Won't be getting much sleep tonight.

[MrsBeep]

Tomorrow I get results of a lumbar puncture I had back in June, to tell whether or not I have multiple sclerosis.

I don't think I'll sleep well tonight. I've been in 'limbo' with it for 2 1/2 years now.

Someone hold my hand?

I'll hold your hand. Have you been able to get much rest at all?
What RL support will you have with you tomorrow x

Oh my goodness - I'll hold your hand. I'll keep the fingers of the other one crossed for you.

Thank you both so much.

I am lucky to have a great DH who will be at my aide tomorrow. I have not been coping well in the past week at all.

*at my side (damn phone)

I'm holding your hand x

I'm not surprised you're finding it difficult. I don't know much about MS, so I can't offer any words of wisdom. But try not to think too much about the future. Even if it is MS, it could be very mild, couldn't it?

Do you have anything to distract you? Any DVDs?

OMG - Since June? Why so long? I'm GMT-8hrs so won't be up for too much longer, but hope you get a good result today. Un-Mumsnetty hugs (((MrsBeep))). I'll sleep with my fingers crossed for you :)

Let us know how it went, MrsBeep

MrsBeep how dreadful for you ,waiting for results is always harder than dealing with the outcome .Even when it's unwelcome news .
You've been waiting since June ? That's unimaginable ,pure torture .

Have my hand .

Here's my hand too.

Thank you everyone. Yes, the waiiting has been the worst part of it I feel.

It's as I thought, I do have MS. T won't change much of my life for now, just going to be living and waiting until something 'happens', a bit like a ticking time bomb. We're going to continue to live life for now as we already do because my husband has the gene for Huntingtons Disease, which he will eventually develop into symptoms/complications.

We're a right pair, both with neurological disorders.

Sorry I hadn't been back in to update, I've been trying to process it in my head.

I'm sorry to hear that MrsB I know its different for everyone but as someone who was diagnosed with a neurological disorder myself 3 years ago i can say that its not in my thoughts at all now. When I was waiting for the diagnosis it consumed my every thought now I can go days even a week without thinking about it. I think for me once I knew what I was dealing with I could cope a lot better- I hope it's the same for you and your husband x

migotka84 Please don't spam my thread, that is completely inappropriate. I have reported you.

I'm also sorry to hear that, MrsB. That must be hard. I don't know much about MS, but isn't there a chance the symptoms might be fairly mild? Regardless, it's still a difficult thing to come to terms with. I think you're right to live life for now - it's all we really have, anyway. Hoping you have many symptom-free years x

MrsB, I was diagnosed with MS in 2011, and it was a shock at first, and very scary. Just give yourself space and time to come to terms with the idea that your 'life plan' has changed. Although the uncertainty of MS is difficult, I have also found that in some ways it can be a comfort, because there is always the possibility that it won't get worse, or, in my case (as I have RRMS) it could be better some of the time, which isn't true for some other neurological conditions.

I have found the NHS to be pretty good re advice and treatments, although I think I have been lucky with the people I have come into contact with, but if you are interested in alternative medince/treatments there are also lots of good resources out there. The main thing is for you to develop a sense of control over what is happening and how you manage it, because you can't fully control the condition. I have found that has helped me to stay positive, which makes a massive difference.

So sorry that was the result . I hope you have support to help you through the first phase of this .

Wish I knew what else to say .

+

I am sorry that you have had this diagnosis. I can understand how you are feeling as my DH was diagnosed 3 years ago. It was like a bolt out of the blue and at the time we felt that life had changed overnight.

The reality is that actually once we had got over the shock, we found that life carried on as before. We have had to make some adjustments at times, but it is so important to maintain a positive attitude.

There are various treatment options and my DH injects Rebif 3 times a week. This is now part of our routine. The drug will not cure him, but it reduces the progression of the disease and means that his relapses will be less frequent/less severe.

There are so many new drugs going through the licensing system at the moment. I do truly believe that in the not too distant future, there is a possibility that a cure will be found. There is so much ongoing research.

My DH works full time & enjoys a full and happy family life. His first relapses were very frightening at the time, but gradually the symptoms improved and at the moment he is in a remission phase. Long may it last!

Thank you all kindly for your replies and support.

And to those of you who have posted stories of your own MS experiences. I would reply individually but don't have the emotional strength at this stage. Thank you all so so much, you have been most helpful, I really appreciate it.

Oh you poor thing , I've got the hunting tons gene and can only imagine how your feeling xxx