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The Back Story

999 replies

Matildathecat · 03/10/2013 16:02

Hi to all fellow back sufferers. I've been on Spooning for a while but don't really feel I fit as I'm not actually ill, just have a chronic (and permanent) back injury. So please post here, no niggle too small. We can share experiences, tips and moans!

Quick history, age 48, last year had sudden crippling back pain eventually diagnosed as disc prolapse L4/5. All conventional treatments tried and failed so had micro discectomy privately.

No progress, and much worse leg pain followed. V long story short was finally seen by second neurosurgeon who diagnosed severe scarring around the nerve root as a result of the surgery. Poor outlook for surgery but we gave it a go, so had second op with similar lack of progress and final MRI showed even worse scarring. Only option chronic pain management . Had several injections with not much effect...

So, permanently disabled, use a stick, endless drugs and a lovely blue badge. Along the way dismissed from career of 25years for ill health.

Sorry, it's a grim story, but hey, I'm ok. Not depressed, have an okish quality of life with the help of my fantastic husband and friends. I walk, albeit slowly and not far, swim a bit and can please myself. Luckily my boys are young adults.

So come along and share. Moans and groans ok, tips and recommendations welcome.

Just don't tell me to see your lovely chiropractor, I might just punch you!(wink)

OP posts:
livelablove · 05/02/2014 23:41

That's a lot of drugs goodness as you say it is a good thing you are with it and can manage them, it could easily cause problems for someone less able. I do think it is bad they are sending you home so soon in a lot of ways, but you will be happy to be with your family. I hope your pain is under control tonight.
Hoping for a good day for everyone tomorrow.

Matildathecat · 06/02/2014 01:05

goodness, that makes me so mad! all of it! just leaving you to sort yourself out. No meds, no physio, probably no GP letter for ages. Lucky we are savvy enough to do it for ourselves.

Had a look through your meds. Yes it's a lot but they are all complementing one another so don't try skipping things just yet. Did they go through a reducing plan? No, don't be stupid! After my first op the anaesthetist did do this and essentially, it was reduce opioids first ( in your case probably replacing oxycodone with cocodamol first or similar), then reduce the nerve meds then finally the antinflammatories. Eventually your bowels will behave and the need for so much help there will reduce, too.

Shame that instead of reclining on your bed, surrounded by flowers and sweet, quiet visitors you were sorting that little episode out.

Really hope the next few days are Peaceful. Capital P intended!

OP posts:
Matildathecat · 06/02/2014 01:43

Oh dear. A tale of Mortification. Don't read if fragile or of a queasy disposition.

So, here I am, far from home, tons of constipating meds. Despite my best efforts my bowels shut up shop. I didn't panic, just swallowed my lactulose and senna like a good girl and was both pleased and relieved when, after five days, It Happens. Well.

So, time to flush, but no! OMG, No! it won't flush away! it's too big...

Well, I'm not going to bore you with the details. I'm just immensely glad that I have my own bathroom here and I will probably never meet the lovely maid again. I will be leaving a generous tip.Blush

OP posts:
GoodnessKnows · 06/02/2014 07:50

Matilda. Feeling for you (and your long-imrisoned poo)! Lol
Mine wasn't 'released' for 6 days. When it was, it was as the sight of Kate Middleton. I shall never think of her in quite the same way again. Try it next time! Stick her pic up on your wall.
On a completely serious note, at least (I'm assuming here) you didn't develop haemorrhoids and skin tags as a result! I did. Now I'm absolutely terrified of doing a poo. I feel I need to quite often but it's those haemorrhoids trying to trick me and pop out for a balloon party. Lol
Yet another problem I didn't have before hospitalisation. Call it a going home pressie. Bunch of balloons.

I'm getting so used to feeling utterly degraded. I've lost all sense of who I should and shouldn't be talking to about my poos, balloons, wees, etc. I tended to tell everyone: registrar, Physio, DH's elderly aunt. Tbh that was my news and the most important thjng to sort out. My consultant clearly didn't want to have a look. Somebody take them away! Lol
Will go to GP at some point. Maybe tomorrow.
Hope you're feeling better post-poo. What a relief indeed.

GoodnessKnows · 06/02/2014 07:57

Thank you love and Matilda - just read your lovely responses to me.
I slept
I slept
I slept 'til 6.30am
Took just one oxyNorm on waking.
Sooooo happy Grin
DH is too as told me he couldn't tolerate the half hourly wakings. Hmm
Nope. No plan for reduction was 'shared'
They do seem to assume you'll be able to make a timetable of drugs once they throw them all at you. I've done well but there are, as you said, so many! 10 at night (after 10pm)
Taken 2 already this morning and ... Oops
Just realised that already taken thyroxine but have also put it in my morning pill section. One can, indeed be too organised!

GoodnessKnows · 06/02/2014 07:58

Oh Lordy lord. Hope I can spot the bugger

Matildathecat · 06/02/2014 08:58

Sleep is very healing. Probably much better quality sleep than in hospital, too.

Hope you can rest again today.

Btw, don't know if anyone mentioned this but do take the paracetamol, it greatly enhances the effect of the opiates therefore reducing the need for as much opiate.

Bet that's another thing they didn't say. Sad

OP posts:
livelablove · 06/02/2014 09:01

Oh no matilda that is awful. Honestly it is the second worst thing about having back problems, that the meds seem to cause this problem very often. Its painful and embarrassing. We just don't need it!

I had my own digestion related problems, as that big rich meal did not agree with me. Serves me right probably! I thought it might be food poisoning at first but we all ate the same but only I felt bad. Maybe my stomach is a bit delicate from meds, will have to watch what I eat more sensibly. Am still feeling a bit queasy now. I am supposed to be working today and have physio after but don't feel like it.

goodness glad you got some sleep! I think being home will help now you have your meds sorted, well I hope so. How is your DS doing? Just take it easy.

LostInWales · 06/02/2014 12:49

Goodness a full nights sleep is brilliant, well done on the pill organisation (we'll ignore the thyroxine Wink). Feel free to kick your DH on my behalf if you can do it without damaging yourself. You are doing amazingly well if you think you just had a little 'niggle' a few months ago and have been launched into surgery and the joy of a medicine chest of the good stuff in a really short time. I think most of us here have had a lot more time and have had to fight for everything so have preparation for it.

Matilda it's just the last straw isn't it (makes a special padded bench for the three of us, decorated with party balloons Grin)

I am fed up today, I had an injection into a 'trigger point' just below my left scapula on Monday and initially it was astonishing, a whole lot of the pain in my upper back was gone. Now though, I am sore as ever and I don't know if this will ease or if driving home through awful weather down winding Welsh roads for an hour afterwards has ruined everything? Has anyone else had these. I am having a sofa afternoon anyway, DS2 has his bunfight parents evening and it is competitive queuing with the parents of the other 179 kids in his year to get round all the teachers. I bet there aren't many mums who are currently organising a schedule of extra normal release tramadol and strong coffee just to make sure they can get round without weeping.

GoodnessKnows · 06/02/2014 15:57

Added an extra ducosate-sodium, two x 2 sachets of movicol, a FULL cap of lactalose and a giant glass of prune juice. Squirted some Abusol and ... away I went.
Three times. In varying amounts.
Feeling transformed.

GoodnessKnows · 06/02/2014 15:59

Advice needed please...
My back is itching around the outside of the wound. It started today. I've been told not to apply anything to it. But any advice?

GoodnessKnows · 06/02/2014 16:02

Advice needed please...
My back is itching around the outside of the wound. It started today. I've been told not to apply anything to it. But any advice?

livelablove · 06/02/2014 16:12

Are you allowed to put a cold compress on? If not try holding an ice cube in the hand until it melts, this is a distraction technique I have used with toothache.

livelablove · 06/02/2014 16:18

losty good luck with the parents eve hope you make it round. Is your injection just an anaesthetic or does it also contain a steroid? I was reading the steroid componant can take up to a week to work in an injection that contains both. I haven't had any injections myself that is just what I was reading.

goodness glad all those things had the desired effect! Shows how many drugs you are on!

livelablove · 06/02/2014 16:47

I am feeling a bit better now. Have been to physio. I mentioned it was uncomfortable after last week and she did less of the spinal mobilisation (I think that is correct name). She couldn't find anywhere that brought on my leg pain and this made me realise that my leg is a lot better, i still get pain sitting on a hard chair and in my calf if i squat right down, but that is not too bad. I do still have some numbness but that is only a problem in that i wonder if it shows there is some damage to my nerve. i think although i have had a few little set backs i am improving a lot. I probably need to really work on my exercises and get that new chair. I really want to be confident to drive longer distances, i do find it uncomfortable driving and also think it might have contributed to my bad sciatica episode i am just recovering from.

magso · 06/02/2014 17:53

Goodness -itching could be a sign of healing or if also red sore and hot infection. Can you see the wound?

costababe · 06/02/2014 19:12

lost I had a injection in August this year up under the base of the skull, I had instant relief within half hour, but 3 hours was in agony, but it was the pain from the actual injection, two days later, my pain was dramatically reduced and lasted for around 2.5 months.
Hopefully you will get some relief from yours.

LostInWales · 06/02/2014 19:58

costa that's brilliant to know, thank you so much. It's been heartbreaking finally having a pain free area then having it go away so quickly! I didn't even ask what they were injecting Blush when they asked if I would consider having it done there and then I am ashamed to say I just threw of my dress going 'yes, go for it, NOW, I will try anything' Grin.

Parents evening went well, DS2 is a lovely boy and his teachers were happy with him plus I know how it works now so DH and I have the 'in early - split up - out in under an hour' routine down to a tee now. I had extra 50mg of the four hour tramadol at 2pm and another at 6pm when I got home but I am looking forward to the slow release 100 soon because, oooooccchhh, standing around in queues for an hour is NOT my idea of a good time.

livelab that's brilliant news from your physio, take it easy now, don't get all excited and start can-canning Wink. Driving is horrible for sore backs.

Goodness as long as it's not hot or swollen I think a bit of itching is probably a good sign (as lots of other people have already said!)

PavlovtheCat · 06/02/2014 20:46

live if things are improving and you have the numb patch, I have been told that recovery of the nerve can take up to 18 months, so that numbness may go soon as the nerve repairs itself. but, as losty said already, take it easy still!

matilda just use this next time, it's highly effective! It's pretty much what I was given when I actually thought I was going throw up shit suffered from constipation Grin After taking some medication that I won't ever be touching again, I actually thought, at 2am, laying on the bathroom floor, white as a sheet, dripping with sweat, literally pouring off me, that I was going to die. I honestly lay there, thinking to myself 'please don't let this be it, how fucking embarrassing would that be?' I was more worried about dying on the bathroom floor in a pile of my own shit that I was of actually dying Grin But boy it worked Grin Sorry, that was a lot of probably unnecessary info wasn't it. Hope no-one is eating their dinner. But you know, seeing as we are all friends now and talking about such lovely things, might as well join in Grin

goodness hope things are going ok at home and you have some continued grip on your long meds list, impressive Grin don't worry about addiction, I know it's a fear of yours. Honestly, right now, you need these meds, not want them, or desire them, you have pain that needs to be managed. And in time, you can start the process of weaning/replacing with lesser doses. But NOT too soon. I am so glad that you have had a good first night's sleep. Hope that lasts. I didn't sleep a wink in hospital, but first night home I more passed out than slept, and then the following day I woke briefly to say goodbye to the children going to school/nursery, then fell asleep sitting up, woke at 12pm to DH bringing me lunch. I had something like 14 hours sleep. Unheard of, and likely never to be repeated Grin

losty Have I told you that I am Envy about the injection, but so pleased they offered it, it's as rare as rocking horse shit down this way. I too have heard that it can take a little while for the steroid element to kick in, but once it does, it should last a little while, certainly more than a couple of days.

I called the consultant's secretary yesterday at 4:15pm. She is clearly very embarrassed. She pretended she couldn't hear me at first, then she said 'erm, oh, what number are you on? let me call you back please Mrs Pavlov, I will pop into his office and speak to him, can I call you on this number? thank you' very quickly getting me off the phone. And, did she call me back? no she bloody didn't. What's that all about? Confused I was annoyed as I also wanted to call the pain clinic and ask what the hell is going on with appointments and why the eff am I being, what feels like, ignored now? But I couldn't as I waited for her to call back! And, importantly, I needed to call my hairdresser to arrange fixing my hair, and couldn't and have not been able to make any calls today due to long day at work, school run, swimming lessons, losing my phone...

I am doing ok at work. Pain levels have increased, meds have increased, but I am managing. I am mostly standing up to type. So does the moving about, which when I think about it, I haven't been doing for weeks, so no wonder my pain was improving - you know, sitting, standing, walking, opening a heavy fire door, turning to get into lift without looking like a robot, or forgetting you should avoid the stairs, remember that your paperwork is on your desk when down half a flight of stairs, walking back up the stairs, opening fire doors to get back to desk. And, then, once I have finally got to reception, having gone through 4 doors, due to the security element of our work, we then have to go through 4 doors to get into an interview room, sit down, get up, back through doors, in lift, back to desk, realise I have the alarm for room, walk back downstairs...Grin 8 doors each way that is 16 doors! for one trip to see a client, sometimes I do that 5-6 times a day! no wonder I am knackered! not much work going on here eh? Tomorrow I have to go to a child protection case conference so firstly I cannot be out of it medication wise, and secondly I can't really stand up the whole time! As soon as it's over, I am medicating myself Grin

I need a sofa day. Or a stay-in-bed day. But, DH is off work saturday and doesn't want to waste it, and he is working sunday so no such luck then either. You wouldn't beleive I have just had 3 weeks of work Grin

I have some boring paperwork to do which means I will be here for a while so have a good evening. If I have missed responding to anyone, I am sorry and I post again in a moment I would think once I have noticed Grin

GoodnessKnows · 06/02/2014 20:50

Delighted to announce the birth of not one but five beautiful, healthy poos all born today. Non-identical. Mother doing very well.

GoodnessKnows · 06/02/2014 21:15

Pavlov, so true and made me laugh. Can't remember which parts of what u said because in 3 seconds I'd forgotten and would need to be reminded. What's happened to my brain? Lol can't even blame my meds for the 'memory effect'. It hacienda as soon as I'd been given 'the news'.
Matilda, you giving poo problems too? (Have not read all comments).
My labour plan for overdue poo babies was:

Full caps of lactalose (one morning, one night)
Two Movical, sachets together, twice a day (8am and 12pm)
2x docusate-sodium (can be upped to 3 a day, in one go)
2 x senna, once a day
One large glass of prune juice in the morning
A squirt of Anusol (in the outside of your botty hole - NOT in your mouth)

That should do it.
Obviously, don't go in with all of these. Gradually increase, starting with the senna, if there is no sign of movement.

Goodness Knows why they call me the Poo Doctor. I should change my name!

Get her! Five poos and she thinks she knows it all when really, she knows Jack Shit.

GoodnessKnows · 06/02/2014 21:38

Anyone else been driven madder than mad by the holes at the end of hospital socks? I'm gonna see it together, you just watch me!

livelablove · 06/02/2014 21:39

losty glad you made it round parents evening and good reports for your DS Smile. I laughed at your throwing off dress. Hope it does start helping soon.

pavlov sorry they are still being rubbish at not giving out your results or doing anything helpful. It seems bad you are so tired - esp when you are quite fit and can do an hour on the cross trainer, it must be your pain that is tiring you. Is there any chance of you doing reduced hours at work for a few weeks? Would it be possible to work from home for some of your paperwork?

livelablove · 06/02/2014 21:44

Lol goodness congratulations Grin

LostInWales · 06/02/2014 21:59

goodness congratulations, Thanks Thanks Thanks Grin