Anyone here with EDS Type 111?

[Litebolb]

Just recently diagnosed with this and it's good to have an explanation for all of my health problems and to know that I have not imagined them! I just used to think I had a freaky body! Anyway, new to MN and wanted to say hi :)

Hi.. do you mind asking who you saw to be diagnosed?
My DD2 was queried with this as a child (multiple dislocations, stretchy skin etc) but we dropped out of the system as she grew because we had more urgent medical problems with her brother. Now at 19 she is really suffering.. seeing a physio for her joint problems, has the classic scarring, mega mega loose joints and sadly a lot of pain.. but her GP seems clueless and the physio hadn't heard of it!! We saw professor Pope when she was small, but have no idea how to get her back into the system to see anyone!
Sorry to hijack.. but any advice gratefully received! (she's in Nottingham)

Hi, I saw a specialist in university college optical, London. I live further south but asked my gp to refer me there, having asked EDS UK to recommend someone who cold diagnose.
Got a diagnosis within the hour :)

Sorry, hospital, not optical

Thanks :) We shall do some asking and see if she can be referred.. we live in Oxford so London shouldn't be to big an ask. DD2 really needs help as she is in so much pain which is crap at her age:(