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Migraine Aura, talk to me please!

27 replies

Bogeyface · 15/07/2013 23:15

I ended up at A&E 4 weeks ago as I had a major visual disturbance that was very similar to what my father has due to bleeding in his eyeball. He was already blind in one eye and is now losing the sight in his other due to that. We were with my parents for Sunday lunch and Dad was terrified I was having bleeding and would have called an ambulance if I hadnt called a cab.

I ended up with a banging headache and the doctor explained it was a migraine. 2 weeks past 40 and this was my first one.

I have since found out, after much googling and watching a very good video online, that this is Aura and since that first episode I have had 3 more migraines, still not worked out if I have a trigger yet although I suspect stress. Its quite handy in a way I suppose, I do at least know that within half an hour of the eye disturbance, I need to be in bed in a dark room dosed up on pain killers. The banging awful head aches last about 2 hours but the horrible "not in my own body" feeling lasts up to 24 hours.

What I am confused about is what happens after the visual thing but before the headache. I feel sort of....odd. Disassociated from myself, like an out of body experience. I need to shake my hands, flex my facial and leg muscles, talk, blink, etc just to make sure everything is still working properly as it feels like it wont. That bit is quite frightening as I worry I have had a stroke or something. My brain feels too big for my head, it feels really heavy, I keep shaking it to make everything settle,

Does that make any sense at all? Is this normal for Aura or is something else going on?

OP posts:
2kidsintow · 20/07/2013 21:11

I get the auras - followed by the weird out-of-body, slightly queasy feeling. I don't get the headache though.

I think my trigger is light related - I always am careful when in a place with lots of glare or reflected light.

I've had them in parents' evenings and when teaching a class - and the first was when I was alone with my 2 year old. Scary when you can't see but have to get on with things.

Luckily I can get my words out right, although it takes more care to do so.

One thing to bear in mind - are you on the combined contraceptive pill? I've been changed to the mini pill after admitting to suffering from auras as there is a higher risk of stroke if you are taking the combined pill.

Bogeyface · 20/07/2013 22:35

No, I am not on any form of contraception.

I am trying to think where they happened.

One was in Aldi, one was in a Chinese restaurant, one was in B&Q (well, the aura actually started in the car on the way there), one was at home. The only connection I can make is hormones, as the first three happened just before and during my period and this last one was on the first day of my period too.

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