Tamoxifen bus shelter -42

[Gigondas]

Dragging trolley onto new thread.

Morning all- sympathy for the early wakers as had bit of disturbed night as kept rolling on my sore arm.

Foofoo- I can see how that would bra sign but am pleased you found the cash.

Malt I just went bald round the house- people stopped commenting after a while (and only got the usual " what a lovely shaped head you have").

Coorong lovely to hear from you.

Can't offer any advice on ops but will hand hold. Hnd i am so pleased you have lovely surgeon - sending you healing vibes. My surgeon is nice (got 6 week post op check today) but a bit mad scientist in appearance and he talks really fast.

Coorong lovely to hear from you and that you are getting on with life
Foo foo how brilliant to find that money !
Picture I don't know that hospital sorry
Gigs how was your genetics appointment ?

Kids off to school so chilling here

Was interesting. - the last test was inconclusive as there is a bit missing on one of my genes that may be relevant to cancer but may just be a blip . They are running a test on my cousin to see if that shows same issue but I suspect if there is a family issue it came from my dads side so not sure if this extra test will show anything.

Anyway it just means that am in the do more tests will see if anything shows up . She did rightly point out that not having brca was good news.

handbags great to get your op so quick

ruby glad your op/check-up went well

hnd I love your Mrs Surgeon, fingers crossed it's sorted this time

gigs - yes good news re brca, but s pain to keep waiting and waiting

malt grr on your behalf re bloody steroids!

to everyone else

Interesting reading all the recon stories, but the more I hear the more I'm sure that the right thing for me is no recon. I'll not say never, but can't see me doing it in the foreseeable future.

Well I spent yesterday throwing up... :( I'd stopped the anti-e's after Tuesday as I did on my first cycle - I only had mild nausea first cycle) so not sure if it was the tax or the tramadol or the anti-biotics (or a combination) causing it this time. Feeling better today, if a little delicate. Onwards and upwards from here hopefully. Only. One. More. To. Go.

hi there coorong nice to see you - I am sooooooooooooooooo envious of your straightforward procedure and so glad you came and posted to give a bit of balance about the success.

I know I am the one person in a year who got all the problems going but still thank my lucky stars I am here to tell the tale.

Oh and forgot to mention - did you see the news that NICE have now approved onctypedx?

betsy we can start a one boobed gang I must say that since I came on this thread I have felt more and more sure I am happy with what I have(n't) got. My chemogang all had the Rolls Royce reconstruction, the three for one mastectomy, tummy tuck and new boob all in the same operation (the Marsden were pioneers and seem to be one of the few offering it even now ) the results are very good and I have regretted I was too wimpy didn't go for the whole hit by a bus effect at the time but I certainly don't feel bothered enough to go through it now. Also how could I have the fun of throwing my prosthesis across the room when pissed

Sorry you have been throwing up, as you say, only one more.

malt honestly it is that first airing of the chemo hair that is the worst, after that, and getting the "you have a lovely shaped head " remarks out of the way then you really lose the self consciousness and forget about it.

picture sorry we were all treated at the Marsden, just a train ride out of Waterloo though (or in South Ken) couldn't recommend it more. You really know everything is cutting edge, and they treat lots of young women.

Speaking of Consultants, mine is a total geek, but a sweet one and has a quiet, not at all arrogant, authority, somehow when he says we will get through this (after scaring you half silly with the facts and stats) you absolutely trust him. He is like one of those men who can't stop tinkering with cars, complete enthusiasm except for him it is for ductal lavage (his big thing) rather than pistons He is also disconcertingly short, after he has been all authoritative and geeky it is a bit of a shock when you stand in front of him and he is staring straight ahead at your boob(s), like an asian Ronnie Corbett

Shooting my appointment was at the marsden and I really liked the whole atmosphere of the place. It is about as far from head nodding as you can get but I like your geek analogy as that was what consultant I saw was like.

Hi all

Haven't been on for a day or two, was enjoying not thinking about things for a bit! As my BCN and Surgeon were away, I thought I may as well enjoy the break from, hospital stuff!!

So I just had a bit of a shock, I received a letter from the hospital with my surgery date It's for Tuesday next week!

I am pleased that I don't have to wait much longer, but I feel so unprepared! I don't know what the surgery involves, how long it will take, etc etc I don't even know how many nodes they removed last time! Or how many had cancer in!

I feel lost!! I am sat here crying. Got half an hour to pull myself together before nursery pick up! My bosses have been great, but she's asking so many questions and I don't know the answers I just want to curl up in a ball and disappear

This is just so hard. See I'm never happy, I was moaning because they weren't doing anything and now I am moaning because I have a date!!

Really, sorry you're upset on the positive side it's good you don't have to wait too long but it would help if you knew exactly what was going on, could you give them a ring ?

Betsy sorry you've been sicky again glad you feel a bit better today.You will be sooo relieved when chemo is over I'm sure. I'm ok so far just tired and hungry !

Shooting I'm sure they'll be fine with my hair really it's just all in my head

Gigs sounds interesting and good they they are looking into everything.

I have no news have spent the morning sleeping and watching crappy tv ! Hope everyone's having a good day

a hug for you really
Sorry to rush in and out- have just posted something on my fb page about pink shit and if anyone is passing could they back me up in case people think I'm just being unreasonable ?

Am feeling a bit anyway at the mo and want to talk to bcn - she seems v hard to get in touch with at the mo- nothing really, just feeling a bit down.

really it's good it's so quick in one way but bad as it doesn't give you much time to get your head around it. Any qus just shoot - lots on here have had node clearance (either with other surgery or separately) - I'm due for it alongside my mx next month, so I'm interested too :)

pigeons ah but you forget I'm hoping to persuade them to let me join the no boobs club

malt hope feeling okay continues and no truck is heading your way :)

MAS posted on fb. Is there any particular thing getting you down or is it a more general crappy feeling? I know I'm finding it hard feeling I'm on a treatment treadmill at the moment, but I know I will get to the end eventually. I can only imagine what it's like to be effectively on the treadmill permanently :( You would be super human not to get a bit down sometimes.

Afternoon. Malt - sounds like you are doing great on your 'T' - make sure everyone waits on you this weekend though - no point being superwoman.

Really - sorry you are not having great support from your surgeon/BCN - remind me what surgery have you already have? Is this node clearance or lumpectomy/mx as well?

I've now got my first Paclitaxel scheduled for next Wednesday. It will be wierd having it at home - they said the chemo will take about an hour plus another hour of the getting organised/clearing up etc. Am glad I'm only have 9 weeks or it would take me right up to Xmas.

Btesy - you have so nearly completed your chemo - your surgery will be a breeze after that . Are you expecting Rads as well or will you be done after your Op?

MAS - sorry you're fed up - like Betsy I can't imagine what it feels like to be on a 'permanent' treatment plan - you're usually so positive - maybe the October/pink thing is the problem.

MAS I'm sorry you're down, you sound tired which might be making if worse, try and put your feet up a bit this weekend x

Kitkat don't worry I will, mil is bringing lunch and dinner up for tomorrow it will be weird having chemo at home, nice though not to have to travel and should be a bit more relaxing

Betsy hope you're still feeling a bit better, when will it hit me if it does, maybe tomorrow or Sunday ? I'm just knackered, mum said I looked like if been crying but I haven't

Dd is making pecan and chocolate scones seems to be making rather a lot so I'll put some on the trolley

Hi all and thanks for all your good wishes. Well MRI was all clear which is a huge relief. I had MRI on Wednesday but got up out of bed that night and felt really ill, broke out in a cold sweat, retching and I was very disorientated and then took a headache. DH booked me an emergency appointment with gp Thursday morning and she is treating me for vertigo although she feels it is more anxiety related . My blood pressure is high as is my blood sugar so I have to go back this week for fasting blood sugar, bp and blood tests but when nurse arrived today for Herceptin onc had asked her to do a full blood count and oncology profile. I was mortified as I bawled my eyes out in the doctors. Still not feeling great but have managed to eat today which is an improvement.

mas sorry you are feeling down - unmumsnet hug x

kitkat I had all my chemo and herceptin at home. Its really convenient.

really sorry you are feeling upset but it is good to get the surgery over and done with.

Don't want this to turn into an epic post but thinking of you all and hopefully will be back when I feel a bit better.

Hi all from me. gracie that sound all very scary hope the tests show it is easily fixed and glad you have eaten today! any treats we can tempt you with ?

I had my ultrasound today and there is no big cancer in my neck just hoping there is no little bits either. A 2 week wait for results proving rather hard.

We have been through the loft and found some of the children's toys from years ago. A real trip down memory lane. We are finding it hard to know what to keep and what to get rid of.

Anyone else not sleeping? Can't even lay in in the morning as youngest foo has football. DP working today.

Oh we'll shall swing by the coffee shop on my way out this morning.

Hope you re back to sleep now foofoo?

notj one tick for u/s, fingers crossed another tick in 2 weeks, we will wait with you :)

gracie hope you feel better soon

malt for me it starts on the Sunday, and progressively worse til Tuesday then slowly better til Thursday/Friday when I start to feel okay but knackered ( feeling much more tired since starting tax, not sure if it's the tax causing it or the cumulative effect). But don't you sit around waiting for things to happen like you did on the first FEC cycle! Hopefully tax will have as little impact on you as FEC did!

kitkat Yes I've been told there will definitely be some rads, (due to size of tumour) but path after op will determine if it's just a general blast or if they need to target specific areas too. (eg how if/how big clear margins at chest wall)

Nope, on my second episode of ER. Shall treat myself to an afternoon nap later.

I hope the sickness you had has passed.

I have a busy week coming up:
Monday blood test
Tuesday LGFB
Wednesday chemo
Thursday flu jab

It's all go.

Yes sickness all gone thanks. Might have a nanna nap myself later
Yes busy week for you, quiiet week for me, then my LAST chemo the week after (not that I'm counting the days or anything...!)

Gracie huge relief for the MRI sorry you're feeling poorly though get well soon
NotJ good news so far fingers crossed for you

Foo foo busy week ahead I'm sure you'll love LGFB. Are you ok to have the flu jab the day after chemo they told me to have it in my good week just before the next one. They do seem to give different advice though

Betsy thanks for that, promise I won't be just waiting for it to hit, though haven't made any arrangements yet this week just in case glad you're feeling better

Had a nice evening with bil and sil, they're moving soon so looking at pics of their new house, very exciting. They're off to see friends this morning and we have mil and fil arriving

Hope everyone has a good day

Morning from me. Another bad night for me. I hope this nightmare ends soon. We are still waiting to hear if the bastard bank will allow us to move the mortgage we have had for 10 years and paid every month for 10 years to another house. I am beyond fed up. Who knew porting a mortgage is so difficult even though we have been paying it for 10 years and only want to move it not change it at all. With scan results looming I don't know what to think about.

Pouring with rain here and we are off to a BBQ later. I think I will have a few

What are we all up to this weekend ?

Sorry I am so miserable and grumpy please feel free to ignore me .

Grump grump moan moan I am even boring myself now.

NotJ what a pain with the bank when it sounds like you are asking for something simple and straightforward , no wonder you're fed up with scan worries on top, hugs
BBQ sounds good though, even in the rain ! God they've got a gazebo and plenty of booze and you have a good time x
Don't worry about being grumpy on here we've all done it and me more than most

Foo your week next week is very similar to mine the week after as I have FGLB on Tuesday 8th and Chemo on Wednesday (so bloods before that). The only difference is that I had my flu jab yesterday.

I'm quite excited about FGLB - as I love make up and products and also as it will be a morning out (am reaching a bit of a fed up phase).

NJ - sorry to hear your house moving woes are continuing - I know mortgage companies can be a nightmare to deal with. Hopefully now you are off your restricted diet you will start to feel better in your self. Great news on the scan results and fingers crossed for the other results.