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Possible arthritis in collarbone??

11 replies

Icantstopeatinglol · 09/12/2013 21:41

Hi all, I was diagnosed with psoriatic arthritis roughly one year ago and since then I've had numerous problems.
I'm currently on methotrexate and a strong anti inflammatory however today my collarbone has gradually became very painful to the point I can't bear to just let the weight of my arm hang as its so painful so I'm constantly tensing my shoulder. I've took codeine and paracetamol and its still just as bad. I've also tried a heat pack but no change! I'm counting down the minutes to half eleven so I can take more codeine (a higher dose too!!). I've never felt pain like this, it's unbearable!
Help!!!

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Icantstopeatinglol · 10/12/2013 07:39

bump....

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nothruroad · 10/12/2013 07:42

I have rheumatoid arthritis and often get this. My rheumatologist and physio have said it is referred pain from my soldier. Strangely I often get the pain here before I get a cold or virus, it's like my warning sign. Could you see if you can get a steroid injection? Are you under the care of a rheumatologist?

nothruroad · 10/12/2013 07:42

Forgot to say - hope you feel better soon.

MarcelineTheVampireQueen · 10/12/2013 07:45

That's most likely your shoulder joint. And the pain is expanding. How you getting on with the psa? Are you on meds, biologics, how are they treating you ?

Icantstopeatinglol · 10/12/2013 18:33

Thanks nothruroad, I've been on to my hospital and they've asked me to come in tomorrow. Fingers crossed for a steroid jab!!!

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Icantstopeatinglol · 10/12/2013 18:37

Hi marcelene, not great to be honest. Been on methotrexate about 5/6 months now and still getting new symptoms. Don't feel like they're working and worried about joint damage but I see my consultant next week so fingers crossed they have something different to try. The only thing I have realised is if I don't take my anti inflammatory every night I'm in agony the next day. This shoulder pain is the worst though, my arms felt dead all day and my muscles have been hurting too. Hopefully they'll sort me our tomorrow.

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wonkylegs · 10/12/2013 18:45

I'm another one with RA who gets pain there in a flare.
I always know when I've not taken my AIs, I'm on MTX but with Humira (anti tnf) which has made a massive difference. The main problem with anti-tnfs is you have to have severe disease that's failed on other treatments first so it can take a while to get to them.
I feel for you, I hate that moment when you are counting down the moments til the next painkiller.
All I can suggest is warm baths, hot water bottle (mines in a furry cover which somehow makes it even better), distractions - I'd love to sleep when I'm like that as I find it exhausting but I can't so I plough through boxsets, books and films or phone a friend fir a giggle or my dad for gossip to try and distract me from the pain.

Icantstopeatinglol · 10/12/2013 18:49

Hi wonky, I've tried sulfasalazine and now methotrexate so hoping for something else! I'm going to ask if I can get methotrexate via injection too if they keep me on it cos it makes me really sick just physically taking it! Hate it so much!
I feel like an old lady and its starting to really get me down.

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candycoatedwaterdrops · 10/12/2013 21:45

I used to get collar bone pain, it turned out to be referred shoulder pain.

There are a few other DMARDs to try but if I were you, I'd push for an anti TNF. It's really changed my life. :)

My RA was uncontrolled and raging for nearly 4 years and 3 months on an anti TNF has got my functioning again.

candycoatedwaterdrops · 10/12/2013 21:46

*me

I really feel for you. Inflammatory arthritis is so horrible. Sad

Flowers
Icantstopeatinglol · 10/12/2013 22:21

Thanks candycoat, I have heard of the anti TNF drugs and they do sound more like they target the actual problem rather than just dampening down the immune system.
Hope the consultant advises it rather than me having to beg!
I just feel gutted that I can't just live a normal life. I know it could be worse but it just makes me sad my body is so shit!
Thanks for the advice.

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