My ulcers are back again!

[KatyMac]

After 6 weeks of steroids - less than 3 weeks off & I have ulcers again

Bugger

& again

it's getting boring - I wonder how long I should take the steroids this time

Mouth ulcers or stomach?

Have you tried l-lysine?

Mouth

l-lysine - not yet I have a list of things to try & it's on the list (multi vits didn't work)

I wondered if it was cyclical but I guess not as it's only been a couple of weeks

Poor you. My mum gets horrendous ones and it's so painful for her .

People who don't get them don't realise how awful they are. Interested in any treatments that work - nothing OTC goes near them.

Honestly try the lysine. A life time of the fuckers banished without return. I take a b vit too but the lysine is the business.

Out of curiosity, do you have any other symptoms (such as dry eyes/mouth) ? Or a known connective tissue issue? Repeated mouth ulcers with other signs such as dryness can point to an autoimmune disorder / connective tissue disease that requires a referral for diagnosis, treatment & management.

Not to scare you at all (or diagnose you over the interweb!!). Just suggesting an avenue to explore if you do have other issues.

I have Fibromyalgia (FM), Chronic Fatigue Syndrome (CFS/ME) & IBS........my dad says I have galloping acronyms; I also get salivary stones and have changed my diet recently (I went FODMAP which has been hard)

Are you already under the care of a rheumatologist for your FM?

Lol @ galloping acronyms

No they diagnosed it & told me to take painkillers & antidepressents - oh & to have 3 20 minutes baths each day (tricky to manage but it helps)

So I take the painkillers when I really can't cope, my main pain is early morning & of course I can't take a painkiller early enough to stop it as I'm asleep then

Bath advice is not very practical in RL Glad it gives you some relief though.

As for the pain advice - set your alarm !

Seriously though, other than (brilliant!) lifestyle and pain management advice there's not much that can be done by rheum for fm in the long term.

Obv your GP is aware of all of your co-morbidities and so will (hopefully!) be joining the dots (if there any to be joined) if you see them regularly enough.

Good luck with the supplement

Nope - I don't go anymore

For 4 years (documented) I went about 6 monthly for hand & foot pain & was sent away with 'depression' or 'viral arthritis' before insisting on a specialist appt (my dad has ankolysing spondilitis and 5 lots of back surgery & my brother severe RA - he is on chemo drugs, my mum has pernicious anaemia). I had a 10 min appt and was sent away