May have to have a hysterectomy - any advice

[blueberry2310]

To cut a long story short I had a cone biopsy to remove adenocarcenoma. I then got an infection and had to have a stitch in the cervix to stop the bleeding. I've since found out that the surgeon accidentally stitched the cervix together. My options now are to try an open it open (one attempt has failed) or have a hysterectomy. Has any one had one? What's the recovery like? What's the emotional side like? I'm 36 and probably didn't want any more children. Thanks

Hysterectomies - it's gotta be done but over here for hand holding PART 3 (9Hysterectomies - it's gotta be done but over here for hand holding PART 3 (975 Posts)
75 Posts)
Hi, as you can see I'm rubbish at linking, but thought you might find this thread useful. Everyone is very helpful and at different stages of treatment, so there is lots of useful info just reading it through.
I would insert a bunch of flowers, if I could, at this point.
I would speak to your doctor about what type of hysterectomy and method. Keyhole is much easier recovery wise. Also, you are quite young, so it is probably a good idea to retain hormone production, or you will have a very early menopause.
I hope it all goes well

I wouldn't, tbh. Keep as many bits as you can. I had hysterectomy plus nodes removal few months ago because of adenocarcinoma as well and while the recovery was swift, there were/ are few issues that bother me, specifically bladder and sex problems.
I'm at your surgeon's fuck up. Hope you can find someone better to deal with it.
I'm also surprised that you had just a cone biopsy, was your cancer in situ?

blueberry - I had a hysterectomy last November and hsve recovered very week indeed. I have had no issues following the recovery (which was pretty good all things considered)

I would recommend strongly going on to the link Jerm posted www.mumsnet.com/Talk/general_health/2037715-Hysterectomies-its-gotta-be-done-but-over-here-for-hand-holding-PART-3 there are 3 continuous threads there with women with a whole variety of reasons for having hysterectomies.

I would suggest though that you need to for a start get plenty of information on ALL of your options - but not assume hysterectomy is a dreadful option but ensure that you understand all of the implications of all your options.

It is not an easy ride having a hysterectomy and they were done very much par for the course only a few years ago - so I do now find people seem horrified at the idea of undertaking them these days which isn't always helpful if its your only course of action - or the alternative is miserable.

Most people (like me) recover well and the hysterectomy has taken away generally a grim problem - for some it will be the best of a worse selection of options and there can be complications ( as with any major surgery)
Please ask away if you have any other queries
x

Thanks for all your responses. I will take a look at the thread you mention. The hysterectomy they would do would be keyhole and they'd leave the ovaries.

Yes my cancer was in situ and they got it all. I'd be absolutely fine and wouldn't have this shit had the surgeon not stitched my cervix together. Currently there's no way for my periods to get out. I am getting a second opinion next week so be interesting to see what he says.

Hope all goes well next week - I assume the first dr has apologised pro explained why they did what they did - that sounds like a very grim situation to be in.