Arse! Any mnetters on here with MS?

[2kidsintow]

I had an appointment with my neurologist today to discuss the results of my MRI. His letter was ambiguous, but his words today were "So, MS is the most likely explanation of your scan results."

I had the MRI because I suffer from TN and it shows the most likely cause for that too. But that's all I expected it to show so the MS possibility is a bit of a surprise.

MS and I are old friends. TN certainly could be a sign of MS although not one I've ever suffered from myself. MS is difficult to diagnose, have they done any other tests, or do they plan to do so? Do you have any other symptoms or had any in the past that might indicate MS, walking problems are common, balance problems too, they are my main problems, also eye problems, could you pinpoint anything like that in your past.

My mum has has ms for over 40 years if I can help?

My mum has MS too, happy to talk if it would be helpful.

My mum has MS too, she was diagnosed a couple of years a go at 49.

Have you had a lumber puncture? Mums first scan was a bit ambiguous but the second scan coupled with the lumber puncture results confirmed it.

Another one that's happy to talk of you need to offload.

Thanks for the replies.

I have a compression on the nerve which should be the actual cause of my TN pain. (Not something I would wish on my worst enemy).
I have a twitch in my arms/legs, but I think that is the gabapentin to blame there.

The MRI letter I got stated high signal areas in the white matter on both sides of my brain. It was the neurologist today who phrased it as MS being the most likely explanation for those results.

I've been referred for blood tests (he said they would be for immune testing) and for a LP.

I don't have the best balance recently, but also put that down to my TN medication. And for a whole day about a month ago my left eye just would not focus and was blurry like I'd just woken up.

But apart from that, nothing I would put down to MS.

It's all a bit of a surprise really. Glad to know there are people on here who I can rant moan talk to.

I googled the high signal thing when I first got my letter, but stopped looking when it kept saying MS. But it's a lot more real when it comes out of the mouth of your neurologist.

I'm not on gabapentin so can't comment on side effects.

I'm not a dr but my balance is terrible so balance problems sound like MS to me. The blurry eye also sounds to me like MS but I'm just being honest and not trying to scare you. These things could be easily explained by many other things and yes,as you suspect,just a side effect of your gabapentin.

I thinks you'll just have to hang in there , easier said than done. I'm happy to answer any questions and I'll keep checking back to this thread.

Ms is "multiple attacks" so my neurologist explained after my MRI scan showed ms but officially couldn't diagnose it until I had another attack. I was however put into the system and have regular meetings with the MS nurse to monitor my condition.

It is also a difficult illness to diagnose so they will want to rule out everything else.

Its a horrible diagnosis to get and I still have not come to terms with many years later.

But there is some positives, there are a lot more drugs available to slow down the progress.

Also, it can be a terrible disease but not for everyone. If you met me you would have no idea i had it, I'm not on any drugs and was told by my neurologist that i would be unlikely to need anytime soon and this is years after diagnosis.

You will read the horror stories and it can be truly awful but not always.

Try to stay positive and I wish you all the best with it.

I'm still in denial until I've had my LP results back. It's a great place to be. :)