Hypermobility and a CFS diagnosis

[mrstigs]

Hello everyone. I don't know if anyone can help me with this but thought I'd give it a bash just in case anyone else has a similar experience.
I have hypermobility, was diagnosed as a teen due to pain in knees. I was quite high on the scale back then and believe I still am, although I never properly dislocate anything. My knees often pop out a little when walk but I put them in quite easily and can then continue with my day. They do ache quite a lot though, especially at the end of the day.
Then for the last two years I have suffered with fatigue, again not enough to stop me doing much, but enough to make every day a fight. I had an underactive thyroid but was put on low dose thyroxin and my levels are now normal, this didn't change the symptoms. I often have to force myself to keep going but I manage. My muscles feel weak and my arms and legs are usually heavy and sort of numb by the end of the day. My head feels fuzzy and my eyesight will blur and I will struggle to think straight. That combined with the stiff sore joints mean I spend most nights in mild but constant pain.
I have been told I have CFS and am now referred to the chronic fatigue clinic.
I guess my wondering is if it is likely that these are two unrelated conditions or is what is now diagnosed as CFS actually part of the hypermobility problem. Has anyone else both of those conditions? If it is the hypermobility will 'treating'the pain and fatigue as CFS make no difference or should I be asking for more focus on the joint issue first? I just want to feel better again so I can feel like I'm living life rather than just surviving it but I can't get a handle on what it is I need fixing.

Thanks I will. In for a penny and all that.
Just been nosing around the Web and seen so much that makes me feel a right donkey, I didn't know half of the symptoms! I lose handfuls of hair every day and never thought much of it as my hair is thick and grows back really quick anyway, turns out that could be a symptom too. I thought it was normal to clean out your brush every week cos it was full of hair and still pull out handfuls most of the day and drop hair everywhere like a damn dog. , my nails are brittle and peal and break and my eyebrows are thin and straggly in the outer third despite being bushy and unruly through the rest. I never thought it was important. What a fool.
Now if only I could fix these damn joints I could go back to my normal busy life!

definitely do as advised below. apart from anything not enough thyroxine affects your muscles too! anything that affects metabolism is bound to affect muscles. plus, I'm learning the hard way about vit d. lots of muscular and bone aches.

I attended a british thyroid foundation meeting a few years ago, our local consultant asks attendees to record their results and note their cognition etc but muscles strength too, each time over a year, to hand back to him. I did yoga for a couple of years, every week. I had a little wobble (when a brand of thyroxine was faulty) and really noticed the reduced strength during that time.

so really, getting on top of your thyroid levels so that you are very well replaced is super important I should imagine?

Is it worth taking vit supplements anyway rather than waiting for tests to see my levels? Just thinking of taking myself to the health shop and looking for some kind of multi vit for the sake of starting sooner rather than later. There is a huge wait for appointments at my surgery and then with the wait for the nurse for the tests after then results it could be two months plus before I found out if I needed anything.

i just buy my own vits anyway

i use spatone 2 sachets daily

vit d at 10 000 iu - i take 4 tablets a week (this is a high dose - my vit d is always v low)

i dont need b12