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*Tamoxigang Christmas Party* - 45

979 replies

Tiny100 · 28/11/2013 10:58

Morning All!

We're nearly in December, so let's get the festivities started.

[adds mince pies to the trolley]

OP posts:
malteserzz · 11/12/2013 20:32

Mom really pleased for you !
I've taken your place in hospital hopefully just for the night as I feel fine but they want to keep an eye on the drain overnight for some reason

hoosyermama · 11/12/2013 20:52

Hello, this is my first time on this thread and I'm looking for company of others in a similar position to me; I think I've come to the right place? A week ago I was diagnosed with grade 3 invasive ductal carcinoma. I'm 42 and have a DP, DD (7) and DS (2). I was still breastfeeding him and have had to stop that abruptly, I think as much of the emotion and tears so far has been over that as over the shock of the news. I wasn't prepared for this news (are you ever?) as the consultant was convinced it was a fibroedenoma and the ultrasound and needle aspiration pointed to the same but due to a lot of "cellular activity" it was decided to take a core biopsy - that brought the result. So far had titanium marker, ultrasound and mammogram but neither scan has shown the lump in enough detail so awaiting MRI. Had MUGA scan today in prep for chemo. Also having a sentinal lymph node biopsy next week so should have results for Xmas week. Been told I'll be having chemo, surgery and radiotherapy. That's all I know so far. Still getting my head around it all and feel I'm getting stronger by the day (with the odd wobbly moment usually regarding the kids) but not sure how prepared I'll be for next phase. Sorry for the self indulgent post, just looking for company as I begin this journey :)

reallyreallyworried · 11/12/2013 21:06

Hi malt glad it's done. Enjoy a nice rest for the night, hopefully you will escape tomorrow xx

Welcome hoosy sorry you find yourself here, but it's a great group of ladies, I am sure you will find an answer to any questions you might have. Or if you just want a place to share your thoughts and feelings.

Sorry for brief post, but I am knackered. Heading to bed NOW!!!

Hope everyone had a good day. mom glad your home xx

kitkat1967 · 11/12/2013 21:07

Good to hear from you Malt - shame you have to stay in overnight but glad all is well.

Great news Mom - glad you are finally being released. Hope going home does not impact too much on your Downton watching though!!

Welcome hoosy - sorry you have to join us but we're a friendly bunch. Many of us have/had BC but a few have other cancers. You sound like you're doing really well even though tests and wating for results is often the hardest bit. Let us know when you have a date for your sentinal node biopsy - many of us have had that procedure and it should be striaght forward - possibly with an overnight stay.

My lump did not show up on an ultrasound or mammogram so I had an MRI - I've 2 now - and apart from having to stay still for about 40 mins they are OK. It sounds like you are going to have chemo before lumpectomy/mx - is that what you think or have you not had that info yet?
A few of us (not me) have also had to stop breastfeeding so you are not alone and undoubtably someone will come and chat about that with you.

weebarra · 11/12/2013 21:21

Great news mom, the neulasta injectiob is great - I get to do mine myself. Glad all went well malt.
And hello hoos - I'm one of those who had to stop bfing, although my DD was only about 8 weeks when I was diagnosed. I also have a 3 yr old DS (who I bfed till 2) and a nearly 6 yr old DS.
I'm doing it in your order too, I think: chemo, surgery, radiotherapy. I'm on my second cycle of chemo, things have been ok so far!

trice · 11/12/2013 22:25

Hurrah for Mom getting released.

Malt, glad you are done and OK.

Hoosy, sorry to hear your news. I had to give up breast feeding too. It was an extra stress and sadness, so I feel for you.

I had my ct scan results yesterday. My lung is a bit scarred and there is still a bit of fluid but not enough to operate on thank goodness. So I am off the capecitabene and onto the hormone therapy for three months. Yippee! I had a couple of glasses of champagne to celebrate then had to lie down for a bit.

kitkat1967 · 11/12/2013 22:44

well done Trice - that's good news - also nice to have a break from chemo for a while.

BetsyBoop · 12/12/2013 06:39

Trice that is fab news :)

Welcome hopsy, though sorry you find yourself here.

BetsyBoop · 12/12/2013 06:42

hopsy hoosy damn iPad autocorrect Blush

malteserzz · 12/12/2013 06:48

Hoos welcome though sorry you find yourself here. Rest assured we will help you all we can and hold your hand through it all. Ask anything however daft or gloomy it doesn't matter

Trice good news :)

Survived my night in hospital, glad they got me a single room as my mouth was so dry I drank lots of water and did lots of loo trips without feeling I was disturbing anyone. Very quiet too. Nurses are lovely nothing is too much trouble. My drain seems fine and oxygen was a bit low but find this morning so hoping they don't find any reason to keep me in

Hope everyone has a good day

malteserzz · 12/12/2013 06:56

And after the 15 year old the other day one lady on my ward yesterday was 84 and the other looked similar which just shows BC can hit at any age :(

kitkat1967 · 12/12/2013 07:01

Hi Malt - glad you're still well. Will you be going home with your drain or might it come out today?

malteserzz · 12/12/2013 07:07

I've got to take it home with me and ring each day to say how much it's drained, then they'll decide when it comes out

Wren48 · 12/12/2013 08:29

Glad the op went ahead, malt, and a single room sounds great. Hope you're speeding home soon.

Hi there hoos, and welcome. Sorry that you have to be here. You must be in great shock, particularly with the loss of the breast feeding and grieving for that as well. Although I feel like I've been in this situation forever now, I'm still in the early stages of treatment and, like you, have lots more information to come. I had a lump removed. This didn't do the trick, so I have a mastectomy/ lymph node removal and chemo to come. Waiting for treatment to start and for the results is not much fun; be kind to yourself.

malteserzz · 12/12/2013 13:42

I'm home :)
Won't get the results till after Christmas so going to do my best to have a nice Christmas and worry about it after that. That's the plan anyway !

Marshy · 12/12/2013 15:40

Good to see you home malt and mom also. Hope you don't have your drain for too long.

Not much news from me. Felt shattered after lovely visit to dd earlier this week so have been taking it easy the last couple of days.

Waving to everyone.

Gigondas · 12/12/2013 19:37

Hi all and welcome hoos. Malt so glad you are home. Wobble here if need be while you wait on results.

Shattered but loved big gig in her carol concert. Settling down for evening in front of tv.

MomOfTwoGirls2 · 12/12/2013 21:43

It is nice to be back home, and sleep in my own bed!

I've got to give myself injection of Neupogen daily until Monday, when I got back to get bloods checked again.

But my next chemo has been moved out a week, so I have it 2pm on Monday of Christmas week. Coming Monday would have been more convenient. But I guess my body needs time to recover.

We do Christmas at home on our own, no relatives closeby, and my girls refuse to travel for Christmas. But since my husband is vegetarian and DDs have never been too excited about Christmas dinner, preferring to continue playing with their new stuff than sit and eat, I guess I'll make do. Bummer though. (Oh, and DH or DDs can't cook...)

hoosyermama · 12/12/2013 21:48

Hello everyone, thanks for being so lovely and welcoming, I look forward to getting to know you, albeit under these circumstances but we are a lot more than just the circumstances! I will have a lot of questions, thanks for making me comfortable to ask, I'm sure I'll learn from all of you too and hopefully give back some of my own experiences. Kit the date for the sentinal lymph node biopsy is next Fri 20th, I'll be a day case apparently. Good to hear others also have MRI, it sounds ok like you say but still a long time to stay still! Yes the plan as I know it so far is 6 sessions of chemo every 3 weeks, surgery (whatever that will entail) then radiotherapy. It's good to hear of others treatment plans and compare notes so to speak. Weebarra I empathise so much, how awful for you having to go through this and stop BF a baby of 8 weeks, I really can't complain, my DS had a good innings. He is adapting well bless him but I'm having to separate myself from him at night (ie sleep on sofa) to ease the transition. He's at his granny's tonight which is a first! Him coping means I am much more able to cope so things have got easier as the week has gone on. Yes we are having treatment in same order, I guess they want to reduce the size before going in with surgery? Wren it sounds like we are at a similar stage with waiting but you have been on the conveyer belt a bit longer? I'm so sorry to hear that the lumpectomy wasn't enough and you have more surgery to come. I hope you get dates soon. I got more info today - oncologist on 30 Dec so I now know chemo won't begin until after new year (I was speculating it would be around Xmas but everything seems to stop for Xmas even in hospitals!). Also being called for CT scan next week - invited to take part in a study and thought what the heck. I'm feeling much much stronger than a week ago, I think this is the longest journey I've ever taken in one week. I have gloomy moments but try to push them away. Apart from that TIRED. We'll try to focus on a merry Xmas before the whole shebang begins! Sorry for over long post, future ones will be shorter! Thanks so much :) xxx

foofooyeah · 13/12/2013 06:58

Welcome hoos I have same treatment plan as you and finish chemo on 31 dec. it's been fine. Only cycle 5 knocked me out for a bit. Everyone reacts differently so just see how it goes.

I'm off out for works Christmas lunch today! Plenty of wine for me :-)

kitkat1967 · 13/12/2013 07:18

hossyer - that's good that you've been invited to take part in a study - that usually means that you get a lot more monitoring longer term which can only be a good thing. When you have the details you must tell what your study is for.
Glad it's well with weaning your DS. Also starting chemo in the new Year sounds sensible - be warned though that once you see the onc chemo can start very quickly (not always though).

Gigs - glad you made it to big Gigs concert - things like that are one-offs - especially when they are little Hope you had a quiet evenig and that mini didn't have any parties planned in the night.

foo - I can't believe you have chemo 6 planned for New Years Eve - still I guess that means you should be OK for Christmas week. No big parties for you on New Years Eve though I guess?? But of course you'll be able to raise a glass to finishing chemo Wine.

Mom - that's tough getting your chemo 2 days before Xmas - are you all organised with pressies etc.? It sounds like your DH is going to have to take over the cooking and spend the day pampig you.

Malt - good to hear that athough your drains are annoying you you feel well, I'm guessing you will have had the challenge of sleeping on your back last night though (I hate having to do that).

Goodness - I've just had an Amazon delivery - good job I was up (as had to get the kids off for their bus) - but did have to answer the door with scary hair and in my dressing gown. I usually try to avoid inflicting the tuffty head look to anyone not in my immediate family.

GoodbyeRubyTuesday · 13/12/2013 08:12

Mom good you're out but a shame chemo will be so near Christmas. Is there nothing your DH can cook, even if not very Christmassy? We are vegetarian too and one year had something with oven chips for Christmas dinner as we all had the flu. Otherwise could you get Christmas bits and bobs from M&S instead?

kitkat I'm sure the postman didn't even notice, he will have seen much worse. Like my parents' tubby neighbour who never seems to have a shirt on Hmm

gigs good you made it to the concert, well done big gigs

hoosy yes trials are fab for aftercare and extra support. I was invited to one but as it involved having half as much chemo I declined, but the support I got while deciding was fab, and the research nurse continued to support me even after I'd said no to the trial :)

Anyway I think about you all lots but don't post much as my experience isn't really very helpful! I will swoop in if anyone with bowel cancer appears though Grin have a lovely day everyone x

malteserzz · 13/12/2013 09:38

Very envious of foo foos boozy lunch !
Sofa day for me with drain and cough but am ok
Hoping everyone has a good day are we all ready for Christmas not long now Smile

foofooyeah · 13/12/2013 09:51

kitkat I chose New Year's Eve in preference to Christmas Eve .... Bcn suggested I bring g&t with me.

ruby tubby neighbour made me snort [ grin]

Gigondas · 13/12/2013 10:39

I have chemo on Monday before mad too mom. So its easy m and s lunch here as don't want dh doing it all .

got a scan to see how chemo going later - very nervous so all good vibes etc appreciated.

Big gig painful as tired - thankfully she breaks up today

Big hugs for ruby --nice to hear from you .