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Hysterectomies - it's gotta be done but over here for hand holding part two

992 replies

Oddsocksrus · 09/12/2013 22:57

Over here for the hand holding.
One in five women in the uk will have to have a hysterectomy at some point in their lives.
Come and join us if you are waiting, pre op, bleery eyed on the ward or recovering afterwards.

OP posts:
Waitingaround · 05/01/2014 13:07

Ledkr- don't think your wounds should be doing that.
Give the ward another call-make a fuss. You need to be seen (reassurance is required).

The period Type bleeding could in fact be a period.
I bled from 2 weeks till 5 weeks- this was heavy and smelly with increased pain and swelling- turns out I had an infection and ended up on elephant pills!

AnotherStitchInTime · 05/01/2014 15:13

Royal College of Obstetricians and Gynaecologist guidance Ledkr. The weeping wound sounds like it should be checked.

Twinkletights · 05/01/2014 15:31

Ledkr hope that you called the ward and are being seen today.

Well after having doubts on having this surgery my body has given me a blimin good reminder.
I have spent the last few days on my feet cooking to fill the freezer and now I am in incredible pain throughout my lower back, pelvis and top of my legs. Back on the pain relief again Hmm

SantasPelvicFloor · 05/01/2014 15:32

The vaginal bleeding could be normal. I don't think the wound should bleed that much. Your follow up care sounds shoddy

fitflopqueen · 05/01/2014 17:44

Twinkle
I too, am having same op as you in 2 weeks, my consultant is happy to discharge same day but I have requested one nights stay as we live quite rurally.
Perhaps we can share info, I haven't had a pre-op yet.

Has anyone been prescribed routine antibiotics postop? I was given some following previous ablation which caused awful thrush and don't want to take if non essential this time.

Twinkletights · 05/01/2014 18:09

Welcome to the thread fitflopqueen and the waiting sofa Smile

I have not had my pre-op yet either and it would be good to share info as we wait. The ladies on this thread are lovely and supportive.

That is good that you have been able to organise an overnight stay, I am in awe of those who went home the same day.

My consultant has said at least overnight but maybe longer for a hospital stay.

Twinkletights · 05/01/2014 18:11

Ledkr how are you feeling now?

Ledkr · 05/01/2014 18:39

But better in myself but still bleeding heavily vaginally and from one of the sites. I'm not going to bleed to death so will call dr in morning.
Rang word AGAIN. Spoke to hca who says vag bleeding is normal but site prob needs stitching.
As I said, gp tomorrow.
Might not be in to be alone as planned though.
I'm going to enlist a friend.

SantasPelvicFloor · 05/01/2014 18:45

I'm shocked. That's appalling care.

Hi fit flop

Twinkletights · 05/01/2014 18:55

Ledkr that is appalling aftercare and not what you need after an op like that.

Having a friend with you sounds like a good plan. Hope that your GP is more helpful for you.

Ledkr · 05/01/2014 19:38

I'm appalled at the lack of concern shown for my emotional state too.
I'm going to be speaking to pals tomorrow.
Thanks for support today.

Ledkr · 05/01/2014 19:40

The hospital initially rl told me thereby or may not be some bleeding.
I don't think that indicates in any way that I will be filling toilet bowls do you?

gingeme · 05/01/2014 19:43

Good evening ladies. Can I gate crash and ask why you ladies have had the op ? I was diagnosed with endimitriosis about 9 years ago and seemed to have tried everything suggested to relieve it but the past year it has been at its worst Sad I have been told this operation is an option but I dont want to go to my gp to be offered yet another treatment that wont help. I have read up about it and have 2 friends that have had it but one was due to a collapsed womb and ovarían cáncer .

Waitingaround · 05/01/2014 20:18

Hi Gingme- of course you can gate crash Smile I had a total hysterectomy with both ovaries and tubes removed due to adenomyosis and endometriosis. It was the adenomyosis that clinched it for the surgeon, my insides were a total mess though and I required surgery on my bowel too. Feel much better now though!
.I think you should ask for a referral to a specialist.
Good Luck.

Kevinsbowel · 05/01/2014 20:28

Hi fit flop, hi gingme,

ledkr, I am surprised at how heavy the bleeding is but you have kept your uterus which I didn't, so a hell of a lot of blood was removed during my operation and went straight into the incinerator along with the uterus; in your case, if the womb lining is shedding I guess it has to go somewhere.

Gingeme I had very heavy bleeding - think five super plus tampons and three towels a night for at least five nights each time- and was very anaemic. Turned out I was 32 weeks "pregnant" with a cluster of fibroids that had displaced the endometrium and was growing fast. At 52 I was likely to have the menopause soon, so I asked to have the ovaries and tubes done as well, having lost two friends to ovarian cancer.

I had keyhole surgery and made a fast recovery, partly I think as I also got a blood transfusion in theatre which got me back to normal iron levels. My body had adapted to low iron so it kind of celebrated.

fitflop I was done Saturday evening and went home Tuesday morning- partly I waited an extra day to see the surgeon who wasn't around until Monday late afternoon, partly we were trying to stabilise my blood pressure. The surgeon told me she gave me antibiotics in theatre, I didn't take any separately. I didn't have any infections.

I can recommend glue to seal the wounds rather than dressings, it's waterproof so you can have baths and also there is no way it is going to leak.

Kevinsbowel · 05/01/2014 20:32

Ps gingme I can promise that if the womb and its lining are in the hospital incinerator, you most certainly won't be getting any more endometriosis. :). I have to say I have loved loved loved not having periods from hell and I haven't had any regrets- but I also had an easy ride and much bet after are than ledkr in particular...

Perhaps it is the moment to confess that I used my work BUPA cover and went private Blush I don't usually go private, but I couldn't wait six months with a 20% chance of cancellation, which was the alternative round here.

Kevinsbowel · 05/01/2014 20:36

Sorry gingme, in detail I had womb, ovaries and tubes out but kept the cervix so that I had some chance of preserving my pelvic floor, all done by keyhole, with a blood transfusion ( just two units, but hey every little helps) . If you are very anaemic I can so recommend getting your transfusion done during the operation. You know nothing about it, and it gives a real boost to your recovery.

gingeme · 05/01/2014 20:40

Thankyou. Yes I am very anemic and have very very heavy periods too. I could quite happily go to bed at 3 pm some days . Ive got 5 boys so definately havnt got more babies to worry about concievingWink . Ive Seen a gynea who bless her tried everything to relieve symptoms but just want it over Sad

Kevinsbowel · 05/01/2014 21:55

Well I haven't regretted it for one second. Do ask for a blood transfusion in surgery, you will wake up feeling fantastic. Even with the post OP stuff.

SantasPelvicFloor · 05/01/2014 21:57

In your shoes I'd have a full hysterectomy gingeme

Hope ledkr is ok

Kevinsbowel · 05/01/2014 21:59

I'd have a subtotal, ie keep the cervix, though.

Yes, poor ledkr :(

How Are you Santa?

Kevinsbowel · 05/01/2014 22:00

Ps back to work tomorrow waaaaaahhhhhhhhh!!!!!!!!!

I have had to set the alarm, I am in shock, I haven't done that for seven weeks.

gingeme · 05/01/2014 22:06

What are the differencies and advantages ? Do I just say I want ......?

Kevinsbowel · 05/01/2014 22:09

Talk to a proper gynae surgeon. Ask your GP,to refer you to one. Keeping your cervix means that your pelvic floor is protected so you are less likely to end up as a smelly old lady. After five kids that's a consideration.

gingeme · 05/01/2014 22:12

Lol thankyou. I definately dont want to be a smelly old lady for sure Blush