sweat test results, confused...

[ojbsmum]

Hi,
My son (3.10) is having all sorts of tests to find out why he has such sticky poo, nasty coughs etc.
Coeliac disease has been ruled out. Food intolerance being investigated. He also had a sweat test for cf. We've just been called back to have it repeated as the result was 64. The nurse told me 60-90 is the equivocal range but online I can only see 40-60 as borderline and >60 is a positive result.
I know I need to stop worrying and wait for our next appt with the consultant but does anyone have any experience to share?

cysticfibrosis.org.uk/who-we-are/support-for-all/helpline.aspx

Give them a ring they are very helpful.

The blood tests they have taken, were they to look for CF as well?

My son ( similar symptoms and same age at the time) was borderline with the sweat test, but they did the blood one as well.

He does not have CF but interestingly they found out he is a carrier.

They did blood tests earlier for coeliac disease, don't think they tested for cf then but pancreas function was ok...
The nurse said they're likely to do more blood tests if this sweat test comes back borderline.

Thanks for sharing. I'm glad your son had a positive outcome, being negative. Interesting you found he's a carrier. Have they tested the rest of the family too now? Did you get any definitive diagnosis/answers in the end for your son?

I just feel that they are doing test after test but don't seem to be getting any closer to telling us what we can do to help solve DS's problems.
Very frustrating and worrying. Really just want to get him sorted out but don't know what else to do but wait...

They have offered testing for our other children when they reach 16, our eldest has recently been tested and that came back negative.

I am the carrier who passed it on!

My ds symptoms were failure to put on weight, loose, sticky, mucusy stools. He also had frequent chest infections and a x-ray showed some odd patches that made them suspect CF.

He was tested for Coeliac disease (his older brother has that) but that came back negative. Other tests showed that he was lactose/wheat intolerant.

He has been on wheat and lactose free diet for several years now, and although slim he has had no further chest infections and only gets tummy problems when he eats something he shouldn't do.

Hope you get answers soon, i remember how anxious i was about ds.