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Ds scared me half to death today!

39 replies

AbbyLou · 25/07/2006 20:55

I took my 19 month old ds to Tumble Tots today for the first time and it ended in a complete disaster. He tripped over one of the floor beams and landed on his forehead. When I got to him he cried then took a big breath in. I was waiting for one of those almighty screams but it never came! Charlie went completely rigid, threw his head back and arched his back and was staring at the ceiling - this was in my arms. He just didn't breathe for what felt like ages. His face was getting greyer and greyer and his lips were blue. I screamed his name over and over and my friend raced over. I ended up whacking him on the back at which he breathed again and then went very limp and I think he fainted. He had his eyes closed and was completely floppy. I was absolutely terrified, I didn't know what to do. The woman running Tumble Tots went and got a first aider from the leisure centre and we took him to a cool room. He was starting to come round by now and was very sleepy. I think I was actually very lucky - within half an hour he was back on my knee enjoying song time with a huge purple lump on his head. He has had no ill effects and has been totally fine all day hence me not getting it checked out. He's eaten and drunk normally, slept normally and has spent the afternoon in the pool with me in the garden. It gave me such a fright - I'm a teacher and I see kids bang their heads every week but I've never seen such a reaction before. I know he's fine now but every time I stop and think I see his face that horrible grey colour and the sick feeling I had in my stomach. I'm sorry to go on and on but I just thought getting it out on here might help me get it out of my head!

OP posts:
Overrun · 26/07/2006 11:08

bump

psychomum5 · 26/07/2006 11:33

sounds like it could be, and as you have him having an op soon you would be best getting it ruled out completely first.

Bearing in mind you have said that he goes grey, that is just like my DD3 did.....on the other hand DS1 'just' went blue....and there, from what I have been told lies the difference. And you mention the sleepiness too!, also another factor pointing the same direction.

I really don't think you'll rest easy until you know for sure, so you must get it sorted...not that it is dangerous but just so you know re the op side of things.

That said....should your GP not listen, then when your son goes in, explain it to the anaethsetist(sp?) that he has been known to breath hold and his symptoms so they know for him coming round.

Both my DD3 and DS1 have had general anaesthetics (for tonsils for both, and brain scans and an MRI scan for her) and neither had an issue (well, my DD did, but that was thro sheer terror and nothing to do with the seizure aspect[despair emoticon]). The surgeon and anaesthetist knew and looked after them with excellent care.....you should have no fear there.

I hope this helps, and that all goes well.

butterflymum · 26/07/2006 11:43

Overrunm, in my understanding and in basic language, breatholding tends to be in two types.

The temper type, usually triggered by anger/frustration, whereby the child remains, on the whole, bluish about the face because un-oxygenated blood is still circulating during the episode. These are not necessarily an indication of bad behaviour, as many are led to believe, as they can be triggered involuntarily, albeit some children can bring them about themselves.

The second, and which RAS is sometimes described as, is white/pallid breatholding, which results from a sudden or unexpected or extreme fright/hurt/pain and the child, whilst having bluish lips, is of a far more paler colour as the heart has usually slowed down almost to the point of stopping, so the un-oxygenated, bluish blood is not being pumped around. This type is always involuntary.

If it is the RAS type, it is best for you to be aware of this, so perhaps you could ask your GP to be more specific, especially as your son is having an operation soon. STARS can supply you with a leaflet 'Information for Anaesthetists and Dentists' as they need to be aware of the condition and take appropriate steps to try to avoid triggering an episode. Leaflets can also be obtained for helping explain the condition to others such as toddler groups, pre-school, school etc.

Whichever type it turns out to be, the most important thing is not to worry and to remain as calm as you can during an episode.

If you need it, STARS can give you lots of support.

Hope this is helpful.

butterfly

butterflymum · 26/07/2006 11:45

Oops, psychomum must have been typing quicker than me - lol .

Overrun · 26/07/2006 11:50

Thanks for getting back to me, I will certainly raise it with his gp. I will have to watch him even more carefully when he has an episode. I think sometimes his episodes fall more into breath holding catergory and then the first one (that I remember so vividly) and this last one seem more like RAS.
His face being white or blue is significant I can see from the site, but I think I was so shocked last time that my memory is of an ashen face and blue lips, but couldn't swear to it.
Thanks for your time. I know from some of your other posts that you have a lot to deal with atm

psychomum5 · 26/07/2006 11:51

butterflymum.

Actually had forgotten that stars do escellent leaflets. shows how longit has been since I have really had to fret.

psychomum5 · 26/07/2006 11:52

and now I can't spell either

psychomum5 · 26/07/2006 11:54

you welcome overun.....glad to help others. Takes my mind off me having to go hospital later!!!

Overrun · 26/07/2006 11:55

thanks also butterfly Mum, has just seen your post as well. I wonder if it is significant that my dh has epilepsy, which presents in the form of simple partial seizures, or absences as they are sometimes called?

AbbyLou · 26/07/2006 15:33

Well we're back from the doctors. We saw a very young, very nice lady and she immediately diagnosed RAS. I did'nt even mention it first. She said very much what Psychmum said really and reassured me that Charlie would never not breathe after a short while. I feel a bit daunted now my son has a 'condition' but I'm off to look at the stars website that so many people have recommended. Obviously I'm worried about it happening again but at least I know it's not too dangerous. Thanks so much to everyone who took the time to post, it means a lot.

OP posts:
butterflymum · 26/07/2006 15:57

That was very fortunate that the GP you saw was aware of RAS - so many aren't and it can often take years to get a diagnosis.

Do give STARS a phone as well as looking at their site. The human touch of a one to one conversation can be very helpful and put so much into context in ways a website sometimes can's (albeit the STARS site is excellent).

Importantly, try not to worry (easier said than done, I know) and do make use of this board and STARS Yahoo group to chat to other mums about the condition, their experiences, their tips etc.

butterfly

butterflymum · 26/07/2006 16:04

Oops, sorry about typo in previous post - should read can't not can's.

Also, forgot to say, don't wrap your son up in cotton wool. From experience, boys will be boys and if a seizure is going to happen, it will, no matter how careful you have been. My son has fully enjoyed activities such as attending playgroup, swimming lessons,soft play areas, Squirrels and Beavers (part of Scouting), school friends birthday parties etc. All I would add is always be open and frank with others about the RAS. Explain it in simple terms and be reassuring of the good outcome following on from episodes - most mums/dads/carers/teachers etc are very understanding and are not put off by it if you have been straight with them from the start.

butterfly

psychomum5 · 26/07/2006 17:29

and pleased from me too that you had a sympathetic doc and who agreed RAS without you having to push

Makes HUGE difference to a mummy should the docs agree rather than say "whaaaaaaaaat???" with a confused look on their faces!

And like butterflymum says.....don't panic.....(DON'T PANIIIIIIIIIC....NOW GOT DADS ARMY MAN IN MY HEAD[GRIN][WINK]!!).

Your son may never have another episode, but eaqually if he does, it is NOT dangerous and he will ultimately be fine. Believe me....and this comes from a mummy whose son eventually used it to his advantage to get me upset. I walked out on him doing one once, and only went in once he hit the floor to makes sure he was ok! THAT was the catalist to me 'ignoring' it, and he soon stopped with attention seeking ones!!

The real ones you will know (and as he is young, the attention ones won't be an issue for a while, if ever, yet).
You may want to wrap him up for fear of a bump or shock....but these toddlers are little blighters for managing to escape us and throw themselves down somewhere (6ft wall for my son) and then have another RAS....you can't keep you eye on him all the time....you will have to learn to let him go a little or you will go grey!

Anyway....glad it is better today, and good luck with your precious pickle!

AbbyLou · 26/07/2006 18:24

Thanks a lot. I must admit I feel a lot better now I know what it was. It kind of makes me feel more justified for worrying about it so much! I've been on the website you recommended and it looks really good. Ds has two childminders so I will probably send off for some of the literature just so they are clued up too. I know one of them will really worry as she has lost a daughter to Long QT Syndrome and it will probably look quite similar in the beginning to her. She has another daughter with it who she very nearly lost earlier this year so I feel a bit guilty giving her something else to worry about but at least I have been assured that it is not as serious as it looks! Again, thanks so much for all your helpand advice, it just goes to show what a great place Mumsnet is. I probably wouldn't have had him checked without your advice and then I would have freaked if it has happened again.

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