Is our hypermobility connected to fainting/ seizure ?

[l4k]

Does anyone else have both? I have been passing out when I vomit, before or after, since I was 11-12 ish. As far as I'm aware, the only time this was accompanied by fitting/ convulsion was when I was 16.
Last thurs, it happened to me in the morning as family has a gastro bug. Thurs afternoon , dd1 was feeling unwell and thought she may vomit when kneeling at the toilet She passed out, eyes open and rolled back, arms and legs shaking vigorously. It lasted a few mins. Phoned ambulance who took her to hospital where they checked her over after what they called "collapse and siezure". They couldn't find a reason and said it may be inherited some way from me.
Both dd have already seen genetic doc as they have inherited hypermobility from me. Is this all connected?
Dd1 is worried it will happen again. I think she's more embarrassed by the fit than the fainting bit.

Forgot to say, dd1 is 16 so the same age as I was when I had fit. ( if that's what it was!)
Anyone with similar experience?

Fitting with a faint, isn't that uncommon ..it's not quite like a nasty proper seizure, tho it can be scary...and doesn't normally indicate the need for meds. However if she has more she will need to be investigated to be sure (or as sure as you can be)

My DD1 faints a lot.. once a week on average..she is hypermobile with POTS and very slow heart rate and plummets like a stone if she is kept in a warm place standing still. Bit of a nightmare as she is a medical student and has dropped on a fair few ward rounds! She has had a few 'fitty' episodes with the faints..and vomits.

However 10 days ago she had surgery herself and afterwards had 9 massive tonic clonic seizures..they looked very different (and a lot scarier ) and is now having loads of investigations for both epilepsy and cardiac involevement. The neuro has suggested it is likely to be all connected..but hasn't said how..

If we find out I'll let you know!!!

Hyper mobility syndrome is connected to PoTS and other things like CFS and various other things. Look at STARS website. But ime it is common to have a sort of convulsion type thing with a faint. (My sister does this and she does not have seizures ). My whole family faints at the drop of a hat do much so I completely overlooked it as a serious symptom for my dd who has severe CFS/ME and POTS. So, don't ignore it but also maybe don't rush to panic.

Pots symptoms can be worse when dehydrated which could happen with a gastro bug so more likely to faint.

Thanks to all.
God, medusa, really hope your dd is recovering now. Really scary for you both.
So, if it is POTS, who would she see about it? Or does it not need a diagnosis? Would that be what I have, I wonder.
We are currently all waiting for an echocardiogram because of our hypermobility , is that connected too?
Thanks again for the reassurance that its not often dangerous.

poTs is diagnosed by a cardiologist but generally needs to be a specialist they do tilt table tests. Some cariogists won't test children. Look up STARS website they have a list of specialists by area. Good luck!

Btw, my dd faints. 6 or 7 times AN HOUR.