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Do I have ovarian cancer?

12 replies

Ames123 · 07/11/2013 19:17

Please ladies help me.
I'm terrified, had a misscarriage in April, d&c and then no period for three months, scan showed rpoc, had second d&c and still have had no periods, yet intense period pain, pain at ovulation, trapped win in uterus, bloating and ovarian pain. Have had scan and been put back onto pill for three months to regulate period. Scan showed right ovary bulky and sticking to back of my wall( but not adhered) and left ovary had a 11mm cyst. I have had constant pain in ovaries for two week nearly now,constant tiredness, along with trapped wind down below, and pain when I urinate.

My question is, would the sonographer have been able to distinguish if cyst was cancerous or can this only be done by a biopsy? Either way my gp has said he doesn't see why a cyst of this size would be causing my so much constant pain? I'm so scared, I'm 28 and I know ovarian cancer is rare under 50s but it's not impossible.
Can anyone help with any advice, I'm currently not sleeping with worry and pain. All I want is a brother or sister for my daughter
X

OP posts:
ohmeohmyforgotlogin · 07/11/2013 19:22

Sounds like you need investigations for this. Sadly there are too many cases of people not being diagnosed because doctors don't believe it happens in their age group. Get referral, if not cancer something is causing your symptoms and needs to be treated. Good luck

NorthernLurker · 07/11/2013 19:31

Right now then have a . You've been through an awful lot recently and nobody on the web can tell you what you do or don't have. What I can say though is:

Ovarian cancer is VERY rare in women your age. Especially those who've had a child.

You're constantly tired - well you say you're not sleeping so tiredness is inevitable but also you've had two ops in the last few months. Your body must be pretty sapped tbh.

Pain on urination - a uti would explain a lot of your symptoms too and again would fit with you being generally run down as well. Have you had a urine sample tested?

The ovarian pain/cyst issues. I'm sure your GP os doing tehir best to be helpful but they aren't a gynae specialist and they aren't you. Everybody's response to pain is different. It may not make sense to him but it's what you are experiencing.

Anxiety - anxiety can really screw your body up. It has a physical presence as much as a mental one. When my bil was diagnosed as terminally ill and died I developed constipation and a twitch. Honestly! You couldn't make it up. Your gut and your head are incredibly cloesly linked and are feeding off each other. Twinge of trapped wind and you worry so your gut cramps up some more so you worry more.

I think you need a chat with another GP, possibly a female one? Get checked out for a uti and possibly you might want to talk about a gynae referral to discuss the state of your ovaries. Not because I think you've got cancer. I'm sure you haven't, but because you want a baby and your body's taken a battering. I think you need to explore how you can manage your anxiety. Your GP may be able to help with that and then there's the old chesnut of exercise. Exercise makes endorphins which make you feel better and exercise can help with grumbling guts too. Distracts you if nothing else. What about swimming? I love that now. Fab way to get a bit of head space - leave dd with partner or family!

The other thing you might need to do is find a bit of time yo mourn the baby you lost. It sounds a bit like you've been from one thing to another ever since. I wonder if you've had no time to gently mourn the loss of your dreams and excitement for that baby? Even something as simple as planting a rose bush or other nice plant to mark the loss might help you be at peace with it?

Dirtymistress · 07/11/2013 19:31

Please be determined in seeking a proper diagnosis. Put up a fight. Ovarian cancer is a terrible disease, I lost a very dear friend to it at 40.

Ames123 · 07/11/2013 22:04

Hank you all so much for your replies.
Northern lurker what a kind and thorough reply. I actually had a little cry upon reading it. Your right I have had no closure on losing my baby as this has just been a year of one thing after another, and knowing I'm not right and having to pester and harass to be told what it is. Also ending up going privately and spending over £3000 to have second d&c. I just want clarity so I can move on, even if there is something wrong I want to know what it is and get on with getting it better. Go has given me Mefanemic acid tabs toady which is used for menstral pain and also buscopan for the trapped wind and he said if I can try and see how I get on until my next appointment with gynae consultant but I just don't like taking pain relief when I don't know why I'm in pain, hence anxiety, and the cycle begins again!
Dirtymistress so sorry to hear for your friend, this makes me want to be sick thinking I could have it!

OP posts:
NorthernLurker · 07/11/2013 22:42

Try taking the pain meds regularly for a day or two and see if you can get control of the pain that way, then you can gradually take less. If you can just break the cycle I think you will start to feel a bit better. I'm glad you found my reply helpful. Tbh it just jumped out at me from your post that in everything you've gone through there would be no time for the grief you need to process. I hope you feel better soon.

Ames123 · 13/11/2013 11:23

Hi, I had the blood test done for polycystic ovaries and ca125(ovarian cancer) back yesterday and they both fine, ca125 is 6 and is normally over 25 if ovarian cancer, although elevated levels only show up in 75% of women with the cancer, I just have to hope it am in the 75%.
I still have all the pain symptoms, gp has sent a letter to push my apt with gynae through sooner for a laparoscopy to see what is cussing pain. I am still terrified it is cancer as my symptoms match it so much.
Anyone else had this ca125 test? Also gp told me there are 10 cysts at 11mm each, but still not polycystic, could these be causing the pain?

OP posts:
jillj · 13/11/2013 20:18

I had the CA125 test a few weeks ago and mine was elevated (36). I also have a cyst on my left ovary which had a echo on it. Needless to say, I started panicking straight away thinking it was cancer, especially as my mother died of ovarian cancer. My GP referred me to a gyn as an urgent case due to all of these factors. I had the appointment today & he told me that it's not cancer. He thinks it an endometrial cyst which is harmless. His advice is to still have it removed but has told me to think about it over the weekend. The alternative is to leave if for a couple of months & see if it disappears on its own.

I guess this is my long winded way of saying even when everything is pointing towards cancer, the chances are it will be something quite harmless. I'd definitely ask to see a gyn - they are the experts & I'm sure will put your mind at rest.

Good luck Hun! X

Ames123 · 13/11/2013 21:33

Wow great news for you jillj! Do you have the symptoms of it? That's what is scaring me the most, that no body can tell me why I have pain! It's so frustrating and I literally a not stop going to the toilet. Do you have this, I have been back to gp today and defo not an infection! Thank you for replying to me, it's nice to know I'm not the only one.

OP posts:
jillj · 14/11/2013 21:55

Hi Ames123, luckily, I've no symptoms at all with this cyst. However, I was diagnosed with endometriosis about 10 years ago & my symptoms back then were very similar to yours. I was in excrutiating pain during my period. Some days I couldnt even get out of bed as doubled up. I had a dull pain in my bowels for a couple of days each month, constant tiredness & nausea. They suspected endo and did a laparoscopy to confirm the diagnosis. When they went in they said my ovaries were stuck down with endometrium. Has you GP considered endometriosis as its very common for this condition to cause cysts?. I also know that bladder endometriosis also causes frequent urination. I'd insist on a referral to a gyn just to put your mind at rest. Don't worry - you'll be fine!

mintymellons · 15/11/2013 13:03

I don't know if this helps, but I had several months of unexplained (to this day) pain in my lower abdomen.

It seemed to begin after I had a very early, natural miscarriage. The pain was like a period cramp and sometimes it radiated through to my back too. I went to GP so many times and was treated for a cyst, told it was bowel related and a couple of other things. It went on for several months and really wore me down. I used those heat patch things which helped a little. In my case, it was better when I was resting and much worse when busy/active.

I eventually had a scan of my ovaries/uterus and they found nothing.

The pain went of its own accord and has never returned.

I hope you get to the bottom of yours. Good luck x

Matildathecat · 15/11/2013 14:01

OP,

Your original question was, I think about the ultrasound appearance of ovarian cysts? The answer is, I think, yes. Benign and cancerous cyst do have visual differences in their structure and blood supply.

Of course only an expert could analyse the differences and only a biopsy could diagnose cancer. If the sonographer had any doubts they would be getting advice. They do store all the images.

Do remember it is entirely normal for cysts to form and disappear as we ovulate. Having had a miscarriage your hormones are in disarray. I'm assuming infection has been ruled out as a cause of pain?

Lastly, not only is ovarian cancer very rare in the young, it is also often called 'the silent' cancer as often there are few symptoms until it is advanced.

Hope you feel better soon.

Ames123 · 15/11/2013 22:04

Thank you all so much for your replies. It helps enormously to try to relieve the worry and distress all this is causing me. It's gotten so bad that it is completely consuming my life as if losing a child isn't hard enough. I am waiting to hear back from gynae to see if he will agree to expedite my appointment sooner based of letter sent from my gp. I had aid for the same consultant to perform the hysteroscopy and second d&c and now when it comes to him seeing to me via nhs he isn't as forthcoming! Didn't expect any less though to be honest!
Xx

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