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getting test results

7 replies

hoedown · 18/06/2014 17:22

Hi, first time poster so please be gentle! I'm currently waiting for CA125 blood test results following a test over a week ago, on discovery of 2 large (6cm+) complex cysts on my ovaries. Consultant is on the missing list and his secretary says she is unable to give me results as she is not a clinican. GP receptionist said the same and has booked me an appointment with GP for tomorrow, although she said he won't give me the results without the consultant having seen them first (as consultant requested them but due to absence hasn't yet reviewed them). Normally when I have any blood tests my GP receptionist gives me the results. Any idea if their refusal to tell me my results is correct? secretary said consultant unlikely to be able to review results until next week at the earliest, and in the meantime I am experiencing constant pain, irregular bleeding and diahhrea. I didn't realise that nobody else could give me my results, and am worried consultant will have a huge backlog when he finallyvgets a chance to catch up on his test results.

OP posts:
hoedown · 19/06/2014 00:15

bump

OP posts:
RockinD · 20/06/2014 19:19

I think technically your results are your data and you are entitled to them, but given the clinical background and the test result you are waiting for, I would suggest you wait and get them from someone who is qualified to advise at the same time.

hoedown · 21/06/2014 09:23

Thank you RockinD Smile

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Pandsbear · 22/06/2014 17:10

I think you can have your results once a clinician has reviewed them. So until someone has, they won't dish the results out to you regardless of the outcome. OP hope the results are ok for you.

AttilaTheMeerkat · 22/06/2014 18:10

I am actually wondering if all your symptoms are actually related to endometriosis (one type of complex cyst is an endometrioma which is related to endo).

CA125 can be elevated if endometriosis is present as well so would not assume the worst by any means. I would see if you can get definite confirmation that you will be given these results next week, in this case they are wise to not actually give you the results because they are not qualified to interpret them at all properly. I would also in the meantime keep a daily pain and symptom diary of your symptoms if you have not already been doing this.

An ovarian cyst can also contain both fluid and solid material, and this is known as complex ovarian cyst. Complex ovarian cysts occur less frequently and are not related to the normal menstrual cycle. These are generally harmless (benign). There are three types of complex ovarian cysts: dermoid cysts, cystadenomas, and endometriomas.

Dermoid cysts -Theseare the most common type and develop during the childbearing age. The cysts contain structures such as the teeth, hair, nail, bone, or sweat glands. It is a slow growing and rarely cancerous. It causes significant pain when the cyst twists.

Cystadenomas - Cystadenomas are benign cysts that develop from cells that cover the outer layer of the ovary. There are two types, mucinous and serous cystadenoma. Mucinous adenoma contains a sticky, thick fluid. It can grow up to 30 cm (12 in) in diameter and weigh up to 100 pounds. It can fill up the abdomen and cause pressure on other structures such as the bladder and bowel. It can also block the blood supply in the ovaries and cause twisting or torsion of the ovaries. Serous cystadenoma contains a thin, watery fluid. It does not grow as big as mucinous cystadenoma but can cause symptoms when it ruptures.

Endometriomas - Endometriomas are blood-filled cysts that arise from endometriosis. Endometriosis is a condition wherein the cells that are normally found inside the uterus grow outside the uterus, such as the ovaries, fallopian tubes, bladder, or bowel. Endometriomas can also be called chocolate cysts. This is because the cells that grow in the ovaries bleed and become brown over time and result in a brown-colored cyst.

Patients with ovarian cysts are often concerned about malignancy. Complex ovarian cysts are generally benign. The risk of malignancy is generally higher among postmenopausal women, occurring in 0.3% of cases. It has been reported that a malignant change occurs in small percentage of women with dermoid cyst and endometrioma. Cystadenoma has not been reported to become malignant.

hoedown · 23/06/2014 00:47

Thank you Pands and Attila. I have now seen the consultant and had the test results. Markers were slightly elevated at 79, and he said he wasn't concerned about cancer. I had an internal examinaton, and was told I will definitely need surgery. I'm currently awaiting a date for a ct scan, as a recent surprise pelvic infection seems to have caused all kinds of problems and extensive adhesions. The consultant said I may need dome bowel removed and possibly some of my reproductive organs too. It's not brilliant news but I'm hugely relieved and thankful that it doesn't appear to be cancer. Thanks again for taking the time to reply to my post. Thanks

OP posts:
hoedown · 23/06/2014 00:52

I should add that I am pre-menopausal, with 2 young DC.

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