No, still waiting to hear.
I'm sorry to hear your story - you've certainly been through the mill recently. I was lying in bed thinking about it in the small hours (as you do) and remembered that my brother in law has two friends with MS - one who is quite badly affected but apparently he drinks a vast amount, has taken all sorts of drugs etc over the years, and was in appalling shape even before the diagnosis. The other friend has a very positive attitude to it, is heavily into complementary medicine (ie, in addition to pharmaceutical treatment) and is doing really well and still lecturing.
I think, from reading about it, there seem to be the different types and without knowing which type one has, it is nigh on impossible to give a prognosis. There seems to be an absolute overload of information and scary stories out there (as you say) and I think it is important to 'screen' the information we absorb. My mum and I both had breast cancer at the same time and I found it was the same then - everyone, with the best of intentions, had some advice, something they'd heard on the radio, someone they'd known etc etc etc, and in the end, the only thing to do is to find a source or two that you trust (I trusted my surgeon and the oncologist) and listen to them only. Not sure whether that makes sense, but it seemed to work for me.
I can't believe that having MS would adversely affect your baby's childhood. You sound like a very caring mum, and I think as with all sorts of other situations whatever the illness, mums cope and children adapt. I've been through the cancer and three years of severe depression, and tbh I was convinced that I have completely ruined my children for life. As it is, they are perfectly well-balanced happy children. They understand that there are somethings I don't like doing - going into very noisy places for example - and that there are times when I would need to spend the day in bed crying, but they always understood that it was never anything that they had done, and nor could they do anything to make it better, just give lots of hugs etc, and now thank god, we are all out of that hole. The children were 4 and 6 at the time by the way.
Sorry, I'm rambling now! I'm thinking of you, and as you say, even if there is no-one else who comes along with positive stories, we can support each other.