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Feeling low as symptoms can't be explained (sorry long)'...

31 replies

MummyJemz · 06/03/2014 10:38

It all started back in January with pains and strange sensations in my left arm/hand and a strange tingly/burning sensation in my back. Then it started in my left leg/foot and I noticed that my left side was weaker than right, especially left hand- i can't grip with it at all. Was eventually referred for an mri which was supposed to be in couple of weeks.

Then on Friday at work i felt faint/ dizzy on and off. That night my Husband noticed one of my pupils was bigger than the other and the next day I started seeing floaters in my vision and had headache too. Went to out of hours gp who admitted me to hospital.

I had lots of tests including ct, mri and lumbar puncture. Then a Neurologist came to see me, he was quite abrupt and shouted at me to try harder to squeeze my left hand/ push with my left arm etc but try as I might it just won't work. He told me my results were fine which I am so relieved about but he made me feel so stupid. He told me my arm/leg/back symptoms are unexplainable (could be viral but he doubts it) and the dizziness etc sounds like a migraine. He told me to go home and get on with life.

I am home and trying really hard but nothing has changed. The arm etc i can live with but the dizziness is debilitating. Its taken me ages to write this due to it! I feel guilty for worrying my family and for being like this. My DM and DH say its not my fault and my MIL (who was at hospital with me when neurologist came) cried with me out of frustration as she knows that I don't normally give in. But I can't keep relying on them. Just don't know how long it will take to feel normal. I've got to go back to work on Monday as I'm sure gp won't give me a doctor's note for unexplained symptoms! Not sure how I'll manage if I'm still dizzy etc.

Help fellow MNers, has anyone else been through similar? Do you think I'm crazy??

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MummyJemz · 08/03/2014 23:18

Has anyone tried a neurological chiropractor?? Been recommended one by a friend, she thinks he may be able to relieve my symptoms but also been told by a family friend that it could make me worse as it only works for small amount of people Confused

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CeliaFate · 09/03/2014 07:44

I have tried a chiropractor (a "normal" one not neurological but I don't know the difference) and an osteopath.
Osteopathy was much gentler, and more effective for me last time.
Actually I may try it again, as she really did help. I have also heard acupuncture works too, but it may be more of a placebo effect.

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MummyJemz · 10/03/2014 17:36

Been to gp today. He looked in my ears and said he doesn't think my symptoms point to labrynthitis. He didn't think I'd need a test for Lyme disease either. He thinks its definitely viral infection or a type of migraine causing my symptoms and has given me a medication called prochlorperazine to hopefully ease dizziness. He has signed me off work for a week.

He said that if symptoms do continue it may be possible to have another scan as mentioned by eye doc and maybe scan sinus area as well as brain but he said I should trust the scan results from the hospital (never said I didn't trust them) My blood results showed that my Globulin level, platelet count, MCH and neutrophils levels were slightly higher than normal but gp said these aren't anything to worry about and I don't have a clue what it all means anyway!

So fingers crossed this medication works and i can start to get back to some sort of normality. If anyone has taken this before or can shed any light on blood results that'd be great. I am so grateful for all the ladies that have replied to my post and made me feel sane over the last week! Thanks

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awaywego1 · 10/03/2014 18:17

I take prochlerperazine for dizziness. it helps a little bit and I haven't had any nasty side effects.

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MummyJemz · 10/03/2014 18:25

Thanks awaywego1, do you take it daily? I had one dose earlier and fell asleep after but not sure if thats anything to do with the medicine!

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awaywego1 · 11/03/2014 08:03

no I just take it when I feel particularly dizzy and sick. it probably does make you tired..but I'm always sleepy anyway so I'm not sure.

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