Anyone with Fibromyalgia?

[Saltire]

Have you tried acupuncture? Did it work/help

*thegonnagle8 - I think I have got secondary reynauds, never actually had it investigated though.

Rockin Hippy - the doc got me to do a hormone diary and there were no more or less flare ups at certain times of the month

Interesting that this thread has just come up in active convos, as I'm feeling extremely achey today and this has been going on to a greater or lesser extent at least since December. Also feel very tired. I have had some episodes of inflamed joints particularly on one occasion in recent years - blood tests showed inflamation present, and ankles visibly swollen too. At this time due to inflammation in my hips I was unable to walk upstairs - however fortunately it only lasted about a week.
I'm sure how I'm feeling now is related -
Think I should probably see my GP

TBH I think that can fit with FM too, though I can be sure as Ive turned out to have a different diagnosis, but I had awful hormonal flares, escalating from 2 weeks prior periods to unable to leave the house for the week & a half wrapping around it & the GP just blamed it on FM, though also blamed everything else on it too.

I should have said, neither DD or I are obviously bendy BTW - I had no idea we were at all because we are no contortionists & its just our normal & as its hereditary, the rest of my family too - yet DD passed as 7/9 affected joints on the Beighton Scale & more joints not used for diagnosis too - I wouldn't pass it now, but would have easily a few years ago, but against the Brighton Scale, I score highly

Sounds like a good idea to see your GP juggling

Saltire did you get a print out of the actual tests they did on your Thyroid ?? - that could still be an issue too

RockinD knows more about this & I'm too foggy to remember the exact tests etc, but thyroid tests are notoriously inaccurate & they often only do a basic one first, if that shows any abnormalities then they might look further, but you need to look at your levels - what accepted as normal in the UK gets treatment in the US & a basic test might show as normal & the other tests T4? Etc can show a problem as can things like ferritin(?) problem

It's always a worry when they add other drugs into the mix isn't it? I suffered with tonsillitis which kept causing renal flares so last June I finally had my tonsils out (ouch). It has made such a difference to my levels of general health, no more sore throats every 3 weeks etc and I'm far far less tired, but they kept me on steroids throughout the period to counteract all the extra inflammation and also the drug cocktail which would probably have caused problems otherwise.
I also found childbirth to be a massive cause of problems, add to that the drugs for an IVF conception! I just blew up like a balloon and didn't go down again for 18 months. I actually got my EDS diagnosis because of the IVF. The genetics team at my hospital flagged it on a routine case check (my husbands infertility is genetic). I'm glad they didn't find it earlier- not sure they'd have allowed the treatment to get dd!
I do find that my protein loss escalates before my period, and I get the histaminey flushes at this time of the month too.
I would love to be able to join the dots with all this- I can't believe that it's just coincidence to have multiple immunological problems and them not be related, it just seems so unlikely.
Maybe we could keep this thread running for a sort of moaning post/support group? I'm in a group for Nephrotic Syndrome on FB and it's been invaluable to be able to speak to others who understand.

Did somebody call?