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Anyone living with bulging discs/constant back pain? Been told it's for life...

19 replies

CheeryCherry · 09/08/2013 07:41

Had MRI results yesterday, bulging discs in lower spine, was offered spinal epidural so on waiting list, but only 50% chance it will work.
Told there's not much else I can do, basically adjust and live with it.
Anyone else in this situation? Any tips? Feel deflated, but relieved its not a worse case I guess.

OP posts:
grimbletart · 09/08/2013 17:00

Am bumping for you Cheery to see if anyone in the same boat can advise.

I had lower spine disc problems for years (sciatica, constant crippling pain etc) while docs faffed around getting me physio etc. and basically saying put up with it. It got so bad they finally agreed, after 17 long painful years, to surgery to remove the two offending discs. Instant cure.

Not saying surgery would be right for you at all and you may well be able to get over it, but if it does drag on for a long time don't put up with it. Get a further opinion.

Meanwhile I hope you get some relief. The only practical tip I can offer is avoid sitting on soft low chairs/sofas where you bum is lower than your knees IYSWIM. Good luck.

juneau · 09/08/2013 18:02

Adjust and live with it? Fuck that! I'd definitely be looking for a second and third opinion. I know not everything is curable or fixable, but I certainly wouldn't just acquiesce to the idea of a life of chronic pain without making damn sure it was the only option.

Matildathecat · 09/08/2013 19:27

Physio, proper assessment of your analgesia, referral to a neurosurgeon, lots of options.

Who gave you that helpful advice? Also how long have you had the pain and how bad is it? Mine felt like a gunshot wound...

Hope you feel better soon.

SuddenlySingleAgain · 09/08/2013 19:35

hi ! I don't know why they haven't offered you surgery ?! without sounding rude - are you over weight - as I know that this seems to be one reason they don't offer surgery - if you are could, you try really hard to loose weight ? I know it's difficult -I had to loose weight to have my surgery - but I did - and now I have my life back - yes I have bad days - but most are good enough to walk and run ! so it really is worth it ! juicer diet worked for me ! good luck ! and really hope they operate soon .

CheeryCherry · 10/08/2013 17:34

Thank you all. Ive been suffering 9 months, had chiropractor sessions while waiting in physio list. Then as physio and time didn't help, went for mri scan, msk medic advised me to keep active (i am) and lose weight. Not offered an op as its not bad enough (thankfully) but just restricts what I do. Advised to change my job which is easier said than done, and I love my job :'(
Having the epidural in 6 weeks which may work.
Sigh.
Hoped there would be others in this situation!
Thank you anyway!

OP posts:
NatashaBee · 10/08/2013 17:36

This reply has been deleted

Message withdrawn at poster's request.

CheeryCherry · 10/08/2013 17:38

Suddenly what's the juicer diet?

OP posts:
chickensaladagain · 10/08/2013 17:58

I have a bulging disc which gives me ankle pain to go with my back pain

I've found that sitting on a gym ball and doing pelvic floor exercises really makes a difference

It's changed from being constant pain to 'I'm aware of it but it doesn't limit what I do'

Bellebelle · 10/08/2013 18:06

I have a bulging/leaking disc, (L3 I think) which was diagnosed with a MRI scan about 5 years ago. It started when DD1 was 6mths and was agony but I put up with it thinking it was normal from carrying her so much (clingy baby.) I was referred to NHS physio and spent a small fortune on a Chiropractor over a couple of years but nothing helped. [Only my opinion but I think that Chiropractor's are great for fixing sudden, acute problems but can't do much with something like this. Does wonders for DH when he "puts his back out" but not for ongoing issues iyswim.]

Anyway, eventually went private for the MRI and consultant referred me to their physio clinic where they set me up on a programme in their 'gym.' I think it's called an "active spine programme," was Bupa at the time, now Spire. It did wonders, it consisted of me going twice a week, for 12 weeks, at a pre booked time and following a programme on lots of different machines, very similar to going to a normal gym where they devise a programme to follow every time you go. You're closely monitored by your own physio who adjusts the settings/difficulty of each machine depending on how you're getting on and your pain levels. My very basic understanding is that the back pain you get with bulging/leaking discs is from the muscles in your back being tense/over compensating for the injury to your spine. With this they worked on both improving my mobility and strengthening the muscles in my core, legs and upper body to take the strain away from my lower back. It's a kind of rehab for your back. I am now mainly pain free and try to keep up the home exercises when I remember, if I get a twinge I make sure I do them religiously for a couple of weeks and the pain goes. I also go to yoga (the fast, hard kind!) and run, both things I was told by the NHS physio I'd never be able to do again.

I was very fortunate in that I get private health care through my job all costs were covered, it wasn't cheap. There were lots of people there who were paying themselves though and who found it to be worth every penny. I don't think I realised quite how miserable and grumpy I had been until I didn't have to live with the pain anymore.

I hope that's helpful and that the injection works. I was offered them as an option but went for the physio instead, I know a few who were worse than me did them both successfully. I'd be cautious of surgery though, it tends to involve fusing your spine together which reduces mobility and really should be a last resort.

Good luck and don't listen to anyone who says you need to live with it.

Matildathecat · 10/08/2013 18:14

Cheerycherry,

Sounds painful but from what you say it sounds the right advice. I had surgery and have suffered awful, lifechanging complications.

I was told that eventually a bulging disc will collapse to the point where it would no longer press on the nerves. My brother also had similar problems and his has got better.

Can you exercise in the water? Also my physio does a fantastic release massage which helps my pain as a lot of the pain actually derives from muscular spasm. Heat also helps me. I was surgically attached to my hottie for months!

For me a balance of drugs, pacing, gentle exercise and planning my life around my back keeps me on a fairly even, if very restricted, keel.
Sometimes I think sod it and do something crazy like go to a restaurant and suffer the consequences. Sitting is incredibly painful.

I'm not quite in the same boat as you but have been told that chronic pain control is my only option. Fro what you say, sounds like your prognosis may be better.

Hope the epidural helps. You haven't mentioned what drugs you are taking but quite possibly they could be adjusted too.

If you are under a pain clinic it may be worth asking about their Pain Management Groups. I am starting a course soon. That also opens other avenues like Alexander Technique sessions.

I sympathise. It's hard to accept but there are ways of living with pain.x

Ps sorry this is so long but do you work in an organisation with Occ Health? They can help get adjustments in the workplace.

CheeryCherry · 10/08/2013 18:40

Belle and Matilda your stories give me hope! I have been given the ok to swim, which I had been told to avoid previously, and I am walking the dog...a lot! I'm not sure about occupational health, but its something to find out about.
I'm glad I'm not going down the surgery route, it would scare me to death. I love the sound of the active spine gym, will make enquiries, but the cost may be off putting.
Chicken I wasn't sure that a gym ball would be suitable?

OP posts:
chickensaladagain · 10/08/2013 18:50

The gym ball was suggested by the physio I saw

Strengthens your core muscles and improves posture which helps

PeggyCarter · 10/08/2013 18:52

This reply has been deleted

Message withdrawn at poster's request.

goodjambadjar · 10/08/2013 18:55

Ask for an NHS physio referral, they gave me a great back support for the bad days. If you can afford it, see an osteopath, and try something to strengthen your core. I found Pilates worked wonders. I have dehydrated discs, but despite MRI and xray my docs won't do anything other than prescribe rest and painkillers so I've given up going to them for help. Angry
My spine feels like the end of a Jenga game. My disc problems are hereditary. My aunt, mum and nan have all had spinal fusion but they won't offer it to me, so I totally understand the medical brush off you've been getting. I hope the spinal block helps you. x

CheeryCherry · 10/08/2013 20:31

Thankyou.
Joyful that sounds amazing. I may mention it when i have my epidural.
May try the gym ball and pilates...have been doing core strengthening as per the physio.
Good luck to all of you who are suffering :)

OP posts:
CheeryCherry · 10/08/2013 20:59

Going on my hols tomorrow so I'll sign off for now and hope my back holds out for a week. Thanks for all your advice!

OP posts:
Matildathecat · 11/08/2013 10:34

If you are swimming only do crawl or backstroke? Breaststroke isn't great for your back especially if you hold your head out of the water. Walking in the water, back, forwards and sideways is great.

Have a lovely hols.

awaynboilyurheid · 11/08/2013 21:59

I have disc problems too was advised to swim by an aussie physio I do backstroke mainly as it tightens lower back muscles stopping the discs bulging out, also do front crawl but that really exhausts me as I have other health issues so can only do a few! but he said at least twice a week and I really notice my back pain returning if i dont go regularly, hope you had a good holiday.

shelleywhite · 18/10/2013 16:17

With all due respect to the "health professionals", do lots of research! The honest fact that you probably won't hear from the medical profession, is that bulging diskc and herniated disks can and do heal, with proper care. Having had both a herniated disk and also the one below it bulging and ready to go as well, believe me - I know what that sort of pain does to your life. Been there done that, and disgusted with the "information I was given".

I was told my back would never improve without surgery, from both doctors and my chiropractor. However, I wasn't going to let them cut a bit of me out, that I needed. After almost three months of not being able to stand straight and using my hands to hold my weight everywhere I went, I just keep looking for answers and tried everything there is available. It took a long time, with the right information and lots of work, I am now almost 100% again.

First thing is that you MUST move. That is one of the most important things, as blood flow is needed to nourish the area. It can't heal without exercise.

Check this site for the program I used to both exercise without doing further damage - and to heal my back: www.backpainsolutions.org/

Good luck and hang in there, it can get better - and definitely will if you work at it. You don't have to resign yourself to a life of constant pain Smile

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