Right this morning I was told I have epilepsy - just ranting

[thefuturesnotourstosee]

Fifteen years ago they told me I was making it up following tests and actually told my mum I had munchausans. No follow up. Nine years ago I was told it was psychosomatic (i.e. I'm making it up). Again no follow up just made to feel I was wasting tim.

This year I finally pulled together enough courage to go back and ask again for help. My GP referred me to a neurologist who looked back through my records and said "i don't think you're making it up, I'm going to find out whats wrong with you there are loads of tests they should have done that they didn't".

Since then I've had blood tests, urine tests, 3 EEGs 2 were sleep deprived which had never been done before and this morning I went to see him and was told "you definately had epilepsy, you've probably had it for years and its my job to sort it out".

I'm still breastfeeding DS. He's told me to take 4 months to wean him and said he'll see me again in March or April to look at medicating me.

I feel so shocked, frightened and above all relieved. I really believed I was mad and now I find I'm not.

Not really sure what the point of this post is. I suppose I'm saying if you feel the medics are ignoring you or not following through properly please don't be afraid to go back

I'm glad you've finally found the answer to your problem, it's awful that you've been fobbed off all those years.

Best of luck & hugs

How could they be so cruel as to say you were making it up. I know people with epliepsy it's not something you would fake! Hope you start getting the help you deserve x

Thank you both of you.

I think I've gone through relief and started feeling angry. Very confused :( I wish I'd pushed more years ago though its my own fault for taking their word for it. Its only down to DP that I went back he made me

Hugs to you. We spent 4 years telling doctors that we were sure that our son had epilepsy - after hundreds of night seizures he finally had one in the day time and he got diagnosed with epilepsy.

Unfortunately I was just recovering from a c-section at the time and it tipped me into quite bad depression (I thought he had died in my arms). I still feel furious with those bloody 'we know best' doctors so I do feel your pain.

At least you are ok. I read a while ago about a young girl being told she didn't have epilepsy because she'd only had one seizure that had been seen. She had another in the bath and died. :( Just thank god that you are still ok xxxxxx. My deepest sympathies to you as we have been through something similar ourselves and know your anger.