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Fibromyalgia and preventing burnout.

26 replies

BitchyVstheUFOs · 28/06/2014 00:36

I was diagnosed with fibromyalgia a year ago, had it more than two. Not a surprising diagnosis as have had post viral and chronic fatigue in the past. However this time the specialist warned me that it is unlikely to go away and if it does it will only come back. So i have a question. I accept that there are days that I am going to be flat on my back completely exhausted and days when i feel ok but how do i learn not to push and do as much as I feel i am capable / want to do on a good day as to prevent burnout and inducing un-necessary bad days?

I have had a good few days at the beginning of the week, done way too much and now pain levels are higher than the pain killers I have will tame and moving is more than a bit of an issue. I do know that I have various food sensitivities that will increase the pain and have had a few treat days (pizza and cake) which will have contributed but the thing I am really finding hard is the physical limitations. I am and always have been the sort of person that does not know the meaning of still. It is incredibly frustrating not to be able to do stuff, especially when there is stuff that needs doing. So additionally, is there any way that I can learn to address my expectations of what I should be able to and can actually do in this new version of normal life as apposed to what I used to be able to do?

I want to avoid meds as much as possible because helpfully one of the symptoms i have with the fibro is the supersensitivity to meds and foods. Meds often causes more problems than they solve. So learning limits and how to prevent burnout of energy levels where it is preventable will probably be huge for me in managing this. Any help is greatly appreciated.

OP posts:
BitchyVstheUFOs · 29/06/2014 18:03

Thanks Matilda I will look into it. Sounds really interesting, especially as the Alexander technique is something I have come across for other issues. Will have a proper research session on tuesday when I can submit to all day bed bound.

There was a book that sounds along these lines that I looked at on the internet at the start of this much better patch. It kinda got forgotten in the feeling able to do stuff. It was talking about tracking and following and making sure that patterns of triggers were avoided etc. Changing behaviours etc. I think it will be worth to dig out that book mark and get it too.

There are fibro support groups but tbh i feel a bit of a fraud going because generally I can operate at a higher level with a higher tollerance to pain. takes a lot for pain to stop me, but when it does it is because i have allowed the pain to build up to the point where it is in control. I might have to stop being so proud and go speak to them. After all going is not the same as admitting defeat. right?

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