So now my psoriasis has spread to my eyes...

[Theincidental]

I already have plaque psoriasis on my face, scalp, ears, arms legs and back with no remission in three years and now it's my eyes too.

They are weepy, gluey and red and very sore. Tried all topical creams on my body and ketopine for my scalp to no avail.

Terrified of metho and biological with the side effects and long term impact on my body.
Can't have light therapy as the nearest service is over an hour away and completely incompatible with work and childcare.

But what's left to try?

Does anyone have any ideas?

Thanks rockin. I have an appointment next week and will ask for a blood check.

Walton's - I'd lose my job if I had the time off needed for the light treatment, as it would take three hours per day, plus no childcare. Also, no choice but to work to pay bills etc.

My eyes are worse in the mornings and evenings, washing with warm water helps.

I'd love to get a lamp at home, but not sure how to get it sorted.

Ok then,this won't sit well with your gp or other users but,why not use a sunbed for three minutes a few times .
I know the risks but , it would just help to get through this rough patch . Two or three goes may even help hugely if you combine it with getting outside as much as possible .
I had to do this for a few winters when it was bad-I found a reputable shop and spoke at length to the owner,she used to book me in first so the machine was 'cold' .
It was not enough to 'tan'.

I don't know if a normal sunbed is the right thing for psoriasis but I hired one for a couple of weeks so I could use it at home (for a different skin condition) It was some years ago but was similar in cost to going to a tanning studio, several times a week. It meant I could have several very short sessions, and avoid time off work (was SE at time) and others seeing my skin. It was delivered complete with eye protection and instructions.

It's a horrible trade off-skin cancer risk vs psoriasis . Anyone who suffers badly though understands .

Completely agree Walton's. I had thought about sunbeds but the psoriasis foundation says it's not "right light", so I'd discounted it.

Maybe another idea worth pursing though as frankly I'm becoming unsightly and it's hard for self esteem and for others who meet me. I have a very customer facing job and I do cringe and worry about what people must think.

Doesn't help my skin that I cover up from neck down all the time either. My face is really badly damaged.

Just a quick update. I now have about four different topical treatments to try including ones I've used in the past and a blood test!

Gp not keen on me trying metho yet as I'm a single parent with no extra support but they are attempting to find a much more local venue for light treatment. Sunbed ALS suggested in small doses.

Feeling more positive. Still no facial treatments though.

Theincidental, take a look at Dr mark Hyman's work/diet.

dr hyman

It's basically an elimination diet for three weeks, no alcohol, caffeine, gluten, sugar, processed foods....tough but if I were you I'd be giving it a go. I've seen people on it get amazing results healthwise.

Adding my experiences in the hope it may help someone... My psoriasis settled a lot after reducing dairy (can't cut it out altogether as love my cheese too much!) The plaques on my scalp were really persistent but I found the following really helped: Aveda Dry Remedy shampoo/conditioner, multi vits and Omega 3 supplements, and tea tree oil. Interestingly, the scalp psoriasis vanished altogether during my recent pregnancy - hasn't yet returned 5 weeks on - am not sure if there is a hormonal component or if it's linked with the reduction in alcohol/caffeine that PPs have mentioned. I hadn't heard of the link between psoriasis and alc/caffeine before reading this thread.

Dr human looks a little evangelical but I thinkni'll keep reading as it does strike a chord with me and could be a radical approach. Thank you.

Haven't tried Aveda,so thanks for the tip there.

And yes, alcohol and caffeine are strong triggers with me. Curiously, real coffee has far less impact, but I think it has less caffeine than instant and if don't drink as much if I have proper coffee as it tastes stronger.

I forgot about Aveda! Used to use it years ago .
I'm off shopping this week and will get some .

The idea is you cut out all the things he says for 3 weeks and then re-introduce individual foods to see what effect, of any, they have on you. So you aren't signing up for a life of deprivation! It's the best way to find out for sure what triggers a reaction so you can then eat accordingly - dabbling with cutting down or things randomly won't give you such good information . Honestly, for 3-6 weeks of possible hardship diet wise, I'd say it's an easy choice, between that, strong medication and suffering the effects of the psoriasis.

Rockin how did you get your thyroid fixed if I may ask you?