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kidney and bone profile only borderline ok in blood test?

9 replies

Lovepancakes · 23/01/2014 19:09

I know this doesn't sound major but I'm desperate to get to the bottom of my awful fatigue and wonder if this could be any hint to the problem?
I was thinking I might have a thyroid problem mainly due to the following starting after my first baby 6 years ago:
Unusual tiredness (ignored as sleep wasn't easy either but I still have no energy now full rested).
Severe Gluten intolerance (had been normal before)
Changing eyesight (could just be age but had passed tests to fly a plane and yet it fairly suddenly changed and has changed every eye test I did)
Very dry skin
Very bloated tummy
No appetite
Going from keen distance running to not bring able to walk half a mile without feeling even more tired after (and irritable by evening)
Brain fog

I'd already had polycystic ovaries and infertility

Sorry this is so boring but if anyone has ever had anything at all similar or has any suggestions I would be so grateful as I give up with our GP after 3 have all just said happily that blood tests look fine and left me to get on

OP posts:
PoshPenny · 23/01/2014 22:30

You could blame all of those symptoms on gluten intolerance... of your gut is not working properly due to gluten intolerance, then all of the other issues you describe could be due to malabsorption of nutrients...

It could be something entirely different of course.

Lovepancakes · 23/01/2014 22:58

Thank you! I am so careful I never eat it now though and been strictly off gluten for two or three years. But perhaps if my gut was damaged could it still be suffering from malabsorption? And could this lift over time I wonder/ hope?

I'm cheered you have suggested something definite as other than wanting to rule out glandular fever our doctor hasn't ever suggested why I could be so tired and it seems so vague to say I'm tired but many days it's totally debilitating. So thank you for that alone as it seems a more sensible suggestion than I have thought of! I was so sure it might be thyroid but it seems the blood tests would have shown that up

OP posts:
Lovepancakes · 23/01/2014 23:10

Ps thanks to our suggestion I googled and found this article chriskresser.com/50-shades-of-gluten-intolerance which made me wonder whether to try no grains and no dairy in case that helps. Am feeling happier at least something I can try even if it just rules it out

OP posts:
RubySparks · 25/01/2014 22:42

Could you find out actual thyroid results? Especially if you have had a few tests over time which may show a trend e.g. Increasing TSH might show thyroid starting to go wrong.

Lonecatwithkitten · 26/01/2014 00:06

This is how was before pernicious anaemia and coeliac disease were diagnosed. You need to keep eating gluten till you have been diagnosed with coeliac otherwise you get false negative results.
Now I don't eat gluten I'm much better, the insomnia always recurs just as I need another B12 injection - I self inject so can do it immediately.

schloss · 26/01/2014 22:30

Hi,

I also have pernicious anaemia but with Crohns rather than coeliac, and symptoms worsen when B12 injection due. Lonecat, do you mind me asking are you in the UK and self inject B12? I wish I could self inject but docs will not allow it. Thanks

Lonecatwithkitten · 26/01/2014 22:52

Yes in the UK I am a vet, I asked my GP who said 'Are you sure it's intramuscular?' I replied yes 'well' she said' you're a brave woman than I am'. She doesn't prescribe needles and syringes I get those from work and dispose of them at work, she just prescribes the B12. I am also allowed to inject more regularly than every 12 weeks which I believe is unusual in the UK.

schloss · 27/01/2014 12:46

Many thanks Lonecat. I am happy to self inject IM but docs will not prescribe B12. Thankfully they have over time realised 12 weeks is too long for me and will allow a shorter time but not always!

Lonecatwithkitten · 27/01/2014 15:10

Even if I was not self injecting my surgery would still prescribe make me go and get it from the chemist (and pay) and then return for the injection.

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