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help! My fanjo is driving me mad.

71 replies

bonzo77 · 30/03/2014 07:57

It's so fucking itchy. On and off for a year FFS.

It's my vulva, between the bigger lips and the smaller ones, and inside the inner ones, and to a much lesser extent sometimes the entrance to my vag. I've been to the GP. I've been tested for thrush, thyroid disease and diabetes, BV, all the STIs. I've used all the thrush treatments (cream, pessaries, tablets), steroid creams. Anti histamines (tis so bad it keeps me awake sometimes). Vagisil. Washing with just water. washing with aqueous cream. not washing. air drying. hair dryer drying. towel drying. talc. not drying. cotton knickers. no knickers (not happening in winter). different kinds of san pro. no san pro (lovely). visually it looks pretty normal (see 2 below). makes no difference. Not related to my menstrual cycle.

3 other related isshooos..

  1. I have very flappy flaps. always have done. they are getting more flappy. they never really bother me, apart from sometimes chaffing.
  2. I get an ulcer on the edge of my vag, towards my bum. its from tight tissue which they don't know the cause of. I once had an op to remove the tight tissue, which helped for years. but it's back. its not herpes.
  3. having difficulty TTC # 3. I.m 36 and had 2 CSs. Periods slightly irregular but pretty certain I'm ovulating.

Going to GP tomorrow and pushing for another gynae referral, or maybe a vulval a skin specialist if such a thing exists on the NHS.

OP posts:
BetterTogether75 · 30/03/2014 20:38

I had a strep A infection which was very itchy and uncomfortable, I initially wrong self-diagnosed as thrush and let it go on way too long. Eventually picked up by swab at GP surgery and treated with antibiotics (erythromycin). Wishing you the best for getting sorted!

Llareggub · 30/03/2014 20:45

Cheap loo paper sets me off.

CoilRegret · 30/03/2014 20:52

This reply has been deleted

Message withdrawn at poster's request.

maddy68 · 30/03/2014 20:58

I have vulval dermatitis. Had tests for all sorts. Got refered to from a gum clinic to a dermatologist. Not a great deal they can do. I have Dermol 500 and emulvate steroid cream. I would say it never completely goes away but it has improved. No shampoos in the showers, only over a sink. Complete pain but helps

Wishiwashelenmirren · 30/03/2014 21:01

Please ask for a gum or gynae referral op, it's not reasonable for you to keep on like this. You need biopsies and skin scrapings at the very least. Hope things are soon better for you.

bellablot · 30/03/2014 21:06

I had this just after a long journey, sat down for 4 hours wearing a thong (never again!) my god the irrigation was unbelievable, unbearable in fact. You have my full empathy and mire.

Anyway, I got rid of it over a week by having salt baths, plain old salt or rock salt, ended up using a whole box, chucked in a bath of hot water, lay there 20 mins, 3 times in the week. I also used sudocream for during the day and that helped cool the area.

It wasn't thrush just irritation caused by sitting too long wearing inappropriate underwear.

Hope this helps. Good luck!

HolgerDanske · 31/03/2014 09:51

Actually that is a good point someone made - have you both been treated for thrush every time you've had it? Otherwise he will just be re-infecting you every time it clears...

The only reason I mentioned the allergy is I thought as you had mentioned that you had been trying to conceive so I thought maybe you'd bee using condoms previously.

Anyway good luck in getting it sorted.

HolgerDanske · 31/03/2014 09:52

Argh what a muddled sentence Smile

GingerFurryThang · 31/03/2014 11:00

bonzo77, does the itching happen anywhere else? Armpits for example?

If you usually wash your hair in the shower, I'd also look carefully at the contents of your shampoo and conditioner. The reason I'm saying this is because there are many hair washing formulations that contain some particularly nasty preservatives. Ditto Surcare's fabric conditioner, although you've already said you don't use a softener.

If anyone's interested, google isothiazolone/isothiazolinone, along with the chloro-, methyl-, benzyl- and also octyl- variants. The first three in particular are used as industrial biocides and are known skin sensitisers. There is also a formulation with the trade name Kathon. They are all horrible skin sensitisers and a known cause of dermatitis plus more severe allergic reactions.

Have a look here

(the British Association of Dermatologists' website seems to be down at the moment otherwise I would have linked to the paper itself)

These chemicals get used because they are cheap, plus there has been a move away from Parabens due to health concerns.

I'm allergic in varying degrees to these biocides/preservatives due to an industrial accident about 20 years ago. I was off work for a week and banned from going anywhere near them as the company insurance wouldn't accept the risk that the next reaction wouldn't be worse.

Hopefully this is of interest to people in general rather than just the OP - I can get on my soapbox about it somewhat Blush. In general, products I've found to be OK are all of the Ecover range, I tend to stick to Redken/Kerastase hair stuff and use ordinary soap. Most shower gels are a nightmare for me, even if it's just my OH using them. Surprisingly, Fairy Liquid is also a no-no, along with many Molton Brown and Aveda products.

bonzo77 · 31/03/2014 14:10

Thank you all so much for posting. It's good to know that I'm not the only one trying not to scratch all the time...

whereisegg and holger DH was not treated for thrush, because all my swabs came back negative.

bettertogether that is interesting. my swabs came back positive for Strep B. That was high vaginal swab though (still cannot understand why they did that when it's my vulva, but any hooo), and was told that is only an issue in childbirth, as it's a normal commensal.

Llarregeb not sure about cheap paper, but I always stick to a
Andrex puppies on a roll as it is unscented, not coloured, soft and does not shred like normal 2 ply paper. And it's funny to dry my fanjo on a puppy!

bellabot thongs are the work of the devil. I feel they transfer bum bacteria to the fanjo, and haven't worn them for years.

holger condoms and their lube really do not agree with me. only used them for casual sex, and had an STI check for both of us before relying on the pill. Including when I met DH. I was back on the pill for a couple of months about a year ago, but stopped because 1. i thought it might be contributing to the itching and 2. it took so long to get pg with DS2, it seemed pointless using contraception when a pregnancy would be most welcome, if a bit soon.

coilregret what is the oil based lubricant you use? I've got some organic vitamin E oil, do you think that might help? It sounds like you have things much worse than me, it much be awful. I've not been on a bike for years, but I horse ride and have no problems at all associated with that. It's interesting what you say about the amitriptyline. I know it's used widely to manage chronic pain, pain that is causing distress. I'd vertainly consider it as part of managing this, though I'd prefer to avoid in view of us TTC.

coilregret and maddy, when you have a flare up of the dermititis is there anything to see, like redness or flaking? The reason I ask is that there is literally nothing to see in my case.

ginger no itching anywhere else. You make good points about the chemicals in shampoo, and I suppose by inference face wash. I'm currently using Naked shampoo, which is meant to be nasties- free, but I will check that, ditto the Aussie 3 minute miracle stuff. I tend to use dove soap on my pits, and plain water everywhere else. I hate shower gel and haven't used it for years. As to hair dye.... well I used to do it myself every 2 weeks (my hair is white), but actually decided to go cold turkey before christmas. this has massively reduced the amount of products I use, and I had hoped that this would have helped, just as a side effect, though it's not why I stopped colouring. What shampoo and conditioners do you use? I'm assuming that as it's my fanjo only, that I can use what I want if it's not coming in contact with it, so fairy liquid for the dishes, and what I use on the kids is less relevent. DH is obsessed with Johnson and Johnson for the kids, which I hate as it's so perfumed and chemically, luckily they only get it when he baths them, which is only 1-2 x a week.

I saw the GP. She has referred me to dermatology. Not sure if that's the right place. She wanted to send me to gynae, but I've already gone down that route with no success. She did mention Lichen Planus, and we agreed unlikely, because firstly it doesn't look like it, secondly I don't have it elsewhere, and thirdly, I've already used the steroid cream, which usually helps with it, at least initially. Ditto Lichen Sclerosis. She said in the mean time to go back to using the Dermovate once a day and using an emolliant.

The local GUM clinic is walk in or appointments within a week only for self referrals. I can't really get there until after the school holidays, so will book for then if I've not heard from the dermatology clinic by then (or found them unhelpful).

OP posts:
bonzo77 · 31/03/2014 14:24

right, i've just checked my shampoo. that is free of isothiazolone/isothiazolinone, and the chloro-, methyl-, benzyl- and also octyl- variants. As is my face wash (l'oreal skin perfection). but the Aussie conditioner and a waitrose face wash is not. Good excuse for a fancy kerastase conditioner....

OP posts:
jusdepamplemousse · 31/03/2014 21:44

OP, you mentioned emollient...be VERY wary of aqueous cream. It causes more problems than it fixes. Fine to wash with but don't leave on skin. GPs prescribe it still, but dermatologists don't, think it's widely accepted to break delicate skin down if left on. Just in case you were using it. Hope you have success with dermatologist. Sorry if you already knew this.

HermioneWeasley · 31/03/2014 21:49

I've had similar. A broad spectrum anti fungal (itraconazole) helped a bit. While the BV tests came back negative the treatment helped a bit (might just have been something cool and soothing) . I have also started washing with cetraben (just used water before) and that also helps a bit.

3 years on it is no longer waking me up in the night and itching while not gone is manageable.

maddy68 · 31/03/2014 21:58

No I have nothing obvious! Just redness. I've been for all sorts if tests. I've also had allergy tests they proved I wasn't allergic to anything in particular but I'm histamic which means I'm uber sensitive to many things. You can test this yourself by scratching on your skin ( try your arm) and see if the scratch disappears quickly. If it doesn't you will be advised to take an antihistamine every day as a course of treatment
Tbf it doesn't make much difference to the itching.

persimmon · 31/03/2014 22:06

When I get a yeast infection, I soak a tampon in 600 ml boiled, cooled water with about 10 drops of lavender or tea tree essential oil mixed in it. I leave the tampon in all day and it's always cleared the infection straight off.

I had symptoms like yours for over a year (before I discovered the lavender treatment) when i was living in a damp flat with mould growing in it. Is your house very damp?

Dollydowser · 31/03/2014 22:08

A friend with similar said chickweed cream helped her.

OrchidFlakes · 31/03/2014 22:32

Just a thought, have you tried coconut oil? It's a natural moisturiser, anti fungal and I think mildly anti biotic? It might be a little better for you than Vaseline which is petroleum and personally dries my lips more.

TheVictorian · 31/03/2014 22:40

Very odd.

stackablegoatbearingcheesecake · 31/03/2014 23:02

Waitrose Bottom Butter is quite soothing for intimate itching, but not a solution obviously.

bonzo77 · 01/04/2014 12:11

jusdepamplemousse, yup, I steer clear of aqueous cream. Tend to use diprobase, cetraben, occasionally vaseline.

maddy bizarrely the rest of my skin is not really sensitive. I've occasionally had an issue with laundry detergent, but just a bit of itching, nothing dramatic. I just tried the scratch test you mentioned. It's didn't go red to start with, let alone stay that way!

hermione my dr won't use antimicrobials if the swabs are all negative. Will try to cetraben for washing though.

persimmon I don't have a yeast infection. House is not damp. If you soak a tampon in water does it not expand massively and go all floppy so you cannot actually insert it?

dollydowser and orchid thank you, I will look into that. orchid what do you use? A solid one or a liquid? Where do you get it from?

stackable funnily enough that is what has done the trick for DS1's mild eczema. Worth a try.

OP posts:
mummytowillow · 01/04/2014 12:51

Lichen sclerosis? My friend had terrible problems and went to a dermatologist who took one look and said it was this.

I have a mild form of it to, does your fanjo look like its got white tiny lumps on it?

bonzo77 · 01/04/2014 13:02

I think not, same with the gp, not least of all because of the normal appearance and the lack of response to steroid cream. But I'm hoping the dermatologist will have a better idea.

OP posts:
Frenchplait · 01/04/2014 13:03

I was diagnosed with lichen sclerosus last year, your symptoms sound very similar to mine. I know you've already tried dermovate, but I had to use it twice a day for it to have any effect. Dermol 500 is good for washing.

bonzo77 · 01/04/2014 18:18

How did they diagnose you? Was there anything to see in your case? Biopsy?

Sometimes I think I'm thinking about it too much, and if u could just forget it it wouldn't wind me up so much.

OP posts: