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CPAP support thread

7 replies

Willthisworknow · 10/06/2014 13:17

I'm 43, and female. Just got a CPAP machine. Have managed to use it for a few nights but past 2 nights have been generally anxious (work and other family issues). I do want to make the CPAP work as the sleep apnoea does make me feel I have no energy and I have 3 small children. Any others out there? How long did it take u to get used to it? Any tips on making sleep more comfortable? I always seem to get an itch on my face or still only sleep lightly with it on. Did the CPAP make any difference and how long did it take to get used to it?

OP posts:
unadulterateddad · 10/06/2014 17:06

Hiya, well done on getting your machine! I've had a cpap for about 7 years now and whilst it does take time to get used to the machine it does get easier.

I found that I can't use the masks as I found them uncomfortable, instead I use nasal pillows (which are not as intrusive for me). you may need to try different masks etc to get what suits you.

unadulterateddad · 10/06/2014 17:09

also if you can get to Oxford on the 18th October, then the Sleep Apnoea Trust Association day is held at the John Radcliffe Hospital - there will be lots of masks etc to try and new machines to look at.

Also there will be lots of other SA people there to give lots of advice and support.

NatashaBee · 10/06/2014 17:15

This reply has been deleted

Message withdrawn at poster's request.

unadulterateddad · 10/06/2014 18:21

and the difference after a couple of weeks of solid cpap use is amazing - you will realise how refreshing a good night's sleep is. these days I don't think I could go two nights without it

craftysewer · 11/06/2014 01:24

I'm 50 and have had a CPAP for about 3 years. I absolutely hated it at first, found it very claustrophobic and it probably took me a good 12 months to settle into using it for over 4 hours every night (the minimum amount of time which will benefit you). I wouldn't be without it now though. The difference it has made to me is incredible. I feel I can function like a normal human being. I no longer fall asleep on the sofa at 8/9pm at night and feel like I have the energy to do things. I changed over to the nasal pads about 12 months ago. I find them more comfortable, but don't feel they are quite as good as the full mask. Keep persevering with it, it will be worth it.

craftysewer · 11/06/2014 01:26

You might also be interested in reading this previous thread about CPAP's: www.mumsnet.com/Talk/_chat/a2050274-Tell-me-about-CPAP-machines

TolchockLovelyInTheLitso · 11/06/2014 09:43

It'll take a good long while, Willthis. I've been on CPAP about a year and it took at least 2-3 months to be completely comfortable sleeping with the mask on. I don't have OSA but a similar condition which means nasal pillows aren't an option.

Please do persevere though. The difference it makes to your life is amazing. The longer you've been sleep deprived, the longer it will take to really notice a difference. I've started feeling much better in the last couple of months, and now only need a nap maybe once or twice a week. I wouldn't go without my CPAP for quids now!

A couple of things to try are different pillow. Ikea do a V-shaped one for £5. I'm finding their memory foam one pretty good at the moment. It all depends what position you sleep in. There's also Pad-a-cheek who provide padding & pask liners to make the mask more comfortable. If you do buy anything from them, ask them to mark the customs label 'medical equipment' or else you'll have to pay import duty.

Finally, if you're having comfort or fit problems with the mask, air leaks etc, go back to the hospital and they'll change the mask or suggest alterations to help you.

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