am under rheumatology right now I have tested positive for ANA and have recently had ultrasound scans done of my joints which have showed inflammation. I'm not due to see the rhuemy for another couple of months, but would like to know is it looking likely that I have another autoimmune disease.
Ms has been ruled out by mri. But I still get pains all joints. Pins and needles unlike the usual these are really painful and have a weird inner tremor/vibration feeling within and awful fatigue.

I would like to just try and prepare myself a little for the outcome, has anyone had a diagnosis with similar symptoms.

Sorry its so rambly

OP posts:
Cocolepew · 17/08/2014 11:58

Sorry for double post

Lonecatwithkitten · 17/08/2014 12:24

Plaquenil is hydroxychlorquine.

hashtagwhatever · 17/08/2014 18:03

Oh ok that doesn't sound too bad you read other horror stories but I suppose people are more inclined to tell those.

How does it work for you both? If you don't mind me asking.

OP posts:
Lonecatwithkitten · 17/08/2014 19:35

Risk to eyes very small particularly if you take branded product rather than generic. My optician takes it too and reckons a check every 2 years including retinal photography to track changes is sufficient.
But then I am already both long and short sighted so blurred vision is relative.
It takes a 6 to 8 weeks to kick in and I take it in a cocktail with naproxen, omeprazole and injections of hydroxcobalamin.

Cocolepew · 17/08/2014 19:43

Im on 200mg and it definitely helped to begin with, I went on it in january. It helped with small niggly pains but by feb I had double pleurisy and in june had pleurisy and a massive flare and ended up in hospital.

At the moment I would say its not doing anything for me.

Lonecatwithkitten · 17/08/2014 19:54

Cocle I take 400mg a day with a 1000mg of Naproxen.

hashtagwhatever · 17/08/2014 22:03

Thank you good to hear from people who take it.

Do either of you get headaches from the naproxen?. Im thinking of asking for a alternative as I keep getting headache and sure its the naproxen.

OP posts:
Cocolepew · 17/08/2014 22:30

Im hoping to get it upped when I see my rheumy at the end of the month. I take gabapentin, I'm aiming for 900mg but I'm struggling to get over 700mg, its really spacing me out. Anything below that isnt helping my neuropathic pain.

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