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Do you think I'd even have a chance at getting ESA?

8 replies

FinallySaidMama · 08/09/2013 08:06

I'd like to start by saying I do realise their are far more people out there worse off than me, and I know money is limited to help those who really need it. But I'm getting fed up.

I've had chronic back pain for over two years. It started on the first few weeks of my pregnancy with DD2, one day just couldn't stand. Extreme pain, far worse than childbirth! Needed help on the toilet, very limited mobility and all that jazz. This lasted about three weeks and improved enough for me to do stuff independently, albeit on painkillers.

In the past two years the pain has been unchanged, lower back pain with nerve pain going down my right buttock and leg (I wouldn't strictly call it sciatica though, it goes down the front of my leg oddly enough, and never goes past the knee)

My GPs have been pretty useless Sad they just said I had mother's back (whatever the fuck that is Hmm ) They were happy to hand out a variety of pain relief though, paracetamol, ibuprofen, codeine and tramadol.

Finally one GP started to take me seriously after several tearful visits, first referred me to a physio (I'd already seen one in pregnancy thanks to my lovely midwife) but I didn't find it changed anything. I saw a chiropractor (privately) twice a week for three months, didn't change anything. I saw a remedial therapist three times (privately again, thank god my dad was funding all of this!) And again it didn't change anything.

Finally the GP relented and send me for MRI. I have a large disc protrusion, which is pressing on my nerve root. I've been referred to neuro at my local hospital but this was a month ago and I'm still waiting for an initial appointment to be made with the consultant.

In the meantime I'm in pain. My lack of choices is getting me down. I'm a trained nurse but had to give up my job because of my back. Now my professional registration has lapsed and I wouldn't be able to return to practice (even if I was fit enough) until late next year (because of the intake of the return to practice course)

I call myself a SAHM because I have a 3 year old and a 1 year old. This is where I'm a bit unsure and needed some advice. Technically I can do most things. I can drive around, change DD's nappy, lift her, do the washing etc. but I do it all in pain. I take regular tramadol and paracetamol to keep the bulk of the pain away (it never goes completely)

When I read about people getting ESA it seems to be that they cannot do things. I certainly couldn't if I didn't have all the pain relief, but I manage most activities of daily living independently. What I can't do is find a job that wouldn't exacerbate the pain. I certainly could nurse at the moment, or do any care assistant work, I'd be in agony. I couldn't sit at a till or desk for any length of time, since my back went, about half an hour is all I'd manage in a chair. I can't sit on my sofa at home because it leaves me in so much pain, and I need to lie flat on the floor at regular intervals to help me manage me pain.

I apologise for the length and waffly nature of the post, I'm feeling sore and emotional this morning, and utterly fed up. At the moment we survive on DH' s wage and child tax credits. We are OK, but their's never anything left at the end of the month and I'm sick of feeling trapped and unemployable. I just don't know the ins and outs of the system, whether pain affects your claim or not, or whether they'd just tell me I was a scrounger and to get lost Sad I know their's people in far worse health situations, and I don't want to be taking the Mick when they need it more.

OP posts:
FinallySaidMama · 08/09/2013 08:06

God that's long, I'm sorry!

OP posts:
AcrylicPlexiglass · 08/09/2013 08:09

Apply. What have you got to lose?

MissMarplesBloomers · 08/09/2013 08:13

Blimey OP that sounds horrendous.

You need to start hassling the consultants sec to get that appt asap. Get on the phone Mon & really lay it on thick about how this is affecting your daily life ( becaise it genuinely is!)

Short term you should be able to get something I would think have you talked to the Job centre or CAB.

Sorry not much help ....

StormyBrid · 08/09/2013 08:15

To anyone with an ounce of sense it's clear you're not fit to work at the moment, so by all means apply. Just be aware that you'll be required to attend a medical, which you'll probably fail - not because you're fit for work, but because you pretty much have to be clinically dead to pass a medical these days. If you appeal you may get it, but be prepared for a lengthy and stressful process. Good luck!

Matildathecat · 08/09/2013 10:47

Phone the benefit helpline, they're actually really helpful and knowledgable or were to me. I was dismissed from my midwifery post due to ill health which was my back.

You can apply for contribution based ESA which I got with no trouble at all and can be paid for up to a year. They fill the form in on the phone, you need a drs note and have to remember to renew. You can only get this if you've paid your NI contributions but do phone because they can use previous years if you haven't worked very recently.

Top tip....call early and you get straight through. Later on you queue. Have all your bank details etc ready.

My situation was a bit like yours, don't rush down the surgery route. Has your GP referred you to the Pain Clinic? Hope your appt comes soon though knowing the nhs I wouldn't hold your breath. The whole lack of care for back suffers makes me sick.

FinallySaidMama · 08/09/2013 18:11

Thank you so much for all your comments.
MissMarple Kind words are always useful!
Acrylic To be honest, I don't know. I guess I'm just afraid of the situation Stormy describes (thank you for the good luck wishes Stormy). When reading about it, it seems you have to jump through so many hoops. I don't have a doctor's note, I wonder if I'll have to pay for one?
Matilda That's really good to know re. the benefit helpline, thank you. And yes I'm not in a hurry for surgery, apart from anything the recovery would be too long when I have a very dependent one year old. I'm hoping they're going to offer me hydrocortisone injections or similar.

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Matildathecat · 08/09/2013 21:46

Sorry, it's not a doctors note, just a sickness certificate the same as if you are sick at work. You submit this with your claim. If,for example the dr signs it for 3 months then you have to get another one to continue to receive the ESA. You don't have to pay.

Give them a call and stress it's contribution based ESA you are enquiring about. I genuinely was amazed how easily I got it. I must add I did genuinely deserve it, too. No medicals. Got to be worth a try...

Also if you were nursing, were you in the Nhs pension scheme? May be worth enquiring about that.

Best luck.

FinallySaidMama · 09/09/2013 07:17

Oh thank you Matilda I'm with you! I'm going to give them a ring this morning. I'm also going to chase up my appointment with the consultant.

The only thing is I haven't worked in two years (actually two years and two months) since my back first 'went' so I'm not hopeful of getting any contributions based award unfortunately (although it's worth a try!) And yes I did have an NHS pension, I think it'll be worth about 28p a month when I retire Grin

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