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Back to Back Trouble. The Back Pain Support Thread.

998 replies

Matildathecat · 02/06/2014 18:08

This is a support thread for people with back pain (that does not even cover the description of hell that back pain causes). It's for all types of back pain, for long term posters with chronic pain (including those on the upwards journey to recover), short term advice through tough acute episodes and all the in betweens.

We moan, winge, share successes, guide each other and hand hold through the maize of a million medical routes and options, treatments, investigations. We internet shop as a form of pain relief, drink wine, take strong painkillers, eat cake and we go through lots of heat packs!

We don't always have the answers but we do have a lot to say about it all Smile

Here are the links to our previous threads:

www.mumsnet.com/Talk/general_health/1871592-The-Back-Story
www.mumsnet.com/Talk/general_health/1992406-The-Back-Story-Continues
www.mumsnet.com/Talk/general_health/2023274-More-Terrible-Back-Stories
www.mumsnet.com/Talk/general_health/2049637-Back-Again-Back-Pain-Support-Thread?msgid=47419209#47419209

And some other useful links and info:

www.patient.co.uk/health/cauda-equina-syndrome-leaflet

We have done the hard work for you and learned about effective drug combining. Using NSAIDs, a stomach protector, paracetamol with or without codeine (it enhances the codeine), nerve pain meds such as gabapentin and/or amytriptiline can all be more effective than simply taking huge doses of opiates. Of course most people won't need all of this but for severe prolonged back injuries this is helpful to know.

Heat, gentle exercise, TENs, medication patches, diazepam and accupuncture, we've tried them all.

So if you are suffering come and join us, were a social lot. Smile

OP posts:
Matildathecat · 30/08/2014 19:12

Haha, I've also got a flat bum. In Tesco not long ago a total stranger, an old Scottish lady came up to me and said, ' I hope you don't mind me saying this but you've a lovely wee bum!' Grin

No, I did not mind! It is wasted, though. And I do do my exercises. Hey ho.

OP posts:
Jasminesoft · 01/09/2014 11:04

Morning all on this autumnal grissly morning.
I have been to see the pain team last week and have now started taking Amytriptyline, bit scary and still feel like I have drunk half a bottle of whiskey the night before when I try and get up in the morning. Does this feeling pass as you get used to these meds? I hope so!
I have also invested in a TENS machine and was amazed at the instant relief that it provides. I managed to half the amount of co-codamol yesterday which is brilliant and am hoping to drop it altogether as soon as I can and just stick with the Naproxen for the time being.
I have got a few long flights coming up in the next few weeks and was really worried about how I would cope with those and the work that I need to do in between, but I am feeling much more positive now.
I was also told that I had burnt the skin on my back with using a hot water bottle, I had a look when I got home and it looks awful. I had no idea that that a hot water bottle could cause damage like that, it makes sense in hindsight but thought that I would mention for others to look out for.

Pavlov glad that the injections have helped and hope that it continues to improve for you.
Queen hope that you continue to recover well, it sounds like you are doing amazingly well.
Matilda hope that you are feeling better after bathing the dog

Hope everyone else is well Smile

Matildathecat · 01/09/2014 17:57

Jasminethat's fantastic that the TENs machine is helping so much. They can be great. I find it annoying. The ami side effects do indeed lessen but it takes time. I have only ever got up to 20mgs but that sends me off for the night and seems to help so really quite small doses can work. Others on here take much more. The hangover feeling lasts a little while so hang on in there. I still have to really drag myself awake in the morning but then I'm ok after a cup of tea.

I've done some long flights so do sympathise. If you don't have a flat seat make sure you are on the aisle so you can get up and down a lot. I also had airport assisstance as the distances were too long. Consider taking every drug you possess. It's not easy but planning will help.

I am frequently in trouble with my physio for back burns from using heat patches. I always stick them on a vest but even then, if lying down they get very hot (lovely and comforting) causing skin damage.

Glad things are better for you, though. Keep us posted.

OP posts:
PavlovtheCat · 03/09/2014 21:05

I lost you! I have at last a few bloody minutes to stop and talk to you all and catch up on news! It's manic, work, work, a bashed elbow, a broken/dislocated finger (the children's each time not me!), camping. Wow. And now I should be tidying the very messy house. But, fuck it. I need to catch up with you all. So, DH is out watching the footie, and I have stopped. Kids' uniform etc all done, kitchen reasonably tidy for brekky, my work clothes ready, the rest can wait.

I shall go read on!

PavlovtheCat · 03/09/2014 22:08

matilda and jasmine I have just bought a TENS machine too! And, like matilda I find it more annoying than anything, it irritates me so i can't concentrate on anything else and so didn't get too far with the pain relief! I am taking it back Sad I so wanted it to work, and bought it as I was struggling with pain (due to walking and hauling two excited, then tired and bored children around shoe shopping). I remembered when the pulsing started how annoying it was when I was pregnant as I kept forgetting to with it off when contractions ended and kept going 'i feel funny, theres a sort of buzzing going on in my body, it's weird!' then being reminded it was the machine still on!

I am so pleased it works for you though, it does work for lots of people.
has anyone tried this acti patch thing? electromagnetic pulsing belt?

PavlovtheCat · 03/09/2014 22:13

also looked at this which is HUGE amounts of money! Almost bought the strap for it, thinking it was the whole thing, for £20, saying to myself 'oh this looks worth a try!' then seeing it was only the strap! but, the theory looks good, might look into it a bit more, read some more reviews. Who knows what Father Christmas might bring one year?!

PavlovtheCat · 03/09/2014 22:21

do not under any circumstances buy this product they have made a grave error in their writing - in the sub text of their advertising on the package, and again in the 'blurb'. Can you spot it? Even my 8 year old would not make that error, although fair enough many people would make the same error, but not a company that wishes to be seen as reputable, professional and having some control over our health. Why didn't they get it spellchecked? Even a simple word spellcheck would pick it up! Or an editor. Or, someone in Boots marketing who approved it?! WTF!

PavlovtheCat · 03/09/2014 22:25

wow, i just looked at that advert again, and there are so many errors and inconsistencies in the blurb. It's clearly an osteo who has got a patent, not much money, shoved it all in his or her product and chucked it out there. proofreading doesn't cost very much, they could even get a family member to write or edit the blurb for nothing and do it bette than that! Oh it makes my blood boil! My grammar is not perfect, but I am not selling a product!

PavlovtheCat · 03/09/2014 22:25

i'll shut up now!

LoonvanBoon · 04/09/2014 11:07

Ooh yes, pavlov, crap advert! What have you spotted? So far I've seen the misused apostrophe & "effects" instead of "affects" (well, unless the device does actually bring about tension in the back). What a cock up.

In so much pain last night / this morning! An exercise in grammatical pedantry is just what I need. Grin

LoonvanBoon · 04/09/2014 11:08

Arrgghh - "discrete" when they mean "discreet"!

LoonvanBoon · 04/09/2014 11:11

How does it work anyway? It supposedly addresses the root cause of your back problem, shows you how to stand & controls your movement - impressive claims for something that looks like a giant sticking plaster.

LoonvanBoon · 04/09/2014 11:12

Are you still having less pain after the injection, pavlov? Hope everyone else is okay. How is the recovery going, Queen?

Cinnamon73 · 04/09/2014 11:23

Hi all, yes, Pavlov, how's the pain?

I went to a Zumba class today
45 mins, I didn't do the jumping, and I was in about the same state of pain afterwards.

Then went swimming and now waiting for the punishment Grin

I am starting to feel so depressed about the whole back thing, I decided to do something for my mental state. Loved the class, it just lifts my spirits.

Yesterday was a terrible day as I did some diy and was in agony last night.

Now i wait and see if it actually gets any worse. If not, I'll just start going twice a week.
I also got more physio on the way.

Hope you all have a good day!

Matildathecat · 04/09/2014 11:49

Wow, Zumba, that's mighty impressive. Hope it doesn't pay you back. After my appalling day yesterday beset with a faints and most of day lying on my bed I'm just hoping for something better. Just been for a veeeery slow amble in the park with one of my dear friends who take me out. Now lying down and swallowed cocodamol. Hoping to manage to swim later on.

Now I've been looking at Pavlov's link above for the Blue Light thingy. Can't heal but think that someone in the medical profession might have recommended this if it's so wonderful Hmm. The model looks remarkably pain free throughout. Ok, so heat helps, yes. Any more than that? Well I'm not convinced. Nor will I be shelling out £275 to find out Grin.

I've got to do more PIP stuff today, true heart sink but it needs done. I've finally, I think, got my head around the obscure wording of the mobility section and I know I qualify for the higher rate, I just need to use the right words and phrases. Jeez, they make it so hard. Sad

Have a good one, everyone.Smile < what a lot of emoticonsSmile>

OP posts:
Cinnamon73 · 05/09/2014 15:55

Well, I'm no worse than before my Zumba, that's a result I think.

Matildathecat · 06/09/2014 20:48

A result indeed. Zumba is a pretty good indicator of being pretty much ok.

Just got in from meal out. Sitting / wriggling and half reclining but still in major discomfort. Is it worth it? I can't stand staying in forever but no doubt it's easierSad.

OP posts:
LoonvanBoon · 06/09/2014 21:27

Sorry you're in such discomfort, matilda. I can be okay sitting, but usually take a giant beach bag full of different cushions / supports to customize the chairs! And some chairs are just shit no matter what you do, or your back just doesn't want to be in that position. It certainly makes spontaneous meals out a thing of the past. Sad

Hope your back eases up a bit & you get a good night.

I need to start chasing up my appointment this week. It was meant to be 3 months after the injection, but the injection was in May & I don't even have a date yet.

PavlovtheCat · 06/09/2014 22:38

matilda I know what you mean, you want to be sociable, and see people and do the things you did before, like eat out and enjoy food and wine with good friends, but actually, when I am in lots of pain, I realise that I am doing it to appear to still be sociable, to 'show my face' and in actual fact, I spend most of the time wanting to just go home and curl up in bed with painkillers and a hot water bottle. I felt like that yesterday, despite a low pain period - went to the beach after school with the children and met up with some friends. One of them said 'you wanna come back to ours? we have beer, coffee, pasta and pesto for the children?' and as the pain was creeping in, where once before we would have done that, stayed til past the children's bedtime with them bouncing on the trampoline while we chatted into the night, I just wanted to go home and lay flat. And, I was feeling nowhere near how you are feeling.

I can't ever imagine that I could do zumba!

PavlovtheCat · 06/09/2014 23:12

so, a quick me, quick posting hahahaha update on my injection.

Two weeks and 1 day since I had a needle stuck up what felt like my backside Grin I have felt fab, and have some very low pain days. I won't quite go as far as saying pain free, as there have still be some aches and pains. But there has been no flu feeling for the first week to ten days, virtually no sciatic pain, the muscle spasms stopped pretty much completely and I was left with a residue pain in my back and twinges when I twisted and moved too fast, some grinding noises inside (not audible by others, just me, like being able to hear the sheets ruffle when your head is on them).

I took the time to start to declutter the house, and have got rid of 7 bin bags of clothing, sorted out two plastic boxes of clothes for giving to friends, 3 boxes of toys to give away. I have thrown out 5 bin bags of paperwork/old birthday cards/scrap paper and material I was keeping for 'art projects' (not seen the light of day for years), 3 bags of broken, old and tatty toys and 1 bag of stuff we don't need/hoarded from the bathroom (the bathroom? wft where was it all kept?!). I have also thrown away one broken and not fixable dolls house, a broken suitcase that we kept saying we would fix, several drawers of crap that we have not missed for bloody years. Thank goodness I didn't do what I was so tempted to do and just chuck it all in the bin as the drawer has not been opened for over a year - my passport was in it!

I have helped Roo ride his bike in the last two weeks (bad position to be in), have been camping and actually didn't feel too useless, swam a lot and avoided diving simply by my friend literally stopping me from doing it. I have pushed the children high on swings, I have even ran (ok, only a few steps) which the children were absolutely gobsmacked by ("you're running mummy!!", hoovered, bent down to pick things up - that's right, bent down! Actually the bending down period was the loveliest period, but also the most short-lived period. That only lasted about a week really.

So, from about midweek this week I have seen a decline, maybe a little earlier, as I tripped over a guy rope when I was camping and fucking hell that send enormous waves of jolting electric pain through my spine and straight down my legs! But, despite my actually crying in pain from that, I recovered reasonably well, ramped up the painkillers, took some diazepam to offset any muscle spasms that were threatening and it only seemed to have a slight affect (took a good few hours to calm down though), I don't think it triggered the decline. It's a slow downwards move though for the most part, no sudden wham! back to being utterly screwed, but I have each day felt a little stiffer, the evening pain has gradually moved into the afternoon, and I can't bend again. I have had a couple of periods of flu like feelings, which have subsided again after a night straight to bed after the children had their stories and plenty of painkillers. I had a little weep today for a few seconds as I felt some similar pains returning, not upset, sort of sad in that kind of acceptance but sad nevertheless kind of way, but the tramadol and other meds kicked in and it all eased enough for me to tidy our bedroom, which was actually making me upset it was so fucking messy. It had been a storeroom of all the shit I didn't want people to see when they visited and I could tidy, along with so much of the children's artwork scribbles on scrap paper that i just don't have the heart to through away, boxes of crap that we don't need, oh god, just felt so yuck.

So, in prep for the what seems inevitable continued decline (not pessimistic, largely fine with it just know it's not going to be forever), I gutted the bedroom! Not literally, and I still have a lot to sort out, but, I organised what I was going to sort out, went through it all, put the rest away where I know it is, to re-sort later, but it's vaguely organised and hidden. All the stuff I got rid of is included in the above list of decluttering. Goodness knows where it has all been hiding. It sounds like we live in some kind of grotto surround by Stuff, but honestly our home is not like that! to the outsider it's clean and relatively tidy, nothing that would make most people think we were hoarders, but I have been feeling so overwhelmed with how quickly things get messy and nowhere to put anything, and we just have too much stuff.

So, I started today at 1pm. I have just finished. My back is On Fire! Oops. But, I am in a beautiful clean bed, in a beautifully clean bedroom, with some incense on, and both children are fast asleep next to me, having danced around the 'new room' ! so, worth it. DH would never, ever, ever, not in a million years get the room like this, not even close. So, if I have used the last of my good days doing it, that's ok as it got so bad because I simply could not do it myself.

PavlovtheCat · 06/09/2014 23:19

fucking epic post!!!Blush you won't read it. don't worry, it's just me going on and on and on. No-one else is around to tell them how fucking awesome my tidying has been, and, well, unless you were in the bedroom, you would never guess as the rest of the house is still a shithole Grin mainly as we have not recovered from camping at the weekend, DH likes to sort it all out 'bit by bit'.

Matildathecat · 06/09/2014 23:59

I'm around, just about. Your room sounds fab. I find stuff difficult, too. I did my t shirt drawer today and felt smug so you really nailed it.

I've been to bed and got up again. Harsh words between us which are hard to say or unsay. Resentments we clearly both feel. Oh god, it feels a bit endless.

OP posts:
Cinnamon73 · 07/09/2014 08:14

I read it Grin and well done to you. Our bedroom still is a mess, dumping ground, just like yours sounded.

Wrt Zumba, yes, you could have done it the way I did it. I was the slow, no -jumping sloth with delayed reaction at the back of the class. It was more an act of defiance than an exercise class.

My back is still sore from the diy I did on Wednesday, my exercises hurt like hell, swimming doesn't get me pain free. So hey ho, back 3 steps again.

I'm glad your injection gave you a spell of being pain free. Bending over, just wow!
I'm hoping you're being too pessimistic and the decline is not imminent. Can understand about the weeping, I've had a cry on Wednesday when I realised I shouldn't have painted the wall (a half an hour job). It's just hard to give up the life I had. There are at least 10 diy jobs in the house that need doing, normally I would have done them all in the summer holidays.

Have a nice Brew in bed in your lovely bedroom, I envy you -> Envy

PavlovtheCat · 07/09/2014 13:53

still have a lovely beautiful tidy bedroom, and with the skylights open and the sun it looks lovely. DH went out yesterday, slept on the sofa as he was celebrating a friend's birthday and the rule is that if he comes home after 1am and is drunk, he sleeps on the sofa. So we 'unveiled' the bedroom this morning, and was like 'wow!' and we all had a cuddle and a cuppa in our bedroom. He now wants to go chill out up there with a coffee, not usual in our bedroom! He has also spent ages tidying the rest of the place so it doesn't look quite so bad against the lovely bedroom Grin

I am very sore. It's definitely inflammation. it's flu type sensations, moving down into the legs and feet, more in the right than left, but in both legs and deep in the spine. It doesn't feel mechanical, not boney, not muscular. I have taken a big dose of naproxen, see how that works. But, despite being sore, nowhere near like it has been, so still better than I have been.

cinnamon the bending was remarkable. It hurt, but like the muscles are not used to it, rather than not physically being able to do it as my back simply would not go in that direction, and if I forced it, the pain was unbearable. I bent to get something and DH was open mouthed as I have not done that for a very long time. I took advantage and re-did my toenails which i only usually get done when my friend visits!

Hoping it lasts at a reasonable level until after next week, and the week after, as we are going to London for a music and food festival, staying in a hotel literally a stone's throw from the place so a real bed and can go lay down if I need to, but want to dance! And the week after it's our wedding anniversary.

matilda our kitchen plans are coming together! We have had some issues with our bathroom again, and have a damp problem in the kitchen which needs to be fixed (again, more thoroughly) before we start, and the person who has been working on our bathroom has been fab and we think we will employ him. His plasterer colleague has been to advise on the wall/damp problem, and they can work together so we will get the lighting done at the same time as our wall stripped back and replastered. Our other builder is snowed under and still has not come around to have a chat, so not so keen, thus he is not so keen for our money! This guy has shown us some work, has done a good job on our bathroom, has had a long chat with DH about plans in the kitchen, given us some ideas of what is achievable and what isn't, where to save money and where to not scrimp. He also said, that he and his team could have it done by christmas, it will take two weeks to put in, although we need 3 weeks or so for the wall to be done as it needs taking back to bare brick, drying, treating and rebuilding the plaster. So excited!

PavlovtheCat · 07/09/2014 13:54

I love the idea of a gentle zumba by the way! I would definitely be at the back shuffling around!