Sjogrens or just a tooth infection, or something else?

[BeyondTheLimitsOfAcceptability]

I have psoriatic arthritis, which is whats making me think its secondary sjogrens caused by that. Right now I'm fine, which is whats making me think its not my tooth (i do have a bad tooth on that side), plus the pain is my whole jaw, top and bottom teeth, right up to my ear and down my neck, and my glands are swollen in my neck on that side.

I have dry eyes, my contact lenses keep sticking to my eyelid and moving when i blink, and they get gunky snd stuck together at night (Thought it was an infection, but optomatrist said its just irritated) and very dry mouth. I drink loads cause of the dry mouth, and have been tested for diabetes before for "always being thirsty". I get sinisitis a lot. I hadnt put it all together before, but now i have, it seems to point to sjogrens. Anyone got it and have an opinion?

As i said, the pain is okay now, but last night it was unbelievable, i nearly went to a&e. I'm already on morphine, and i took my max dose and it didnt even dent it. If it gets like that again tonight, i'm going to ooh.

One other thing, i read that it increases odds of non-hodgekins lymphoma. I dont think i have that! But, my nan did, so i'm now wondering if she had SS and if i have inherited it?

I also have hms by the way, in case thats relevant?

The pain is coming back :(
Does noone have any ideas?

I had mumps when i was a teenager, and have a very clear memory of eating chocolate and the agonising pain in my jaw when i did, thats exactly what it feels like.

I'm waiting for the ooh doctor to call back

Ow :(

It sounds like a tooth infection that could be why your glands are up. I didn't thing Sjorgens caused that much pain. It does sound like you have Sjorgens symptons though.

Good luck, sounds horrible

Sorry really not much help but my mum has sjogrens and i have hypermobility syndrome so we are beginning to think there is a link.

Dr google has suggested (sat here googling while i wait for the call...) that it could be salivary gland stones, which are apparently a) common and b) even more likely in sjogrens.

I wrote it off as my tooth when it started, but it doesnt seem to be anywhere near my tooth, apart from that its the same side. I can eat on it, and the gum around it seems fine.

If it was just the pain, i'd grit my teeth (ha) and bear it til monday, but im on methotrexate so paranoid about any potential infection type things

Yikes! I have lupus and have a lot of Sjorgens symptons. My glandsin my neck swell and so do the glands in my cheeks. I look like a hamster, its sore but not excuriating.

Just got back. Ooh gp says she cant see anything obvious, see my gp. How helpful of her. Sigh.

Typical. If you're in agony go to A&E.

My Sjögren's always creeps up on me when I have a flare. Gradually I get more achy and tired till finally I realise that everything I do is painful.

GP will need to return you to rheumatologist as they can not prescribe the hydroxychloroquinine that helps.

How are you now?

The 'infected salivary glands' that 111 'diagnosed me with was trigeminal neuralgia.

I think Sjorgens is linked to HLA markers that are also linked to several auto immune conditions. These are hereditary so it's quite likely you have inherited your current condition.

I have coeliac disease and have had acute sarcoidosis which my dad had at almost exactly the same age. Two of my five kids have the HLA markers for coeliac.

Do a quick google on DQ2.5

Not great. Jaw isnt at its worst, but i havent eaten dinner yet (so far its gotten worse every evening after dinner) however i have a headache and feel particularly sick and dizzy. Plus i'm bloody knackered, havent slept properly for a few (four i think? I'm losing track!) nights now and thats on top of the usual chronic fatigue anyway. On my own with the boys as dh is on nights, so will make sure i have my panic alarm on me.

Still under rheumy care for my arthritis/hms, so hopefully it wouldnt take long to get an appointment. If its ss, anyway.

Genetics appointment is coming up for my/ds's eds/hms soon, so i'll see if i can investigate the hla too! Good shout miss smiley :)

Hope you get some answers.

And some pain relief.

I have pain like that frequently. (and also have hms) It was unbearable for years, constant flare ups of it with episodes lasting weeks and no one could figure out a diagnosis. Eventually turned out to be migraines. Triptans for accute attacks and preventatives to reduce the frequency changed my life. Do you think it could be a migraine? Either way, much sympathy, sounds bloody awful.

I've had migraines for years, the frequency dropped a lot when i started daily painkillers etc but still get them. It doesnt feel like my usual migraine, but i know they can be weird so guess its possible? The sicky minging feeling certainly feels like when i have a migraine, but maybe the stress of it is giving me one!!